post operative club foot with 4" leg discrepancy
I was born in 1980 with a severe clubbed right foot. I had my Achilles tendon cut at two weeks and had my foot turned and braces put on to try and "correct" my foot. At least make it as functional as possible. My parents found the Shriner's Hospital fof children which the closest one was in St. Louis, MO. I had several surgeries. but was able to begin school at 5. We were told I required at least one more surgery to correct the discrepancy of leg length. This is a painful operation in which the surgeon breaks the bone and fits braces inside your leg until the bone grows together and id rebroken and stretched back out until the legs are the same length. I never had this surgery and at 33 my right leg is now 4" shorter and my spine of course is riddled with degenerative scoliosis with collapsing disks from the very bottom of my spine which continue to buldge, herniate, and collapse completely all the way up my beyond crooked spine. I stay in excruciating pain and have had horrible experiences "doctor shopping" in attempts to find doctors who even recognize the seriousness of this congenital deformation or who even know what it is. I've been told more thsn once that I simply have a broken foot! Being in the Bible belt of central AR I have been lectured that I lack faith in the Lord or he would have completely "healed" me and this is my punishment for not believing strongly enough. When I am screaming in pain when it gets really bad my husband seems to even doubt me because he and my mom always want me to go to the e.r. I guess they have never been treated and probably noted as a "drug seeker" and the horrible ride to an e.r. when you can't even walk to your own restroom then to wait in such uncmfortable rooms to be seen finally by a dr. who looks at you as if you are crazy to tell you to use heat,ice, tylenol, and ibprophen as an antinflammatory for joint pain. All of these items stay readily available to me at home. As far as heating pads, the pain is so bad I have several burn marks from them bc the pain is so intense I literally do not feel my flesh burning. I need s dr and a new pain management dr. in the Little Rock area very familiar with my medicak conditions who are somewhat affordable. I have a disability hearing in less than a month and after three years of fighting the system I really need a caring and knowledgable physician. Please are there any recommendations. Thank you, desperate for pain relief and some real help!!!