post operative club foot with 4" leg discrepancy

I was born in 1980 with a severe clubbed right foot. I had my Achilles tendon cut at two weeks and had my foot turned and braces put on to try and "correct" my foot. At least make it as functional as possible. My parents found the Shriner's Hospital fof children which the closest one was in St. Louis, MO. I had several surgeries. but was able to begin school at 5. We were told I required at least one more surgery to correct the discrepancy of leg length. This is a painful operation in which the surgeon breaks the bone and fits braces inside your leg until the bone grows together and id rebroken and stretched back out until the legs are the same length. I never had this surgery and at 33 my right leg is now 4" shorter and my spine of course is riddled with degenerative scoliosis with collapsing disks from the very bottom of my spine which continue to buldge, herniate, and collapse completely all the way up my beyond crooked spine. I stay in excruciating pain and have had horrible experiences "doctor shopping" in attempts to find doctors who even recognize the seriousness of this congenital deformation or who even know what it is. I've been told more thsn once that I simply have a broken foot! Being in the Bible belt of central AR I have been lectured that I lack faith in the Lord or he would have completely "healed" me and this is my punishment for not believing strongly enough. When I am screaming in pain when it gets really bad my husband seems to even doubt me because he and my mom always want me to go to the e.r. I guess they have never been treated and probably noted as a "drug seeker" and the horrible ride to an e.r. when you can't even walk to your own restroom then to wait in such uncmfortable rooms to be seen finally by a dr. who looks at you as if you are crazy to tell you to use heat,ice, tylenol, and ibprophen as an antinflammatory for joint pain. All of these items stay readily available to me at home. As far as heating pads, the pain is so bad I have several burn marks from them bc the pain is so intense I literally do not feel my flesh burning. I need s dr and a new pain management dr. in the Little Rock area very familiar with my medicak conditions who are somewhat affordable. I have a disability hearing in less than a month and after three years of fighting the system I really need a caring and knowledgable physician. Please are there any recommendations. Thank you, desperate for pain relief and some real help!!!

I wish you could have had

I wish you could have had that surgery when you were a child. Sad

My little girl was so fortunate to have Dr. Missiuna repair her elbow years ago.

I am so sorry you could not have had a Dr. Missiuna when you were a child, because he said, "God, I'm good", when he saw her x-ray on follow-up, and I agree.

But the truth is - only God really knows the truth about any doctor, or nurse, and sometimes, when we can't find answers, prayer works, and that's all I can do, and that's what I'm going to do.

I wish my mom had seen the

I wish my mom had seen the surgery through as well. I was scared and didn't want to go through it all and since it seemed I was getting along ok she decided I would be ok. I realized within a year or so I did need it. So I worked hard in school and graduated a year early. I then contacted Shriner's Hospital, Only to be told that the ages 17 that they can no longer help me. I understand their policy is to help all children under the age of 18. So I don't understand why I was turned down. The like you said there's some things only God can understand. And I do pray I pray a lot to be in less pain. It is really hurts my feelings and bothers me when people tell me that it's my rack of belief in God That cause my disability in the first place and my lack of faith that has not arrived God to cure it. I just really don't believe that's the way things work. And I also do believe that God did not intend us to judge each other especially so harshly In regard for things such as health and our own personal beliefs. I'm very glad that your little girl is doing great. And that she has such a wonderful mother and had such a wonderful doctor when she was a child. Thank you for responding to my post I didn't think anyone was going to. If you know of anyone else who may be able to give me any suggestions please pass this on And have them send me their messages and suggestions. I would very highly appreciate you doing so. Thank you sincerely, Kimberly

kimberly teague reunard

kimberly teague reunard wrote:

I wish my mom had seen the surgery through as well. I was scared and didn't want to go through it all and since it seemed I was getting along ok she decided I would be ok. I realized within a year or so I did need it. So I worked hard in school and graduated a year early. I then contacted Shriner's Hospital, Only to be told that the ages 17 that they can no longer help me. I understand their policy is to help all children under the age of 18. So I don't understand why I was turned down. The like you said there's some things only God can understand. And I do pray I pray a lot to be in less pain. It is really hurts my feelings and bothers me when people tell me that it's my rack of belief in God That cause my disability in the first place and my lack of faith that has not arrived God to cure it. I just really don't believe that's the way things work. And I also do believe that God did not intend us to judge each other especially so harshly In regard for things such as health and our own personal beliefs. I'm very glad that your little girl is doing great. And that she has such a wonderful mother and had such a wonderful doctor when she was a child. Thank you for responding to my post I didn't think anyone was going to. If you know of anyone else who may be able to give me any suggestions please pass this on And have them send me their messages and suggestions. I would very highly appreciate you doing so. Thank you sincerely, Kimberly

These days they don't even use surgery to correct clubbed feet. There is a method for gradually twisting the newborn's foot back into place that works just as well. It was available in the 1980s but not well known.

I wish I knew of someone or something that could help you Kimberly, but I just don't. I'm sorry.

Kimberly - I sent you a

Kimberly - I sent you a private message. I recommend you consider Dr. John Herzenberg: http://www.lifebridgehealth.org/RIAO/InternationalCenterforLimbLengthening2.aspx

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