CHRONIC PAIN - CAN`T LIVE WITH THIS ANYMORE

honestly...I am not able to take this chronic pain anymore....my life is not worth living...I cry morning, noon, and night...and I am wanting to end this all...The pain is from not one but three serious motor vehicle accidents, the worst being the latest in 2009. I had to go live in a rehabilitation clinic for 7 months, because I was injured so severely...I worked and worked at therapy so I could return home to my family to my life...but since then I have been in chronic pain everyday....I can`t live like this anymore..I don`t know what to do...
I have tried, physiotherapy, massage therapy, exercise therapy, occupational therapy, accupuncture, chiropractor, tens, suction cup therapy, hot stone massage therapy, traction therapy, what more can I try.

I do admit that I found some temporary relief from deep tissue massage, but three days later I am in the same constant agonizing pain...I take oxycontin for pain...but am not able to take this during the day at work, as it leaves me too groggy... My doctor has asked me many many times to stop work and go on long term disabilty...sure I have insurance that will pay me my 100% wages while I am not working for the rest of my life ....but I love my job, adore the people I work with. I love the people I meet at work, frankly it is rare to find a job that they love, but I have and I want to stay there. Most days on my breaks, I retreat to the bathroom where I cry out in pain and slam my fist against the wall begging for something or someone to help alleviate this pain, but nothing... If I were to die tomorrow that would almost be ok with me, because of the pain that I am in..
By no means am I suicidal or want to die, it is just that I seriously can`t take the pain anymore..

Can someone please offer me any help or guidance as to what I can do
or if they are experiencing chronic pain...please please take the time to tell me what has worked for you..

I have an amazing husband and three dogs who I love more than anything in the world, but my life, their lives are being affected by my pain.. I am not able to walk them anymore, I am not able to go out to functions anymore because I am in too much pain...Each day is a struggle for me, but I still go to work, when it gets to be more than I can take, I take a day off work but try not to...

I thank you in advance....for any and all suggestions

Share

I just want to add the injury

I just want to add the injury is a Grade 2 Whiplash and Thoracic injury and rotator cup injury - not to mention fractured tail bone...

I suggest that you ask your

I suggest that you ask your family doctor to refer you to an MD based chronic pain clinic.

Such a clinic may be able to offer you a number of treatments and suggestions for the pain you are experiencing.

Hello flashback I cannot

Hello flashback

I cannot imagine how it must be for you . But I think that you need to admit defeat in the working department if your pain is at the point it hinders every other aspect of your life.
What I am suggesting is perhaps take the disability .... take a leave of absence from work and then
make sure you have turned over every stone there is to try and help yourself to alleviate the pain
you suffer from.

You need to be good to yourself ... I know what it's like to feel totally helpless but I was never in agonizing pain, at least not physical. Have to keep on chipping away till you start to see the statue under the stone.

I agree with the suggestion

I agree with the suggestion to ask for a referral to a pain clinic. There are many chemical and physical modalities that work very well that you may not have tried - the mood/sleep disturbance/pain cycle can be broken at different places. I would also look around and see if there's a "Mind/Body" practitioner in your area - I refer many patients to a local physician who practices MBSR (mindfulness based stress reduction) which is becoming more and more studied and validated as an approach to chronic disorders. Do a little research and see if it's something that speaks to you. Even if you're not sure, give it a try as it can't hurt. I use many mindfulness techniques in my life and in my practice and you never know where you will gain the benefit. It sounds like you have so many positive things in your life - perhaps it can help you shift the balance away from the pain.

May you be free from suffering.

http://en.wikipedia.org/wiki/Mindfulness-based_stress_reduction

I was in such terrible pain

I was in such terrible pain my wife could not stand being around me. I was taking percs bout 9 or 10 a day and they did nothing for me. I told my Dr. You have to do something, He put me on slow release morphine twice a day and it was like a miracle, 90% of the pain vanished and I only hurt now when I push myself beyond what I can normally do.
Try morphine, It is a miracle drug.
All the best, Mrx99

Woodland Minas wrote: I agree

Woodland Minas wrote:

I agree with the suggestion to ask for a referral to a pain clinic. There are many chemical and physical modalities that work very well that you may not have tried - the mood/sleep disturbance/pain cycle can be broken at different places. I would also look around and see if there's a "Mind/Body" practitioner in your area - I refer many patients to a local physician who practices MBSR (mindfulness based stress reduction) which is becoming more and more studied and validated as an approach to chronic disorders. Do a little research and see if it's something that speaks to you. Even if you're not sure, give it a try as it can't hurt. I use many mindfulness techniques in my life and in my practice and you never know where you will gain the benefit. It sounds like you have so many positive things in your life - perhaps it can help you shift the balance away from the pain.

May you be free from suffering.

http://en.wikipedia.org/wiki/Mindfulness-based_stress_reduction

The above is excellent advice.

A (good) pain clinic will use a variety of treatments to manage chronic pain.

YOU ARE NOT GOING TO FREAKING

YOU ARE NOT GOING TO FREAKING BELIEVE THIS....BUT AGAIN I WAS INVOLVED IN A MOTOR VEHICLE ACCIDENT, THIS TIME A DRUNK DRIVER SLAMMED INTO A CAR, WHICH THEN HIT ME, THEN I HIR THE CAR IN FRONT OF ME.....

WHY DEAR LORD AM I HAVING THIS PAIN INFLICTED ON ME....I WAS STOPPED AT A RED LIGHT, I DID NOTHING WRONG....

Sorry I was swearing....

So for the past month, I have been off and my insurance is paying my lost wages.... Again...I am going to numerous therapists and still nothing seems to alleviate the pain more than a couple hours, then its all back again.

I am on oxyneo, valium, toradol....yay these drugs make me feel so groggy that all I do is lay in bed...What a wonderlife I am living now..because of this ahole.....who feel out of his truck when the police went to talk to him...He could not walk but hey he thought that he could drive....

And to top it off my employer thinks that I am going to be off work for a couple more weeks...
I can`t even move my neck, is all tight that I can`t even turn my head....the pain radiates through my shoulder blades, down my sping and into my tail bone...

I am so angry, that I want to scream, I am not able to cry anymore, because what is the point..I can`t cry anymore...I was still suffering in pain from my previous accident three years ago and now this.

To top it off...I had a concussion, severe soft tissue injury and a Grade two whiplash.....

All I want is my life back, to return to work, to be a functioning person again, to enjoy life....

why am I being punished - or why is this happening to me.....Seriously...I have dealt with way too much stuff....
when will it end...

thanks for listening.....I am just not in a good place right now.
I tried drinking myself into a stupor yesterday but all it did was make me sick, so not doing that anytime again soon

Flashback wrote: thanks for

Flashback wrote:

thanks for listening.....I am just not in a good place right now.
I tried drinking myself into a stupor yesterday but all it did was make me sick, so not doing that anytime again soon

I'm really sorry for all the pain that you have suffered and are suffering.

I hope that venting on here helps to ease your pain, and feel free to vent and even to swear if it gives some relief; I'm not sure if the program will allow some bad words, but you can always try, if it makes you feel better.

But one thing that won't make you feel better is mixing drugs and alcohol. That is very dangerous, and you could wake up with permanent brain damage and unable to post on Ratemds for the rest of your life.

Don't let that happen.

I'm so very sorry to hear

I'm so very sorry to hear about your situation. Another accident?!! You must be in shock. I was in an accident 15 months ago and still battling pain in neck, head, low back, etc. - though not as bad as you describe. I pray every day - every hour & minute - that it doesn't progress to the level you have been experiencing. The most frustrating thing is finding exactly what is causing all the pain and the best way to treat it. I'm sure you must have had MRI's taken of your neck and entire spine. Did you get second opinions? Did they find any spinal cysts? Unfortunately, most doctors / neurosurgeons are not thoroughly educated about spinal cysts and the pain and damage they can do, so they too often go ignored, and the patient suffers. Perineural cysts (Tarlov Cysts) can occur anywhere along the spine, including cervical. Many are not painful, but if they become painful it can be utterly debilitating if untreated. There have been reports of people committing suicide due to the unrelenting pain. Also search Arachnoiditis. Most doctors and neurosurgeons dismiss them and give incorrect information about them. Example of false statements doctors say: everyone has them, they don't cause pain, they are always congenital. Though they most often don't cause pain, they can and do. The cause of them is uncertain, but most doctors that educate and study them say they can be caused by various reasons (congenital, lumbar epidurals, trauma). Trauma / car accidents have been reported to cause previously asymptomatic (not painful) cysts to become painful. Take charge of your body and health - patients must, if they are able - educate themselves on medical matters. Check out Tarlov Cyst Foundation and Tarlov Cyst Association. Google Dr. Donlin Long and Dr. Feigenbaum. They are 2 neurosurgeons that are considered experts on these cysts. Hardly any doctors / neurosurgeons operate on them - or even understand them. Left untreated and if become symptomatic, the cysts can grow, erode nearby bone and damage nearby organs. My thoughts and prayers are with you. I understand it's unbelievably difficult but STAY STRONG and focus on finding out what's still causing all this pain. FIGHT for your health! As several people in the medical community I know have told me, it's now the business of medicine, not the practice of medicine. Take charge! This is happening to you for a reason, and maybe it's because you can help others as you empower yourself. Peace & love.

Has anyone here researched

Has anyone here researched Prialt / ziconitide for these really bad pain cases? http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2654521/

I am about to lose my mind

I am about to lose my mind from the pain. I have been diagnosed with fibromyalgia, rheumatoid arthritis, depression, PTSD, 3 bulged disks in neck, 8 in lumbar and I think three more in middle, sleep apnea/narcolepsy, ADHD and was hit by a truck while walking my bicycle October 16, 2010. I hate going to doctors so after I was hit, I just withdrew, I saw my psychiatrist and he prescribed Prozac 40 mg, Adderall 30 mgx2, and Ativan .5. I finally went to a primary care doctor (a jerk) and was referred to neurologist/pain management. I had to sign the GAG Contract and then tested positive for pot. He had given me 60 lortab 10 but has now taken them away because of the pot and says I have to be tested and be clean for 6 months before I can have any more. I take ibupropen as I can but it makes my stomach burn if I take very much. (I say he, actually I have seen the doctor once and then have been stuck with a young snotty PA) She prescribed Skelaxin with makes me tire and doesn't help, it counteracts the adderall, and now prescribed Meloxicam. I took one pill wirh food and my stomach burned for a week. I will do whatever they want if someone will just help me with this pain. I am 67 years old and it sure feels like I am being abused because I can't get some pain medication. Sometimes it feels like no one cares how much I hurt or if it destroys what life I have left. What can I do. I want to live life and enjoy what I have left but I am worn out from the stress of dealing with this.

Flashback, As you know, I

Flashback,
As you know, I suffer with a lot of debilitating pain with my migraines. Although I have seen many neurologists, most of whom were helpful, the doctor that made the real difference was the pain doctor. I have chosen to take only the mildest of painkillers, and only at night, however, other treatments were offered to me. My doctor is a sub-specialist in interventional pain management, and has offered me steroid shots and other procedures that have reduced my pain, most days, to a manageable level. Chris will know if this is a subspeciality in Canada.

Do not give up. I've been there. But I have my life back now, and I'm glad I didn't give up when I was at my worst.

Have you found a new shrink yet? If not, find one soon, please!!!!

Hang in there!!!! You can do it!!!!

Rocky

Ask to be referred to a

Ask to be referred to a methadone clinic. Methadone is an excellent pain medication. I was on the oxycontin train for 3 years, was up to over 600mg a day. Went to CAMH, got switched over to methadone for pain. Still have the same amount of pain I had with oxycontin, but, methadone leaves you with a clear head. No foggy haze, no dropping off to sleep at any time. If anyone offers you advice on it, make sure they are taking it for pain and not for addiction. Big difference in how it is handled.

I am so sorry for the pain

I am so sorry for the pain you are going thru, I, myself am on 100% disability due to major health problems. Please ask your family Dr. to give you a referral to pain management. In the meantime I will keep you in my prayers. I hurt very badly myself but with the help of my Dr's I do get some relief.

It saddens me to hear this

It saddens me to hear this because I know what you mean. I too suffer from chronic pain, only unlike you, have never had a chance to have a real life, I've never had the chance to work or finish school or really do anything at all. It's so hard when all you have in your future is to get more and more pain, it's like you're just falling down this endless black hole that gets deeper and deeper and darker.... and honestly I don't know how to deal with it. The only reason I am not dead is because I'm too afraid of it, otherwise I'd probably have ended it. It's impossible when you can't have a life and nothing to really look forward to. When it becomes too hard to even do one little thing....like grocery shopping, anymore, when it was the last "fun" thing you had. It's so bad that just getting up from a couch causes me so much pain and I'm so weak that it's honestly one of the hardest parts of the day besides waking up.
All I can offer is that I manage with the love of an amazing man who also takes care of me. He is there for me and tries his best to understand. It's also hard because I have borderline personality disorder, anxiety disorders, OCD and many other health problems, and because of mainly the BPD, things are much more intense. Specifically emotions/feelings. Everything is black and white, to the extremes. Already it curses you with feeling hopelessness and all the things the pain and disability causes, but to have it on top of already feeling that way, it's unbelievably horrible.

I try my best to keep as distracted as possible. I mostly always have something on the TV in the background and spend a lot of my time online. It's my only real way to get "out" in the world or even have contact with people. I don't have any friends, so it's even harder. I used to be able to manage it a lot better when I had two close friends, but they stabbed me in the back and did some really awful things to me that were cruel and heartless. Friends really do help though... and having someone close to you that you can talk to. A good doctor is what has helped me the most. My GP is an amazing man who's done his best in every way to help me. I also hate feeling "inebriated" by the oxycontin and am now about to try the fentanyl patch. I've heard it's the BEST pain killing drug for chronic pain patients. In fact, my mom just started it and she said the difference is night and day. It's really helped a lot. I hope it works for me too.

I really wish I had something I could tell you to help, or that I could have had a response that wasn't just trying to say "I know how you feel".... but I honestly don't know how to deal with it either. It tears me up inside and the only reason I don't cry is because I will lose it if I do. Unfortunately this means that when little things happen that affect me badly, or someone hurts me or something, I will bawl my eyes out like nothing else and seem to completely overreact. It's because so much of my inner pain gets released.

Try to find a way to be creative too. That can help a bit. Distract yourself with all kinds of stuff, find new things to try on a computer. There's so much out there on the web. I recently started playing with photoshop and even though I'm not good at anything and have no skills or hobbies and have never been good at making things, I've enjoyed it and made at least a couple kind of cool things. In fact I get lost in them. I used to play video games a lot because it was like being on an adventure or something and was the only way for me to "do" things. I lost my ability to focus or concentrate on things at the beginning of this year though, gradually. It's hard to concentrate on anything really. I don't know what else to say, but hang in there. There has to be someone out there who can help you somewhere.... it's just so hard not to give up after years and years of going to doctors and having it be a waste of damn time and draining you emotionally, but we have to just keep trying. There has to be some sort of better way... some sort of relief. I am not an optimist, I'm a realist, but I admit that I just have to try and keep the hope that there is, because maybe, one day, just by a small possibility, there might be someone or something that can help.

Honestly, dogs aren't too great of an animal when you're in chronic pain and you can't move much. They're sweet and all, but they're exhausting and require too much from us. I've found that over time, my cats have been some of the best medicine I've ever had. Especially one in particular out of the two. She's extremely sweet and lays in my arms, cradled like a baby all the time. She acts cute and sweet almost all the time and it just makes you feel so good inside. The cuddling part is the best part too. I recommend a cat to ANYONE with chronic pain or illness. As long as you have someone around to do the litter box and feed them, they're so easy to care for and they don't need much from you otherwise. Just affection Smiling

I am not the only one

I am not the only one suffering form chronic overwhelming pain. I am suffering from chronic pain following accident more than ten years ago. I tried everything to get little relief from 24 hours 7 days a week of overwhelming pain. Then I was prescribed pain medications for however prolong use of pain medications developed further medical complications and almost became accidental addict.

I lost my job, career, friends, family and my home. From successful career women with bright future with well paid job I became depended on Centrelink payment. I was sick, in pain and homeless, I didn't want to live any more, out of desperation I attempted suicide by overdose. I was treated for depression/anxiety, not for pain.

I seen many doctors, specialist and admitted to hospitals. my label is/was depression/anxiety, I was/am being treated for depression and anxiety only, no one cared about root of the condition. Band aid solution was easy, prescribed anti-depression/ anxiety medications. In desperation I stopped taking medications in one day, as a result I went into coma, sudden withdrawal form prescription medications means Possible death, it was my final attempt to get any treatment.

Finally I wad diagnosed with chronic pain condition, needed multi- treatment and surgery. There is a hope possible treatment option, it may not work but I am willing to take the chance. Currently I have limited mobility, unable to walk, or climb the stairs, limited use of my arms, I am in so much pain I don't know what to do. Hospital waiting can take many years, I am not sure if can cope that long, I CANT LIVE LIKE THIS ANYMORE. I living in chronic overwhelming pain, without any support, isolated, lonely and living in poverty.

Hi There I was diagnosed with

Hi There

I was diagnosed with Fibromyalgia, a herniated disc in L5, one in my neck, and chronic fatigue syndrome 22 years ago. I do understand your anger and frustration regarding your pain, because everything you describe I have felt too.

I am a nurse therapist, and I teach cognitive-behavioral therapy to self-injurers as well as chronic pain patients. Those of us who have chronic pain have two choices: we either fight it (which is what you are doing) or we radically accept it (acceptance without agreeing with it). There are skills you can use to help you TOLERATE the pain - nothing will make it go away. I have taken every medication there is to take and like you, it made me sleepy and unable to function within my job setting. So, I took myself off the meds and found I couldn't stand it, I had to have something. Therefore, I finally found a combination that works for me. I take vicodin 10 mgs three times a day, Klonopin for sleep, and zanaflex for sleep. Restful sleep is so important! I imagine the pain is waking you up, so you are not getting enough healing sleep.

Skills - I teach focus on breathing, distraction, progressive muscle relaxation, imagery, etc. These skills can be found on the internet under Dialectical Behavior Therapy. In addition, one of the main things to "change" is how we view pain. Thoughts prompt emotion, which prompt behavior. For example, if my thoughts are negative, it prompts a negative emotion, and negative behavior (such as crying, punching walls, cursing, etc.). This exacerbates the pain rather than helps it.

I also take one day at a time. The pain never goes away, but I do have "good" days as well as "bad" days. I am working on my PhD in nursing while working full-time, so it can be done. Do not give up! It sounds like you have a wonderful support system! Another skill that helps circulate blood throughout the body, which promotes healing is walking. Try walking at least 15 minutes a day. You will notice a big difference! When you notice you are thinking negatively, turn your mind to positive thoughts. Positive thoughts really do help us to tolerate our pain much more effectively!

Thanks all for the kind words

Thanks all for the kind words and thoughts about your pain too. Reading it all gives me some hope and to know that I am not alone.

Tomorrow is going to be the hardest for me...I am going to be upfront and honest with my doctor and tell him....that I have not once but twice poured the whole bottle of oxy neo in my hand and I was going to swallow them because of my pain....but each time my loyal dogs came up to me and put their head on my lap....

I used to be able to walk all three dogs each and everyday, now I can not even walk half way around the block. I have been nauseous everyday and throwing up, not sure if it is from the concussion or the meds that I am taking.

I miss my job, and co-workers, I miss my life.

I am not able to go to a movie because I can`t sit that long. I can`t go visit friends, because after a short period of time I have to get up and walk around or I am so drugged up from the meds that everything is a fog to me.

I don`t drive, so I am asking friends or taking cabs to my treatments.

On most days my pain is unbearable....and I am just so angry that I should be seeing a therapist or something. Maybe will ask my doctor for a referal to see someone again....because of my thoughts of wanting to die and end this pain. No I don`t want to die, I just don`t want to be in pain, there is a difference..

In fact, before the accident, I totally loved my life, loved my husband and dogs, loved my job, had so much to live for....and now I don`t even see a happy ending to this story....

I don`t know why I am posting this, I am crying because I am so sick of living this way.
I know that my fellow friends and posters on this site will care and respond and today I am really needing this.

thank you all in advance
I hope to have a better day tomorrow when I totally be upfront and honest with my doc who is a great man and doctor.

thanks

My heart aches for what you

Sad My heart aches for what you are going through. I have been at the place where I had the pills in my hand and one time with a loaded gun in my hand. But.....by the grace of God I made it through those times and think I was cured when my love shot himself with a sawed off 4/10 shotgun. He had found out he had Hep C but actually was getting better and hadn't even started treatment for it. He fell off the wagon (he was a drinker) but that night I was on my way home to tell him that I would be by his side no matter what the future held and I wanted to tell him how very much I loved him. It has been many years but my heart still aches to be able to reach out and touch him. We had our problems but he was the love of my life. I know it is so hard for you but try to draw on the strength inside of you and from your family, loving four legged family and from your online family here. May the Grace of God touch you and ease your physical pain and the pain in your heart. In Jesus Name, Amen.
I sure don't understand why things have to hurt so much but there is a purpose bigger than just us. I was hit by a truck while on my bicycle coming into my driveway. I was off of the road. (October 16, 2010). My spirit left my body when I was hit. I went down the tunnel, saw my baby sister Kathy (passed 12/6/2005) and my mother passed (12/6/2001), the day after my boyfriends memorial service. Someone said that I could stay if I wanted to but that it was best if I went back because someone here was going to need me, So, here I am, pain and all but there are my loved ones here and I want to be here for whoever I came back for. There is healing and there is a purpose. Rena

You don't have to give up

You don't have to give up your friends and maybe there is something else that you are destined to do. Maybe a change of life is in order. Sometimes following the path we are being push toward is the best way to go even if we can't see it at the time. Think about this and talk to your HP and maybe you will get some of the answers you need. You will still have your family and friends and maybe something else that you haven't even dreamed of yet.

I'm so sorry you're in so

I'm so sorry you're in so much pain Sad If you're in this much excruciating pain then your pain control methods aren't being managed effectively.
Has a pain management clinic suggested intrathecal pump, pulsed radio-frequency or inducing like paresthesia, or is the pain throughout your entire body? :/ I hope you find the relief you need, hugs Stare

rena931945 wrote: May the

rena931945 wrote:

May the Grace of God touch you and ease your physical pain and the pain in your heart. In Jesus Name, Amen.

Amen.

Flashback wrote: Tomorrow is

Flashback wrote:

Tomorrow is going to be the hardest for me...I am going to be upfront and honest with my doctor and tell him....that I have not once but twice poured the whole bottle of oxy neo in my hand and I was going to swallow them because of my pain....but each time my loyal dogs came up to me and put their head on my lap....

If your doctor does not take you seriously, please, please, please go straight to the ER. I know your previous experience there wasn't ideal, but maybe the triage nurses will be better this time.

No matter what though, you need help. Nobody should have to live as you are right now.

As much as I was scared to

As much as I was scared to tell my doctor how I was feeling - I did - and as usual he was great. He took time, one whole hour to talk to me. I said I dont want to keep you and he said, you are here, and you need me, and I am here to help you...He is the best doc that you could ask for.

So he made one phone call and got me into see a pain specialist who specializes in motor vehicle accidents,
as well as mental health issues. My appointment is on Monday evening. I can hardly wait to see someone and start to feel better.

Talking to my doc for one hour was therapeutic, he always been there for me and have always taken all the time that I needed. He is a one of a kind doctor.

Feeling so much optimism and relief all at the same time

As much as I was scared to

As much as I was scared to tell my doctor how I was feeling - I did - and as usual he was great. He took time, one whole hour to talk to me. I said I dont want to keep you and he said, you are here, and you need me, and I am here to help you...He is the best doc that you could ask for.

So he made one phone call and got me into see a pain specialist who specializes in motor vehicle accidents,
as well as mental health issues. My appointment is on Monday evening. I can hardly wait to see someone and start to feel better.

Talking to my doc for one hour was therapeutic, he always been there for me and have always taken all the time that I needed. He is a one of a kind doctor.

Feeling so much optimism and relief all at the same time

this is not science.

this is not science. mind....whatever......sure you can make yourself feel better. with positive thought...but the fact is this...unless you have experienced serious chronic pain. you arer making a grave mistake thinking that your pain can be wished away.

I read your words and it is

I read your words and it is like I wrote them myself. I too am in such terrible agony each and every day, and the only thing that stopped me from throwing myself in front of a speeding logging truck was my dog. Thank goodness for our pets!. The only thing that works for me is morphine, slow release. I have been suffering since a car accident in 1983 and have tried everything and every medication. My family doctor dropped me when I told her I was in so much pain I was becoming suicidal! You are treated like an addict and a criminal when you take morphine. I desperately need an increase, but you cannot get anywhere without a family doctor, and try finding one that is taking new patients, and if they are, many are not willing to work with people that have "chronic" issues, or mental health concerns. What a joke! I wonder how many lives are lost each year to people being UNDER prescribed pain medication that just can't stand living with the pain anymore... Don't worry about work right now. You will always be able to find/create something you can do. First deal with your pain issues. There is HOPE. I found a doctor at a walk in that demonstrates genuine caring, and will see if she will work with me. Don't give up. You are to special and valuable, and have too much to offer to throw the gift that is you, away.
Peace, Love, Light, and HUUUGGSSS
Sandi

You do NOT deserve this. It

You do NOT deserve this. It isn't punishment, or Karma, or "what goes around comes around" What it IS - is UNFAIR. Bad stuff happens, to good people, It totally sucks. It is better to be angry, than sad, though.
DO NOT MIX ALCOHOL with your meds. I find morphine to be the most effective, with the least amount of negative side effects. It will get better, Stay strong.
Peace

I'm sorry, but not every

I'm sorry, but not every problem can be fixed. If you have to stop working then you will have to stop working. Maybe you can find another job you can do that won't bother you. Sometimes things heal but it just takes a lot of time. I have had that happen with my bad foot. Surgery on a neuroma left scar tissue that still hurts, but over a period of two years it has gotten a bit better.

Hello, I nearly stopped

Hello, I nearly stopped breathing when I read your story. As I was reading I could of used your words to tell what I am currently experiencing. A bit different in what happened but your day to day life has many similarities. I have been in two car accidents. The first was a few years ago where I fractured two discs in my neck and ended up having surgery and months of rehabilitation. After this my life was never the same although I managed to make the best of it. Then about a year and a half ago I was in another car accident. Neither of these car accidents was my fault but this time someone hit me doing 55mph. I know suffer from lower back pain and severe leg pain and it never leaves me.
I love my job, I too have been asked to go on disability at 100% but refuse. I would not survive not working. I live on oxycotin and oxycodone 24 hours a day seven days a week. In addition they have now put me on aderal to allow me to stay awake during the day. You see I only sleep in 2 to 3 hour increments because of the pain. This last month things started getting a bit worst with numbness in my pelvic region which is really scaring me. I cry almost every day and yes I a a male and have never cried in my life. I feel things spiraling out of control. I can not even do simple things with my family anymore because of the pain. I try but when I look at them I see through it all and see pity and it is eating me up. So don't feel alone because you are not. I don't know how things will end up with me but right now I am in a deep dark well and I pray a lot. But I am not sure anyone is listening. I hope someday things turn around for you. No one deserves this.

Hi there, I am so sorry to

Hi there,
I am so sorry to hear about the terrible pain you are having and the effect that is having on your life. I totally understand how you are feeling. I know how dark and pointless each day seems. I understand that HOPE for change is the only thing that keeps many of us going. It is the idea that this is all you have to look forward to that really takes you down. I am telling you IT WILL GET BETTER! You have to keep trying to access the pain relief you need. Advocating for yourself is so hard right now, when you don't have the emotional, physical, and in my case, financial resources to back you. You are lucky, though, to have family. Don't feel guilty about your condition. Your family is on your side, it isn't pity you see, it is empathy, love, and sorrow over your pain. If someone in your family were diagnosed with say, epilepsy, or diabetes or something, should they feel bad about it? About being a drag or inconvenience on you? No, right. Your condition is no different. Allow them to support you. Tell them how you are feeling, the guilt, the sensation of pity, all of it. Let them share your burden. You would expect no less, were the situation reversed, wouldn't you?

My situation actually got worse before it improved. I was recently taken to Emergency under the mental health act under police escort, because I had complained to our local Health Authority about my inability to find a family doctor and to continue living with this pain. I told them that I would kill myself in a month after I had gathered all the materials relating to how badly this health "care" system has failed me, and forward it to all the media and politicians, etc. I was released with a list of family doctors dated last March, none of whom have been taking new patients for months, and several suggestions, none of which worked out. I actually was worse off than before. BUT.....DON'T GIVE UP HOPE....... I finally found a doctor at a walk in clinic, whose first words to me were, "how are you managing with your pain? "how is the medication working for you?" The first genuine expression of concern in well over five years! I returned to this doctor the following month and she added 2mg Dilaudid to my current 300mg/day morphine. The difference is UNBELIEVABLE! I now have several hours a day of pain levels about 3/10, instead of my usual 7-8/10. The first three days, I must have slept 12 hours a day! My energy was low for a while, face it - dealing with this pain is completely exhausting, physically and emotionally. It has been two weeks now. My depression has lifted, I feel well rested, and actually look forward to the arrival of the next day because I know I can do more than just the bare minimum. Best of all, my baseline pain levels have dropped to about 6/10, as the morphine doesn't have to do all the work. The downward spiral has been interrupted and hope has been restored! Look, I don't know if you live in Canada, or the United States. I'm Canadian, so, the suggestions I am about to give you may not work in the U.S. But, generally to see a pain specialist you need a referral from your family doctor. Have you tried this? Will your current doctor work with you to reduce pain? What is their philosophy around narcotics - are they off the table as an option? (My doctor dropped me, so uncomfortable working with me - refuse to consider any option but cortisone injections, wouldn't even refer me to a specialist that deals in anything else - the bitch - oops) ....anyway, fill me in on your details, like what you have tried for therapy and medications. accessing services other than your doctor, etc. Maybe some of what I've been through can help you avoid my mistakes, and get the help you need. My email add is

. Just so you know, I have a degree in psychology, am a counselor by nature and trade, and am deeply struck by your situation. If talking to me helps at all, I am here for you. Reaching out to others is important for you right now, as self isolation is a natural response to being in the pain you are in. I want to give you practical helpful steps to try to improve your physical condition, and be here for you emotionally as well. I know that would have helped me so much when I was in my darkest state.

It is okay to cry... even good to cry. Try not to be too hard on yourself. No one else is judging you as harshly as you are judging yourself. Give yourself permission to feel bad. It is a reasonable response to your situation. Please get back to me, if you want. Know you are not alone. Know tha it can get better. Know that there is always one more avenue to try - you know, the whole "door closing, window opening" thing. I will keep you iin my thoughts and prayers.
Light, love, peace, and a warn gentle hug,

Hey there, I completely

Hey there,
I completely understand and have been where you are, physically and emotionally. do NOT GIVE up HOPE. I finally found a doctor at a walk in clinic that has made a difference. Literally, the difference between life and death, and it came in the form of 2mg of dilaudid.
There are tooo many f us suffering needlessly - paying the price for societies current swing of the pendulum having restricted access to an extreme levels of the medication that is available to help. It is completely UNFAIR. None of us deserve to be suffering in horrible pain. In fact, it goes against the Canadian doctors code of ethical conduct in several ways. Chronic acute pain actually causes brain damage, resulting in many of the symptoms described by all of us. The good news is that the damage is reversible, with effective pain relief. A study in the Journal of the American Medical Association, March 11, 2010 (I think, will have to double check) describes this. My heart aches to read these accounts. Something must be done, and I am complaining to all the agencies/authorities that I can. You all stay strong, you are not alone,
Peace, light and Love

Dtechnet wrote: ...right now

Dtechnet wrote:

...right now I am in a deep dark well and I pray a lot. But I am not sure anyone is listening. I hope someday things turn around for you. No one deserves this.

God is listening, I'm sure. I'm listening, and all I can do is pray, and I will pray for you and others on this thread, and I hope that others will too.

Serendipity2 wrote: My

Serendipity2 wrote:

My situation actually got worse before it improved. I was recently taken to Emergency under the mental health act under police escort, because I had complained to our local Health Authority about my inability to find a family doctor and to continue living with this pain. I told them that I would kill myself in a month after I had gathered all the materials relating to how badly this health "care" system has failed me, and forward it to all the media and politicians, etc. I was released with a list of family doctors dated last March, none of whom have been taking new patients for months, and several suggestions, none of which worked out. I actually was worse off than before. BUT.....DON'T GIVE UP HOPE....... I finally found a doctor at a walk in clinic, whose first words to me were, "how are you managing with your pain? "how is the medication working for you?" The first genuine expression of concern in well over five years! I returned to this doctor the following month and she added 2mg Dilaudid to my current 300mg/day morphine. The difference is UNBELIEVABLE! I now have several hours a day of pain levels about 3/10, instead of my usual 7-8/10. The first three days, I must have slept 12 hours a day! My energy was low for a while, face it - dealing with this pain is completely exhausting, physically and emotionally. It has been two weeks now. My depression has lifted, I feel well rested, and actually look forward to the arrival of the next day because I know I can do more than just the bare minimum. Best of all, my baseline pain levels have dropped to about 6/10, as the morphine doesn't have to do all the work. The downward spiral has been interrupted and hope has been restored! Look, I don't know if you live in Canada, or the United States. I'm Canadian, so, the suggestions I am about to give you may not work in the U.S. But, generally to see a pain specialist you need a referral from your family doctor. Have you tried this? Will your current doctor work with you to reduce pain? What is their philosophy around narcotics - are they off the table as an option? (My doctor dropped me, so uncomfortable working with me - refuse to consider any option but cortisone injections, wouldn't even refer me to a specialist that deals in anything else - the bitch - oops) ....anyway, fill me in on your details, like what you have tried for therapy and medications. accessing services other than your doctor, etc. Maybe some of what I've been through can help you avoid my mistakes, and get the help you need. My email add is

. Just so you know, I have a degree in psychology, am a counselor by nature and trade, and am deeply struck by your situation. If talking to me helps at all, I am here for you. Reaching out to others is important for you right now, as self isolation is a natural response to being in the pain you are in. I want to give you practical helpful steps to try to improve your physical condition, and be here for you emotionally as well. I know that would have helped me so much when I was in my darkest state.

A lot of what you said really resonates with me Serendipity.

I have to wonder how one communicates effectively to a doctor the severity of pain and the desperation one is feeling without telling them you are planning suicide. I am glad you made the decision to tell someone, but that is not something I would have ever done.

I also wrote letters to our local newspaper and to my doctors ready to mail at the right time.

You seem to have a wonderful attitude, and I am so glad you told your story.

Had I read it last year I might have considered telling my doctor my intentions, and maybe he would have taken the severity of my pain seriously.

You are right it ALWAYS gets better, so I hope those in pain will listen to your words of wisdom, hang in there and never give up.

gagal wrote: I have to

gagal wrote:

I have to wonder how one communicates effectively to a doctor the severity of pain and the desperation one is feeling without telling them you are planning suicide.

In a manner which emphasizes what works and how well.

If some prescribed therapy you recently began takes your pain from a nine to a six, rather than saying you're still in two-thirds the pain, express the decrease in pain you experienced, no matter how minimal. Physicians need to know if their efforts are helping in some way. Chances are the intensity of your therapy will be worked up, accordingly.

If your pain level is making it difficult to avoid thinking of suicide, make sure your physician understands that you have coping mechanisms, however bare they may be, and that you need further relief. Tell him or her that you are experiencing "suicidal levels" of pain, not "thoughts of suicide". If their therapy has helped, but just not enough, you should be able to explore furthering the intensity of your treatment. Sometimes, it's just a matter of titrating the dose or exploring the further use of adjunct therapies.

Hello Chronic Pain Friends !

Hello Chronic Pain Friends !
I too suffer Chronic Pain from Numerous problems. I have to agree with Sandi that Doctors are far too reluctant to give out Pain Meds. At least they are here in Pennsylvania. I have been on many diferent meds over the years and found that the time release Morphine Sulphate worked the best for me. My doctor also gave me 2 additional short acting 15mg Roxicodone to pick up through the day as the Morphine is wearing off. The Morphine didn't make me as groggy as the Oxy's did.
I also had many guinea pig experiments done on me in a Pain Clinic. Besides the Steroid shots, which have made me gain 40 pounds compounding my pain. They performed something on my so called Rhyzotomy ! Not sure of the spelling of that one. I had 2 performed and actually gained a good deal of relief for about 6 months. To those of you that have never heard of a Ryzotomy. It's an Injection into the side of the spinal cord where they Burn off the Nerves. The only problem with that now is that my left hip is Permanently Numb.
And on top of all that I NOW .. find myself Without a Family Doctor. He recently had a stroke and had to retire. I had been going to him for approx. 15yrs. NOW, I find myself out in the cold. Literally ! As you ALL know .. weather is a Big Factor and here it happens to be Snow & Cold. Next it will be Rainy & Wet. I just can't get a break. I've tried to find a new family doctor but all he was willing to give me was Loricet (glorified Aspirin) and I was limited to 5 months at that. Now, I'm searching for another one.
I've wondered "WHY" it's so hard to get "ANY" doctors to write Pain Killers and come to find that a Bunch of young kids in their early 20's are abusing them OR selling them.
For the life of me I just can't figure out what kind of doctors have been giving 100's of Oxycontin, etc to 20 yr olds. They seemed to have thrown a wrench in the wheels for those of us Truly Needing now. Here in the States they even have a term coming from Florida to the North East where I am. It's called the "Oxycontin Express" and has been splashed all over the news for the last year or so. So needless to say Pharmacists & Doctors are ALL very Skeptical about writing "ANY" Narcotics for Anybody.

So the conclusion for the Rest of us in Real Pain .. is Deal With It ! "DEAL WITH IT" ??? How about "THEY" Deal With It? I can Only think that one day they too will be gritting their teeth in Pain. RELENTLESS Pain! I can Only walk a block or two and it feels like my back is breaking right across the middle. Then, I'm stuck somewhere in tears and unable to make it back home. Besides that I have Fibromyalgia, herniated Discs, Degenerative Disc Disease, Arthrytis from Prior Injuries and on and on. I HAD to go on Disability a few years back because the work I did was NOT an Option. I use to be an Archaeologist! That entailed carrying Heavy Equiptment, Hiking for Miles, Climbing Moutainous Terrain, etc. It's NOT Anything like Indiana Jones just in case any of you think that! I can't even sit at my pc very long because my Sciatica is getting to me now. I really Try to Laugh Alot, laughing does help somewhat, but, that's Only for the Mental aspect of it. I have 2 Wonderful Dogs & 4 Beautiful Cats and they "ARE" My Family. Fortunately, though, my savior has been my sister n law. I just don't know what I'd do without her. "NOW" they tell us that Obamacare is going to Kick In and that has me really Scared. It's Bad enough trying to find a Good Doctor NOW ... let alone when the Govt. gets their hands in it with their 15 person revue board as to What you Can Have, What you Can't and then WHO will Take You & WHO Won't. What the future holds for me I can't say.
The Only advice I can give to the rest of you who "ARE" able to get the Proper Medications for Chronic Pain. Is to Laugh More, Love More & Yes, Pray More !
We're "ALL" here for a reason and IF we have to live our lives in Pain, we have to adjust some things in our lives. Whether that means going on disability, limiting your exercise or just finding the most comfortable position in bed then That's What We Must Do. I'm by No means a Bible Thumper, but, I Do know that suicide is "NOT" the answer. Just take a look at all of the little children with terminal cancer that haven't even Lived yet! They have NO Hope ... WE DO !

Hello CC You are so right -

Hello CC
You are so right - suicide is NOT the answer. Although sometimes, it may SEEM like the only option to living in mind bending pain. Thanks - You helped me through a rough patch over Christmas. Like you, I am not a "bible thumper", and agree that we are all here for a reason. We may affect change that we are unaware of, positively impacting others. I also suffer from herniated discs, degenerative disc disease, and arthritis, and was very athletic in my former life. It is so hard accepting the physical limitations the pain imposes, when so much of who you are is wrapped up in that physicality. I too have a family of pets, two cats (until a recent move, 5) and my little dog. All you can do, is the best you can do.

Sounds like it is as hard to get a doctor in the U.S. as it is in Canada. Keep going to walk in clinics, if you can, until you find a sympathetic doctor. Ask other people you know with similar conditions who are getting the right meds, who their doctor is. See if you can get on a waiting list if you do find a good doc. Some doctors will take on relatives of current patients. Do you have a friend willing to call you spouse? Is there a quality control office advocating for patient care? Could you contact your previous doctor's office and ask for a referral that would be appropriate? Can you bring a friend or relative to an appointment to verify your described pain, the impact it is having on your life and relationships?

The next ideas aren't suggestions as much as desperation, but, I have resorted to all of these at one time or another. - Do you know anyone that had recent surgery? Often they will be sent home with narcotics and/or prescriptions they don't need. Can you take 10% less of your meds a day for a few days? Then you will have "extra" meds to give yourself a pain "holiday" one or two days a month. If you really are desperate, you can open your time release, and crush one (not your full dosage) with a spoon until powder, and take it on a spoon of honey with a cup of hot tea and you will feel more immediate relief. Do NOT take with alcohol and do NOT mix meds! The danger with our narcotics is how it slows respiration. I have low blood pressure anyway and am super concerned about the effects of too much medication, or mixing with other things to intensify the effects.

My final thought is so obvious to me, I didn't think to mention it - smoke/eat/etc large quantities of THC (Medical marijuana is legal in BC! Eating is the best way to provide deeper physical relief and relaxation and lasts hours. It improves your appetite and mood and ability to laugh. Helps for sleeping. Acts as an antidepressant and also acts to improve the effectiveness of your morphine! Well worth pursuing this avenue if you haven't already! You can use a vaporizer to inhale the steam, likely the most efficient way to get the most out of it, and saves your lungs, too.
I hope you don't mind all these specific ideas, many of which you have probably tried. I just relate soo strongly to the depths of your pain, and I despise the unfairness of needless suffering when effective treatment is available, cheap, relatively safe and side effect free, etc. I will keep you in my thoughts, and my version of prayers. I am sending you the strongest, gentlest, beam of pure warming light, full of the energy of love - a mental "hug", I suppose. Just close your eyes for a second, and feel it streaming down and filling you up. Stay strong...
Peace,
Sandi (Serendipity)

Isolated, lonely and living

Isolated, lonely and living in poverty - all describe my life too. I understand feeling like this life isn't worth living if all you have to look forward to is years of unending, agony. Don't Give Up! You have the strength to deal with this. You have hope - a treatment option. I know it is hard, feeling isolated. Can you reach out via social media? I had lost contact with all my friends, realized that I can't manage this alone, and made an attempt to reconnect. Last week, my old friend came and take me out for lunch! To most people that doesn't sound like much, but it was a huge deal, mentally and emotionally. You may be surprised who steps up to help out. My thoughts are prayers are with you,
Peace, love and light,
Sandi

MicOnTheNorthShore

MicOnTheNorthShore wrote:
gagal wrote:

I have to wonder how one communicates effectively to a doctor the severity of pain and the desperation one is feeling without telling them you are planning suicide.

In a manner which emphasizes what works and how well.

If some prescribed therapy you recently began takes your pain from a nine to a six, rather than saying you're still in two-thirds the pain, express the decrease in pain you experienced, no matter how minimal. Physicians need to know if their efforts are helping in some way. Chances are the intensity of your therapy will be worked up, accordingly.

If your pain level is making it difficult to avoid thinking of suicide, make sure your physician understands that you have coping mechanisms, however bare they may be, and that you need further relief. Tell him or her that you are experiencing "suicidal levels" of pain, not "thoughts of suicide". If their therapy has helped, but just not enough, you should be able to explore furthering the intensity of your treatment. Sometimes, it's just a matter of titrating the dose or exploring the further use of adjunct therapies.

Thanks, Mic, but there was no magic pill which was going to alleviate my pain. I can’t seem to get that through anyone’s head. You make it sound as if I were treated properly with pain medication then I would have found relief; I just don’t believe that to be the case in my particular situation. There was NO relief! I love my life and at no point wanted to die. I just wanted the pain to stop. It sounds like many people here have other issues in addition to pain.

I completely disagree with the suggestion of using another person’s pain medication, or eating/smoking large quantities of marijuana.

gagal

gagal wrote:
MicOnTheNorthShore wrote:
gagal wrote:

I have to wonder how one communicates effectively to a doctor the severity of pain and the desperation one is feeling without telling them you are planning suicide.

In a manner which emphasizes what works and how well.

If some prescribed therapy you recently began takes your pain from a nine to a six, rather than saying you're still in two-thirds the pain, express the decrease in pain you experienced, no matter how minimal. Physicians need to know if their efforts are helping in some way. Chances are the intensity of your therapy will be worked up, accordingly.

If your pain level is making it difficult to avoid thinking of suicide, make sure your physician understands that you have coping mechanisms, however bare they may be, and that you need further relief. Tell him or her that you are experiencing "suicidal levels" of pain, not "thoughts of suicide". If their therapy has helped, but just not enough, you should be able to explore furthering the intensity of your treatment. Sometimes, it's just a matter of titrating the dose or exploring the further use of adjunct therapies.

Thanks, Mic, but there was no magic pill which was going to alleviate my pain. I can’t seem to get that through anyone’s head. You make it sound as if I were treated properly with pain medication then I would have found relief; I just don’t believe that to be the case in my particular situation. There was NO relief! I love my life and at no point wanted to die. I just wanted the pain to stop. It sounds like many people here have other issues in addition to pain.

I completely disagree with the suggestion of using another person’s pain medication, or eating/smoking large quantities of marijuana.

I was commenting on communicating with one's physician regarding pain levels and treatment experience.

At no time did I, nor would I, suggest using someone else's pain medication or using marijuana.

MicOnTheNorthShore

MicOnTheNorthShore wrote:
gagal wrote:
MicOnTheNorthShore wrote:
gagal wrote:

I have to wonder how one communicates effectively to a doctor the severity of pain and the desperation one is feeling without telling them you are planning suicide.

In a manner which emphasizes what works and how well.

If some prescribed therapy you recently began takes your pain from a nine to a six, rather than saying you're still in two-thirds the pain, express the decrease in pain you experienced, no matter how minimal. Physicians need to know if their efforts are helping in some way. Chances are the intensity of your therapy will be worked up, accordingly.

If your pain level is making it difficult to avoid thinking of suicide, make sure your physician understands that you have coping mechanisms, however bare they may be, and that you need further relief. Tell him or her that you are experiencing "suicidal levels" of pain, not "thoughts of suicide". If their therapy has helped, but just not enough, you should be able to explore furthering the intensity of your treatment. Sometimes, it's just a matter of titrating the dose or exploring the further use of adjunct therapies.

Thanks, Mic, but there was no magic pill which was going to alleviate my pain. I can’t seem to get that through anyone’s head. You make it sound as if I were treated properly with pain medication then I would have found relief; I just don’t believe that to be the case in my particular situation. There was NO relief! I love my life and at no point wanted to die. I just wanted the pain to stop. It sounds like many people here have other issues in addition to pain.

I completely disagree with the suggestion of using another person’s pain medication, or eating/smoking large quantities of marijuana.

I was commenting on communicating with one's physician regarding pain levels and treatment experience.

At no time did I, nor would I, suggest using someone else's pain medication or using marijuana.

I didn't mean to imply that you did; although, the way I quoted does make it come across that way. I was referring to Serendipity's suggestion.

gagal

gagal wrote:
MicOnTheNorthShore wrote:
gagal wrote:

I have to wonder how one communicates effectively to a doctor the severity of pain and the desperation one is feeling without telling them you are planning suicide.

In a manner which emphasizes what works and how well.

If some prescribed therapy you recently began takes your pain from a nine to a six, rather than saying you're still in two-thirds the pain, express the decrease in pain you experienced, no matter how minimal. Physicians need to know if their efforts are helping in some way. Chances are the intensity of your therapy will be worked up, accordingly.

If your pain level is making it difficult to avoid thinking of suicide, make sure your physician understands that you have coping mechanisms, however bare they may be, and that you need further relief. Tell him or her that you are experiencing "suicidal levels" of pain, not "thoughts of suicide". If their therapy has helped, but just not enough, you should be able to explore furthering the intensity of your treatment. Sometimes, it's just a matter of titrating the dose or exploring the further use of adjunct therapies.

Thanks, Mic, but there was no magic pill which was going to alleviate my pain. I can’t seem to get that through anyone’s head.

You got it through my head. I'm having absolutely no trouble believing you what-so-ever.

Katherine wrote: gagal

Katherine wrote:
gagal wrote:
MicOnTheNorthShore wrote:
gagal wrote:

I have to wonder how one communicates effectively to a doctor the severity of pain and the desperation one is feeling without telling them you are planning suicide.

In a manner which emphasizes what works and how well.

If some prescribed therapy you recently began takes your pain from a nine to a six, rather than saying you're still in two-thirds the pain, express the decrease in pain you experienced, no matter how minimal. Physicians need to know if their efforts are helping in some way. Chances are the intensity of your therapy will be worked up, accordingly.

If your pain level is making it difficult to avoid thinking of suicide, make sure your physician understands that you have coping mechanisms, however bare they may be, and that you need further relief. Tell him or her that you are experiencing "suicidal levels" of pain, not "thoughts of suicide". If their therapy has helped, but just not enough, you should be able to explore furthering the intensity of your treatment. Sometimes, it's just a matter of titrating the dose or exploring the further use of adjunct therapies.

Thanks, Mic, but there was no magic pill which was going to alleviate my pain. I can’t seem to get that through anyone’s head.

You got it through my head. I'm having absolutely no trouble believing you what-so-ever.

That's an interesting comment coming from someone whose back I had a great deal of the time.

My APOLOGIES, sincerely, I

My APOLOGIES, sincerely,
I completely AGREE with those of you saying it is a TERRIBLE suggestion to use other people's medication I did not mean for it to be taken as a general way of coping, It was intended as a last resort for someone that simply cannot STAND another day of extreme pain. Better options are to go to emergency, or contact a crisis line, or whatever other official resources you can access. Again, I am sincerely sorry that what I said came across so casually, and as a suggestion or recommendation. I have just been in a very deep dark pit of pain, and have done what I needed to out of sheer desperation to find some relief. I was truly coming from a place of compassion for anyone in the same place.
I appreciate the suggestions on how to communicate with the doctor, and have generally follow those guidelines. Especially helpful though was describing pain as being "at suicidal levels" as opposed to being suicidal over the pain. I have been keeping a daily graph of pain and activity and medication, etc, clearly demonstrating the positive effects of my new treatment. With my previous family doctor, your suggestions for communication went no where. However, this new doctor seems like someone who will be receptive to dosage adjustments and additional treatments. Frustrating how there doesn't seem to be a standard approach among physicians in treating acute chronic pain. It seems completely arbitrary.
Again, I apologize for my ill thought out comment about asking others if they have any extra medication. Although I still stand by the pot suggestion, assuming it is okay with your doctor, and your local laws, as it is in my case.
I really value all of you here. I appreciate your honesty. Thanks for being so thoughtful, caring and genuine. I truly get the sense that we all just want to support each other.
Peace,
Sandi

Serendipity2 wrote: I

Serendipity2 wrote:

I appreciate the suggestions on how to communicate with the doctor, and have generally follow those guidelines. Especially helpful though was describing pain as being "at suicidal levels" as opposed to being suicidal over the pain...

Frustrating how there doesn't seem to be a standard approach among physicians in treating acute chronic pain. It seems completely arbitrary.

... I still stand by the pot suggestion, assuming it is okay with your doctor, and your local laws, as it is in my case...

Sandi

Sandi,

The practice of medicine is the art of delivery and employment of science, and good medical practice relies on clinical experience. I'm not sure what you mean by a standard approach, but when you think about it, the other specialties are not really different. I think what matters is that the physician's approach meets the patient's needs.

Medical marijuana is an interesting topic to which there has been much debate, including within the forums here. To date, there have been no studies supporting marijuana as a significant mediator of pain which have been statistically valid or reproducible. Having said that, I don't mean to imply that marijuana in the whole should be excluded as a potential treatment for chronic pain.

In recent decades, the level of THC has been increasing greatly, while the level of another studied cannabinoid, CBD, has been decreasing. CBD reduces the antipsychotic effects of THC. It appears also that CBD relieves convulsion, inflammation, anxiety, and nausea. Researchers at California Pacific Medical Center discovered CBD's ability to "turn off" the activity of the gene responsible for metastasis in breast and other types of cancers, including in the particularly aggressive triple negative breast cancer. See Project CBD at http://projectcbd.org.

I saw something in the broadcast news about the French having begun trials of high CBD, low THC concentrated medical marijuana. I can't find anything related to this, however. It may be that the anecdotal reports of medical benefit from marijuana involved strains of high CBD marijuana.

My pain management physician routinely asks all her patients whether they use marijuana for their pain, asking them to cease using it if that's the case. She's not anti-marijuana, but simply approaching it as a psychoactive substance which may interfere with her pharmacotherapy.

Something else you can discuss with your pain doc, not to mention any other specialist who is treating a patient for a chronic illness, is what they expect of you, the patient. I appreciate that you've probably already been there, done that, and have a good idea of what they like to see in terms of self-evaluating your pain, diaries, dietary changes, etc., but every doc has an individual, or as you wrote, non-standard, approach.

Mic

gagal wrote: Katherine

gagal wrote:
Katherine wrote:
gagal wrote:
MicOnTheNorthShore wrote:
gagal wrote:

I have to wonder how one communicates effectively to a doctor the severity of pain and the desperation one is feeling without telling them you are planning suicide.

In a manner which emphasizes what works and how well.

If some prescribed therapy you recently began takes your pain from a nine to a six, rather than saying you're still in two-thirds the pain, express the decrease in pain you experienced, no matter how minimal. Physicians need to know if their efforts are helping in some way. Chances are the intensity of your therapy will be worked up, accordingly.

If your pain level is making it difficult to avoid thinking of suicide, make sure your physician understands that you have coping mechanisms, however bare they may be, and that you need further relief. Tell him or her that you are experiencing "suicidal levels" of pain, not "thoughts of suicide". If their therapy has helped, but just not enough, you should be able to explore furthering the intensity of your treatment. Sometimes, it's just a matter of titrating the dose or exploring the further use of adjunct therapies.

Thanks, Mic, but there was no magic pill which was going to alleviate my pain. I can’t seem to get that through anyone’s head.

You got it through my head. I'm having absolutely no trouble believing you what-so-ever.

That's an interesting comment coming from someone whose back I had a great deal of the time.

Actually I was being sincere. I don't know if you recall, but a while back I thanked you for sharing you experience with sciatia because it prevented me from wrecking my own back at work. I was being sincere then as well.

Hello Mic Thanks for your

Hello Mic
Thanks for your very concise and well thought out responses. I very much appreciate your reasoned approach.

I recently saw a story on CNN examining the use of medical marijuana in Israel. Apparently, after some 20 years of govt sponsored research, they have developed a strain of pot that has virtually no THC and more of the chemical that does alleviate pain, etc. They have even begun prescribing it for some children with specific conditions.

Part of my desire for a "standard" approach stems from frustration that in the past ten years or so, I have not had the good fortune of having a situation where the "physician's approach meets the patient's needs." I feel that I now have made this important connection, and can see where the suggestions and observations you have made will result in improved relationship and communication. I will see the doc in the second week of January, and am excited to show her the graphs demonstrating the marked improvement in pain and activity levels and the resulting improvement in my mental/emotional state.

I just encourage my fellow pain sufferers not to give up seeking more effective treatment. Maybe there is no "magic pill" that works for everyone, but who knows what great medical breakthrough lies around the corner, or perhaps what suggestion you might not have yet explored. Keep the hope.
Peace,
Sandi

Serendipity2 wrote: I

Serendipity2 wrote:

I recently saw a story on CNN examining the use of medical marijuana in Israel. Apparently, after some 20 years of govt sponsored research, they have developed a strain of pot that has virtually no THC and more of the chemical that does alleviate pain, etc. They have even begun prescribing it for some children with specific conditions.

Part of my desire for a "standard" approach stems from frustration that in the past ten years or so, I have not had the good fortune of having a situation where the "physician's approach meets the patient's needs."

I just encourage my fellow pain sufferers not to give up seeking more effective treatment.

I may have confused France with Israel. When I saw the news segment a few months ago, I barely caught the name of the country. It may have been the same CNN segment (a few months ago?). What I viewed from that point may have in fact been coverage of the Isreali research programs. It did make mention of something like 22,000 patients having been granted licenses to use medical marijuana and showed containers of marijuana having varying degrees of concentration of CBD.

In thinking of a standardized approach in the management of chronic pain, I think we need to look at whether we are striving to treat the underlying cause or are we simply managing the pain itself. Is the pain of neuropathic or somatic origin, or is it idiopathic (having no identifiable causation)? Sometimes, when the cause of pain cannot be identified, it is true "chronic pain syndrome".

If chronic pain were a disease, I think it might be possible to develop a standardized approach in determining its idiopathy and subsequently, treatment. However, pain is a symptom, not a causation. Its source can be virtually any number of causations, right down to psychiatric, e.g., true chronic pain syndrome. That, in itself, would dictate that a standardized approach (if I'm reading you correctly), that a pain management physisican be of an almost unlimited number of sub-specialties.

If one is focused on pain management itself, that could lend itself possible to a set of protocols, but any therapy would have to be considered in light of treatment of any underlying cause. That complicates issues immensely.

Treatment modalities are still in their infancy, and not all practitioners agree with one another. For example, many pain docs deny clinical knowledge of success in treating fibromyalgia pain with opioid analgesics. Others, however, have tried very large dose therapy in treating fibromyalgia, reporting success. I think the evidence is still anecdotal in nature, without the benefit of controlled studies, not yet lending itself to adopted practice.

I think medical science has learned a great deal about pain, but has much, much more to discover. Without a greater understanding, I don't know that it's possible to develop standardized approached, though I'm sure that some protocols (such as the analgesic ladder) have, and are being developed. Personally, I don't mind. I'd rather have a little clinical experimentation and see the possibility of new approaches being taken than to be restricted to some set of closed regimens in the treatment of my pain. Then again, my pain doc is also a university research scientist and conducts trials on occasion. She's open to various ideas, as long as there exists some valid basis to the treatment.

In looking for a pain doc, I'd suggest to anyone who has the luxury, of seeking one who is connected to a medical school or who periodically conducts trials or is otherwise involved in research. That suggests to me that they may be more open to ideas and have a few new ones of their own, outside of the box of prescribed practice.

It's a new frontier.

Personally I would rather

Personally I would rather research money go towards finding the underlying cause of pain and better treatments/surgeries.

I have to wonder how long some of you expect to be on pain medication and how long are doctors willing to prescribe it....a life time?

I would be terrified if I had to depend on a doctor for medication in order to function knowing very well at any time he/she could take that away.

I realize most chronic pain patients take one day at a time, but it would be a major concern for me.

gagal wrote: Personally I

gagal wrote:

Personally I would rather research money go towards finding the underlying cause of pain and better treatments/surgeries.

I have to wonder how long some of you expect to be on pain medication and how long are doctors willing to prescribe it....a life time?

I would be terrified if I had to depend on a doctor for medication in order to function knowing very well at any time he/she could take that away.

I realize most chronic pain patients take one day at a time, but it would be a major concern for me.

I don't understand your comment, "... I would rather research money go towards finding the underlying cause of pain and better treatments/surgeries." It's going there, now. It's called, among other things, cancer research, multiple schleroris research, virology, neurology ... Chronic somatic pain is simply a symptom of these. There are many non-narcotic, non-analgesic pain relievers available to practitioners, and more being developed every year. Meanwhile, centres such as McGill Medical and Beth Israel conduct vast research into treating pain and better understanding its mechanism (see (see http://www.stoppain.org and http://www.healingchronicpain.org).

Short of a surgical solution, my pain is "forever".

Everytime I think of the possibility of some natural disaster or major civil unrest occurring, my first thought is not shelter and food, but running out of pain meds, and yes, it can be terrifying.

Hello again, Well, I never

Hello again,
Well, I never did think to mention it, and it is obviously extremely important when considering the use of opioides, is the fact that I have been told by several doctors that there is no treatment for the underlying cause of my pain. I will be dependent on pain medication (or treatment) for the rest of my life, with no hope ever, of a cure, and the promise of increasing levels of pain and resulting debilitation. I have already had surgery (1990), and the scar tissue, arthritis, and degenerative disc disease is inoperable. This dependency makes concerns of addiction moot. (My doctor would say, "if I increase your prescription now, what will you do in five years, when your tolerance is too high?")

I have been addressing everyone here as though they are in the same position - oops. I suppose it would be easier to come up with a standardized approach for this more narrow focus group, although I can see where the problems would lie, as you have described them.

I did look for a doctor that was involved in research or a medical school, but was not able to access any. It is a good idea, as my primary complaint with my former doctors has been their lack of current knowledge in the pain field. (That and the fact that I'm quite certain she has sadistic tendencies) Oh yes, and overworked, etc, As far as standardized approach, i guess I was just hoping for better communication. Had I known earlier my doctors bias against anything narcotic, I would have started looking for a change years earlier, saving myself much frustration and pain. All standards that do exist, in the form of official "guidelines" supported my repeated requests for increased and/or alternative medications, resulting in my frustration over her deep reluctance to even discuss my treatment.
Thanks again for your support. I always feel more knowledgeable,
Peace,
Sandi

Sandi, I've been reading

Sandi,
I've been reading your posts withs such great interest. I'm in a very similar position as you and probably could benefit from your experience. I've been sufferring from chronic pain for almost 15 years now. And I could swear the doctor I currently see is the the same doctor you used to see with the narcotic bias. She actually told me that my pain will get better if I take LESS medication yet since she started decreasing my pain meds (she just decided to without my knowledge) 3 years ago, my pain has INCREASED! I've gone from being able to get out of the house 2-3 times a week to not even being able to get out of bed! How can anyone really live like this? What a waste of a life. And yes, I too, once had a job that I loved. And I carry the guilt of not being able to raise my children like a real mother should (thank God for a wonderful husband) since my children could never count on me being well enough on any given day to take them to activities or attend events. When I read how some people with their pain stay sane by working, I only wish I could. I've had so many days where my pain is so severe that is my house was on fire, I would not be able to get myself out. Yet my doctor says there is nothing else she can do!

I'm waiting for the day when the medical community will treat chronic pain patients with the respect and dignity that they give cancer patients.

I'm curious, where in Canada do you live? I too am Canadian and would be grateful for any help on finding a better doctor. My current doctor is a McMaster graduate and the Mac Med school seem to write the gold standard or what you referred to as "official guidelines", you can find here at http://nationalpaincentre.mcmaster.ca/opioid/ . It's exactly what you talked about. I remember questioning my doctor ONCE, and her response was, "well, why don't we stop all the narcotic meds then". What? For one thing, its not even safe to that cold turkey. But whenever, I wasn't happy with the way she was doing things, I had to keep it to myself out of fear that she will cut off my only life line. Who lives like that??

Thanks for your shared support and understanding. When your at home alone, it often feels so lonely. Friends and family just can't believe that the doctors don't do anything or that I don't get any better (as a matter of fact, now I'm much worse). This is the first time I felt someone really understood what I was going through.

Take Care

aeroport wrote: She actually

aeroport wrote:

She actually told me that my pain will get better if I take LESS medication yet since she started decreasing my pain meds (she just decided to without my knowledge) 3 years ago, my pain has INCREASED!

I'm waiting for the day when the medical community will treat chronic pain patients with the respect and dignity that they give cancer patients.

In some circumstances, and I don't think they are many, removing analgesia can result in a temporary reduction in pain perception. Terminating opioid therapy is not something I would recommend in the absence of an alternate plan thought to have a good chance of bringing significant benefit. I've gone through withdrawal twice, the second time being cold turkey without medical assistance. Once one gets past the shaking and sweats, and peristalsis (instestinal action) is no longer inhibited by the opioid, the patient experiences a very pronounced rebound effect. I couldn't leave home for ten weeks.

Myths surrounding the medical use of opioid analgesics continue to be harboured by both physicians and patients alike. The likiihood of addiction (psychological dependence) is low. Studies were conducted in the northeastern US between 1996 and 1998, including study participants' medical histories for 1993 through 1995, giving six years of data. The studies were conducted at thirteen hospital pain clinics, comprising some 23,000 patients. It was found that the incidence of addiction where long term continuous dose opioid therapy had been appropriately prescribed and administered by patients as prescribed was less than 0.75% with the patients at twelve of those clinics, and something like 0.85% with the one. I don't know what set those few patients apart from the remainder.

As for dosing, barring case-specific contraindications, the correct dose for opioids is 'whatever it takes'. There is no established ceiling. It's simply good pracice to employ the lowest dose possibly, as with time, tolerance can require increases to maintain adequate analgesia. With increased doses can come increased side effects and other problems.

Chronic pain management has come a long way. I began seeing its use in the treatment of non-cancer chronic pain during the early 1990s. Opioids were not approved by Health Canada or the US FDA in treating pain other than that of cancer or pain in end-stage disease patients. All non-cancer treatment was (and I believe, still is) 'off label'. That basically translates into it's being legal if medically indicated, based on clinical evidence. That put many practitioners at risk with the DEA in the US. As prescribing became more widely adopted, the clinical basis for off label prescribing became more established. Prior to 2000, physicians too often found themselves being charged for various offences, seeing chargesm dropped only upon surrender of their narcotic prescribing privileges.

In the 1980s, often CPPs could not hope for much more than high-dose enteric coated ASA or some prescription strength NSAIDs, especially for those forms of chronic pain not well understood. Any hint by the patient that morphine might be an idea would too often be met with a curt question asking if they wanted to become addicted. I still run into the occasional graduate of medical school from an era when medical students were told that 'opioids were bad' who will not prescribe opioid therapy in the absence of end-stage disease.

The management of non-cancer chronic pain has much development yet to go, but if you've experienced access to treatment of two or three decades ago, you have an appreciation of what the 'stone age' of pain treatment was like.

Oh My Gosh, Mic I WISH

Oh My Gosh, Mic
I WISH doctors prescribed opioids in the manner you describe, that is as outlined in the "College of Physicians and Surgeons" guidelines "the least amount possible to make the patient free of pain." The "Guidelines for physicians for opioid use in non-cancer patients" actually states the daily amounts in excess of 300Mg are seen as being GENERALLY ineffective." These guidelines allow for exceptions to this rule, listing four specific criteria. Each of these criteria I met exactly, but this did not matter to my doctor, obviously of the era when med students were told "opioids are bad". These are the only type of doctor I have ever come across, myself. I have heard rumours, though, that they do exist.

At the first suggestion of an increase, my former doctor also threatened to reduce and eliminate my morphine without an alternative. I believe some do this so you will not bring up the issue of an increase for fear of losing it entirely. I understand medically, there is a big difference between malignant/terminal and degenerative, but in terms of managing pain, it is a difference without a distinction. I don't think we will see a a move towards an increased use of opioids, even when legitimately and medically indicated, due to the culture of fear around addiction and accidental overdose. The pendulum has almost swung to the high end of the extreme reaction to these concerns. Mic, have you come across any research, or do you know if such exists, on the number of people who have committed or attempted suicide, or are being treated for severe depression resulting from enduring chronic acute pain? (Thanks so much for the hard data on those addiction studies.) If the numbers exist, I bet they would be rising as the incidence of accidental overdose and addiction decrease. It is just sad that our physicians seem less concerned with their patients well being, than the politics of opioid medication. It is tiring to be continually regarded as having an addiction problem at best, and accused of being a criminal and have treatment withheld as punishment.

It feels like we have no voice. Fine, if you are lucky enough to have found a great family doctor, that communicates and treats in the ideal way Mic describes. But for the majority (it seems)of us, we are left banging our heads in frustration with no real recourse for complaint or change. We are less able to advocate for ourselves, limited often by a lack of resources, and depression, and/or mobility, etc. Who represents us, when policy and guidelines are developed? My experience with emergency services leads me to believe that the concerns for avoiding liability (for suicides, etc) rather than what is best for the patient. Anyway, sorry to be redundant. It just burns my biscuits.

Oh yeah, I live on Vancouver Island, BC., in a very small, rural type town, about an hour's drive to Victoria, BC. (Pretty close to as far west and south as you can go and still be in Canada)
Thanks again, all of you, for listening, and caring...
Peace, light, and love,
Sandi

Sandi, I second everything

Sandi,
I second everything you just said. It's so difficult to advocate for yourself when you're already so sick and in fear of losing what the meds you already have (without which you could not function at all). I have had days that were so bad, that if I had a gun, I would've shot myself in the head! Not because I'm a suicidal person but because the pain is actually in my head. A constant throbing, knife piercing pain behind my eyes. I can't concentrate anymore, I can't read anymore and I can barely focus anymore. Sure, I have some good days. But for me now, good days are getting out of bed and having a shower! Like I said before, Who lives like this? I had a great job (Canadian Airlines) which I loved now I'm dealing with "the politics of opiod medication". It doesn't seem fair and doesn't seem right. I guess I'm just so frustrated. In 15 years, I feel like I've tried eveything and seen every specialist and don't know what else to do. I just don't want to spend the next 5, 10 or 15 years exactly like this.

Thanks again, for your compassion and most of all just for listening.....

Serendipity2 wrote: ... The

Serendipity2 wrote:

... The "Guidelines for physicians for opioid use in non-cancer patients" actually states the daily amounts in excess of 300Mg are seen as being GENERALLY ineffective." These guidelines allow for exceptions ...

I don't think we will see a a move towards an increased use of opioids, even when legitimately and medically indicated, due to the culture of fear around addiction and accidental overdose...

Mic, have you come across any research, or do you know if such exists, on the number of people who have committed or attempted suicide, or are being treated for severe depression resulting from enduring chronic acute pain?

It feels like we have no voice.

Oh yeah, I live on Vancouver Island, BC., in a very small, rural type town, about an hour's drive to Victoria, BC.

Sandi,

I'd have to agree, from everything I've seen, that generally, opioids at doses in excess of 300 mg. per are ineffective. At that dose, sufficient receptors are being blocked which should result in noticible pain relief, and that level of blocking will often cause our nervous system to build more receptors for what it perceives as being dysfunctional receptors. This is "tolerance". It's almost as though the body compensates, insisting that the patient is going to be made to feel the pain and that "the game is on".

As the guidelines state, this is how matters are, generally. I've seen patients on much higher doses, though. Patients are sometimes placed on intrathecal pumps with hydromorphone at higher equianalgesic doses. A friend who suffered pain from uterine adhersions with no relief at 450 mg./day morphine, was placed on the pump. She was titrated over weeks to just over the equivalent of 1,000 mg/day with significant relief and the newly reacquired abilty to function. The nice thing about the pump is that it delivers a constant dose, alleviating analgesic loading, reducing tolerance, and the risk of addiction associated with non-constant dosing. It's one step better than slow release oral delivery. The docs like it as well because they're not putting a boatload of narcotics into a patient's hands. It's not cheap, though. When I was involved in CPP advocacy, the cost of a Medtronics intrathecal pump was $10,000 and the surgery to implant it was a like amount. Medtronics donated a few pumps to Ontario patients that I know of, with hospitals and docs doing likewise, leaving the patient with only a few thousand dollars to cover.

Regardles of what guideline limits are placed on pain management physicians, a good practitioner knows how to properly titrate opiods, and if a patient reports 60% relief at 240 mg/day, they'll likely keep titrating to effect. It's those patients who are simply not getting relief from any dose for which the guidelines are basically stating to stop when you hit 300 mg. If it isn't working significantly at that point, it's not likely to above that.

Of course, if pain is neuropathic, the problem becomes one more of reducing nerve activity, rather than blocking the chemical neurotransmitters at the CNS receptors. There are numerous anecdotal reports of high dose (above 450 mg/day) opioids reducing neuropathic pain (typically fibromalgia) by basically numbing the brain. I haven't seen much serious research into this, though. I think there are better ways of medicating fibromyalgia, of numbing nerves closer to the problem.

The simple difference with treating end-stage disease with unlimited doses of opioids lies in the risk of addiction not presenting a problem. No one's going to sue a physician for addiction when they're palliative.

Pain medicine has come a long way since the early 1990s. Back then, I was on the boards of two CPP advocacy organization. We did everything from advocating for patients perosnally and politically, to advocating for the occasional physician who garnered the wrath of the DEA. We flew patients from one end of the US or Canada to the other to be treated by pain management physicians when they couldn't find help locally. It got to the point where it got the attention of the media with 60 Minutes doing a segment on us.

We saw not only the statistics, but also suicides suicides among patient groups and with the occasional personal friend. Compared to today, pain management then sometimes bordered on the barbaris, almost Neanderthal. Practitioners who would employ strong analgesics were often seen by legitimate CPPs as being pioneers, bearing in mind the negative atmosphere created by the DEA.

I've read of anecdotal reports of as high as a 45% rate of suicide in some geographical areas among sufferers of trigeminal neuralgia. Back pain sufferers, as I recall, also figure prominently. Of course, there are also those 30,000 patients who die annually from using NSAIDs. I do not know how many of those result from being denied more aggressive forms of treatment.

If you suffer chronic pain, it's almost a given that you suffer depression. The action of the brain in both is similar at the core. This is why depression patients who have no pathology for pain, can experience chronic pain syndrome. I guess that's part of what is often referred to as being part of the "mind-body" connection.

Sandi, who is determining your pain management, a specialist or your GP?

Well, CPPs do have a voice. In fact, I can take a look around my PC and find a link to a new forum for CPP patients in BC. It's in its infancy, and has been set up by one of the foremost pain management physicians on the US-Canada west coast. I think the site also has tools for CPPs, such as diaries, that sort of thing.

I may also be able to locate links to some of her published audio files. She cut her teeth in Australia, where pain management can be a little on the barbaric side (in my opinion), coming here a decade or so ago. She employs the full gambit of pain management, from various procedures to aggressive opiioid therapy, as indicated. In listening to her audio recordings, you'd almost swear that she must be a CPP, herself, as she definitely "gets it". She discusses the archaic thinking of some practitioners and how there are no preset limits to opioid prescribing.

She practices in Vancouver in one of the most progressive environments for pain management. She has a three year waiting list, but there are always cancelations which may get you in earlier if you decide that the trip is worth it.

Mic

I haven't been in your shoes

I haven't been in your shoes exactly, but I have been experiencing awful pain for about 5 or 6 yrs now due to Ehlers Danlos Syndrome. I started having issues my freshman yr of high school with having 4 surgeries on 4 different joints to relieve my agonizing pain-and now it seems like 2 of them have already started to fail (actually seeing a doctor today to see what we can do to fix it). I started to not be able to walk due to the loose joints and muscle problems. I would have aches and pains everyday and would have one joint or another partially pop out of socket. Long story short...pain is effects everything aspect of my day and the pain has only gotten worse. I slumped into a deep depression and became beyond angry at God-as it seems you have too. I just want you to know that God isn't mad at you and He isn't doing these things to you-the devil is throwing these things at you (possibly because he sees the potential you have). Just trust Jesus and keep praying for healing. I believe He can heal you. Just think...of all the people who came to Jesus in the bible who asked for healing...who did he deny? ((nobody)) It just might take some time. Just don't lose faith-and if you don't have faith make sure you get it. Its the most important thing a person can do.
I went to a christian book store yesterday and saw a picture that clicked with me-
what illness cannot do
illness is so limited
yet in all these things
it cannot cripple love, it cannot alter hope
we are more than conquerors through Him who loved us
it cannot corrode faith, it cannot destroy peace
for I am persuaded that neither death nor life
it cannot kill friendship, it cannot suppress memories
nor principalities nor powers, nor things present nor things to come nor height nor depth
it cannot silence courage, it cannot invade the soul
nor any created things shall be able to separate us from the love of God
it cannot seal eternal life, it cannot conquer the spirit
which is in Christ Jesus our Lord. Romans 1:37-39
it was a little confusing for me, but look up the verse either in a bible or on google and it'll make more sense where the verse is embedded in the poem.
Keep your head up Smiling Jesus loves you and knows your struggles
God bless!

Can you get RFA were they

Can you get RFA were they burn some tiny nerves helps for six month .But try to keep your job

You have 100% disability

You have 100% disability coverage ,you could take medication but choose not to. I take the same medication and it only makes me sleepy if I take more than the amount to stop the pain. I'd say your pretty lucky from where I sit.

What hurts?

What hurts?

I burst two discs in my back

I burst two discs in my back and have an artificial disc at one level and an anterior fusion at another level. I had the surgery 6 hrs ago and have been in worse pain since the surgery which was done at Texas Back Institute. My back and leg pain is so severe I can't stand it. I am bed ridden. I've lost all my friends. They don't understand and don't want to hear my problems. I worked hard to get my masters degree. Had a great job, wife and kids, nice house, etc... My wife left me, my house got repossessed and all of my $200,000 savings is gone. I've been taking OxyContin and oxycodone, Xanax for my anxiety attacks, ambien and other meds for depression. I have had to live with my parents at 41 hrs old. I'm constantly put down, called crazy, lazy and many more humiliating things. My mom is crazy and only thinks about herself and is tired of hearing about my pain. Texas back plus a number of neurosurgeons have told me that my hardware looks fine and there's nothing else they can do. I'm frustrated beyond belief at idiot doctors that have no compassion. I'm broke and have been turned down twice for disability. I should've filed workmans comp but always thought I'd get better and back to work. Now I feel I'll be like this the rest of my life. My boys have been the only reason I haven't given up. I've been in and out of rehab. I can't stand the pain anymore. I'm tired off this severe back and leg pain. It's constant and I can't stand it anymore. I haven't tried to kill myself because of my boys and I'm religious and afraid of going to hell. I've tried every injection and been thru rehab. I do not want go on living because of this severe pain. I can't stand it anymore. I don't know what to do. I get severe constipation and go weeks without going and I feel like I have a hangover everyday from the toxins in my body. My life is useless and I can't imagine going thru the rest of my life. I just want to end my life so I won't have to suffer anymore.

Ohscott i'm so sorry to hear

Ohscott
i'm so sorry to hear how awful you are feeling. I have been through a lot of what you have. Hold on to your boys, keep going on for their sake, if that is the only reason you can come up with right now. It is sad that the biggest obstacle in obtaining effective relief from pain is the very doctors we entrust our health to. I take morphine - much less than what I need for effective relief, and being decreased as we speak. Not decreased in response to a decrease in pain, just for the sake of a decrease.
I have been prescribed cymbalta now to replace the morphine. From what I understand the side effects are potentially horrible, and it is highly addictive - harder to get off of than heroin. But, the side effects are rare, and it if it works for you, well, that is better than what you are going through right now. I'm not taking it as it seems ridiculous to exchange one "highly addictive" medication for another with potentially worse side effects (and unknown) especially when what I am already taking works so well. Have you tried Dilaudid for breakthrough pain? 2mg/day is highly effective for me worth a few hours of major pain decrease.
Don't give up. You are not alone. You deserve so much better. There are so many of us suffering the same way. I wonder if there is a country whose medical practices actually reflect current research into acute chronic pain?
Hang in there,
Peace, light, and love
Sandi

First of all I'm so so sorry

First of all I'm so so sorry for all that you have gone through. I think a good pain clinic is a good idea also I want to tell you that I deal with chronic pain and I was on high amounts of opioids. They made me really foggy headed and soon u build a tolerance and need more and more. Well long story short... I had tried all kinds of meds and other treatments and some worked for a while but then stopped. I was so lucky to have the dr I did because she was so caring and understanding. One day I went in to her office feeling like I could just die and we were thinking what else can we try? I heard of suboxone but didn't know much about it. I asked her about it and she was so happy to try me on that. It is made to help people with addiction but it also is a pain med. it works different though. I got put on generic subutex (same drug basically) Buprenorphine is the generic name, my pain went from unbearable to almost non existent! No joke! And I don't have any crazy side effects! It has saved my life and I have been stable on it for aprox 5 years now. Maybe ask about it? I recommended it to others I knew who were having pain problems and needing lots of meds they tried it and now they are doing great! My doc said if its prescribed for pain and not addiction then any dr who prescribes other narcotics can prescribe it. Sorry that is a long story and that's the "short" version :Innocent talk to a pain doc who is familiar with this med though because it is different and you want to make sure you are informed. Google it too but try not to listen to all of the bad stories about it. It works wonders for a lot of people. I wish u the best of luck!

After being back at work for

After being back at work for 6 weeks full time, I finally took my doctor and therapist`s advice and stopped working. Although it causes me much sadness, the pain has taken over my life to the point where I can no longer sit at work and cry. It is not worth it, like my manager says who are you trying to do you have nothing to prove to anymore, go home and rest until you can come back and feel better. I have the best job and the best people. I also have a great team of professionals taking care of me. I am feeling so defeated and angry.

I was doing so well, sure I had pain but was able to work through it. But the last month it hit me hard again...and I did try to work through it, but finally admitted that I am not able to.

I am awaiting a CT scan and MRI. My injury rep is looking at having me go to a rehab center and get on a exercise therapy program.

For some reason the pain meds were not working well enough, even though my doctor had me at the highest dosage. So not sure why the flare up.

So I am not really able to do anything. Just rest - and I guess that is really what I need for now. It saddens me that I am not able to do anything around the house, even making meals for my family is so painful. I pray that this is only temporary.

Just wanted to give an update, as I had received so many emails wishing me the best, and I thank you all for caring so much. It is very much appreciated.

After 15 years of pain to the

After 15 years of pain to the point where it is hard to breath, Neurologist has recommended Injection Theropy. He said I had "Failed Back Syndrom". Can anyone enlighten me as to what Injection Theropy involves?
I hope I posted this in the right placeout, but am sure if I didn't, I will hear about it.

Thanks
Johnny

If not for methadone, I'm

Star

If not for methadone, I'm sure my life would not be worth living. I was in terrible neuropathic pain and also had bad disks, two of which were eventually fused, but the foot and leg pain from neuropathy? NOTHING will cure that! But no high, no sleepy days, just blissful pain relief if taken as prescribed. Too few people seem to know about this and even I said I thought it was just for junkies when the doc suggested it! It may have been created to work with heroin addiction but it sure is a fabulous pain reliever for people with chronic pain. I have Endocet (10/325) for breakthrough pain but honestly don't have to use it very much at all. Best wishes!

Cannabis works! As an active

Cannabis works!

As an active volunteer at the MMP.org, and sometimes contributor to the ProjectCBD.org (which is not affliated with any hospital in CA, btw) I can tell this from personal experience: cannabis works! Mic seems to have skimmed some of his materials because he/she is giving out quite a bit of misinformation. Go to the sites and read, especially ProjectCBD.org! And, of course, www.MMP.org and NORML plus about 20 dozen OTHER sites, including www.cannabisclinicians.org

I personally know that for insomnia - nothing works as well for me. I put 1 T. of cannabutter on toast at bedtime and get a refreshing 8 hours of good, steady sleep. For me, the "medibles" as they call them - edible cannabis products - are the best! I don't like the effects of smoking it - the paranoia, that pounding heart feeling and the buzz are just NOT for me. It also makes me dumb as a rock (that's the THC!) so I could never smoke it and work! But at home, for sleep? It's fabulous.

Researchers at California Pacific Medical Center has a huge list of studies at http://www.cpmc.org/sift/?cid=11&si=cpmc&sw=0&st=THC&CFID=185918589&CFTOKEN=94592370&jsessionid=7e30d1778bf8304b1938TR I just went to their website and plugged in THC in their search engine, and found a huge long list of current studies. It's not that there are no studies, it's that the US Govt refuses to recognize ANY of them.

Most of the research done about CBD began in Israel, which is where both THC and CBD were first isolated. Every nation has some sort of research going on, and larger countries have for several decades. Our govt would rather collect the profits from criminalizing what was once AMA-beloved though, plain and simple. Any pain mgmt physician who would refuse to treat people because they used cannabis would be one doctor I'd put on the Wall of Shame. It's never been known to interfere with any regular pain mgmt drugs that I know of. I'm not saying I know it ALL but I certainly know a lot since I've been researching it myself heavily since 2009 - and I'm a medical anthropologist.

In the past 20 years, researchers have studied how cannabinoids act on the brain and other parts of the body. Cannabinoid receptors (molecules that bind cannabinoids) have been discovered in brain cells and nerve cells in other parts of the body. The presence of cannabinoid receptors on immune system cells suggests that cannabinoids may have a role in immunity. Though federal law prohibits the use of Cannabis, 18 states and the District of Columbia permit its use for certain medical conditions and now CO and WA allow it to be used as any adult sees fit.

What is one man's relaxant is another man's pain killer! Who is to say that relaxing itself isn't necessary in our too-fast, too-stressful world? How many diseases do we acquire due to our immune system being suppressed due to externals - like, increased poverty, job losses, lack of access to resources, and so much more. We have new stressors in our world today that didn't even exist 40 years ago, and the human body IS reacting. Badly. If cannabis can help in ANY way - medically, economically, psychologically ... what is the harm? No one has ever died from cannabis use and it's been in use for thousands of years.

If you ever truly studied cannabis, you'd be amazed! If you ever tried it, you might very well sleep and eat better, be more relaxed and in far less pain. JUST SAY YES! For more info contact MMP.org ... see where YOUR state is in the legalization process. There sure will be a lot of humble pie being eaten when that little herb finally does get to strut its stuff! Smiling

Dear Flashback, First of all,

Dear Flashback, First of all, don't drink!! It will ALWAYS make you feel worse! I had the same car accident business happen to me years ago. It seems that for some of us, omce you've been in a car accident, you are destined for more. I didn't even bother to get a driver's license until I was in my 30's because it seemed that many times, when I got in someone's car (even a bus once), they'd get hit by another car or truck. (Actually, the bus driver had a seizure while driving, so that was one instance where HE did the hitting!) It seems that some of us are destined to get punished. I ask myself every day, "What did I do to deserve this life?" I constantly talk to myself out loud, wondering what the heck I did, and how bad a person I must be to deserve this life. I hate myself...and feel stupid and useless. I certainly understand why you don't want to leave your job. It's a place where you can feel good about yourself and get a feeling of accomplishment. I wish I had answers for you, but as I said before...I'm stupid and useless. This is a wonderful site with very caring people. I hope someone can say something to you that will help. Take care, keemo7

OMG!!! I Just wanted to say I

OMG!!!

I Just wanted to say I am so glad to know that I am not alone!!! I have been on pain killers for going on 6 years and am only 28 yrs old! I have chronic pain in my belly and am living with a colostomy!! Had several(4)surgeries now no surgeons want to touch me due to scar tissue they are afraid will be hard to cut through. I am positive that I have a few hernias but lately have been bothered by extreme pain near my stoma. I got a refill end of last month but the oxy 10's they have me on arent realieving any pain. I have read all your replies and am amazed how many people good people are living with this overwhelming pain. I was with pain management before but they had me on everything and I was nodding out and lost everything! I finally withdrew myself last year and am scared to go back bcuz i dont want to go on morphine again or the patch which they wanted to put me on. I like the oxy w/o tylenol but here in Az they do dismiss ppls pain due to drug seekers and believe me where i live theres alot of em that get more meds than I do and theres nothing wrong with them. The past 2 months I have wanted to tell my PCP but am afraid they will cut me off. I dont know what to do. I had to go to the ER monday nite cuz the pain got so bad. I wanna call and tell my DR BUT AM AFRAID THEY WILL HAVE TO LET ME GO!! I am inspired by the ppl who had the strength to tell and ask for help. I dont know how to articulate to them and am really scared and in pain! HELP!@!!

On a positive note, I have

On a positive note, I have completed six weeks of intensive physio exercise therapy at a Rehab center, and I am feeling so much better, I have been at work now for one month full time and so far am not experiencing any pain at all.
In fact with my doctors help I have completely weaned myself off all of my oxy neo pills and am now taking gabapentin for the pain, and it has been helping me so much. I am finally thinking that I have my life back, the life that I wanted and worked so hard to get back to. Work has been great, I have the best job ever and the most amazing co-workers that anyone could dream of having. So Life is now great...I welcome each day now, and love the thought that I am back at work full time with no pain. I so deserve to have my life back.

I am so grateful and happy, that I have been blessed to have my health back. Just wanted to give you all an update as I have received so many emails of encouragement, and I thank you all for caring.

Your life seems to have

Your life seems to have turned around! How wonderful! Could you explain more about the physio exercise therapy and where to get it. To go from your 1st post to your last saying "Life is Great!", gives hope to me. I am in so much pain right now. I've taken all my medicine for today. No relief at all, and it's strong stuff. Seriously, I don't know what to do and all I do all day is pray to God. And cry and/or scream.

Thanks for the update, and please reply with the information on how you got better. Thank you and again, I am so happy for you.

Accidentally, posted

Accidentally, posted twice...sorry!

I am really feeling sad for

I am really feeling sad for this person because of the chronic pain. I just want to say be patient dear. Actually, I think the 3 vehicle accidents are the main reason behind this. So, I want to suggest every body to drive safe and be safe. When notice any error in your vehicle just repair it from good repair centers and stay avoid of these things. Please stay safe and allow others to stay safe. Here, I have specified a link of good repair center that we can follow. .
http://www.vfc-engineering.com/services.html

I have just read this entire

I have just read this entire thread and feel like I am suffering like most of you.I had injured myself at work in November 2008, I had torn everything in my right shoulder and bicept muscle. Worksafe bc sent me to their surgeon Dr Brian day who did his best to repair the damage the best he could.After surgery he told me to only do pendulum exercises and to be very carefull not to tear anything in my shoulder untill I had enough healing time.After about a month my case worker Brenda Salter did not like the fact I was only to do pendulum exercises so she forced me to a physio therapist clinic for a second opinion. When I arrived for the appointment I asked them if my surgeon knew I was there and they replied " he doesn't have to know " so then I asked if they had my medical records and they replied "no,they will come here next week." They then took me into a exam room and had me lay down on my back.Then the girl said just relax all you're muscles and let me move you're arm, so I did. That's when she rotated my arm in a fast full range tearing everything the surgeon had repaired out,she heard the tearing snapping noise as did I. I had already been in agony from the injury and surgery but now it was compounded ten folds. I had then gone to a pain clinic a couple of weeks later and was prescribed 40 mg oxineo a day.and norotripleine, and Tylenol arthritis . It does not help me very much because I am suffering so much and I feel the same as some of you , I look forward to dieing so I don't have to suffer such 24/7 agony.My family doctor will not change or increase my pain meds because he is scared of being arrested or in trouble for writing on his blue prescription pad. He had put me on a pain clinic waiting list at vgh and surrey memorial hosp which was eighteen months long.I have been waiting fifteen months now in un bearable pain that has stolen my life from me and my wife and two kids. I am desperit for some help with the pain I suffer but I see no help in my future.I can't sleep much,I can't do much of anything or my pain spikes leaving me in tears and wanting to die. All I do is lay in bed with ice packs all over my shoulder,back,arm and neck.I also have unbearable head aches caused from the re injury. To make things worse,like that's even possible,worksafe cut my pay off in October 2010 three years ago telling me that I am able to work.Now on top of living with unbearable pain,I have spent my life savings on just trying to survive and feed my kids.I am now about to loose my home because I have no money left to pay my morgage.I am just dumbfounded by how I have been treated by worksafe,my doctor ! I asked my doctor how can anyone make me suffer so much, they don't even let a dog suffer as much as I am....I don't want to kill myself,but,I don't want to live in so much pain either....if it weren't for my wife and kids....I would have jumped in front of a bus long ago....oh and as if all this wasn't enough...my family doctor of eighteen years is shutting down his practice to do only cosmotology with some laser machine leaving me with no doctor at all and I have been searching for a new doctor but I can't find any doctors taking new patients..un freeking believable ! I am unable to cope....thanks for listening.... :'(

I started to cry right away

I started to cry right away when i read this. I feel exactly the same way. I cant handle this pain anymore. But... i am 6 months very high risk pregnant with my second child and my first passed away when i was 38 1/2 weeks pregnant.I see a psychologist once a week but being in pain all day still has me crying all day! I dont know what to do anymore!

I started to cry right away

I started to cry right away when i read this. I feel exactly the same way. I cant handle this pain anymore. But... i am 6 months very high risk pregnant with my second child and my first passed away when i was 38 1/2 weeks pregnant.I see a psychologist once a week but being in pain all day still has me crying all day! I dont know what to do anymore!

saabundiz wrote: I started to

saabundiz wrote:

I started to cry right away when i read this. I feel exactly the same way. I cant handle this pain anymore. But... i am 6 months very high risk pregnant with my second child and my first passed away when i was 38 1/2 weeks pregnant.I see a psychologist once a week but being in pain all day still has me crying all day! I dont know what to do anymore!

What you do, if you have any faith in a higher power, is ask God to pull you through this. Trust in Him. It's o.k. to get angry at Him too. He knows your heart and He loves you.

If you don't believe in God, then meditate in nature if possible. Just slow down your breathing and slow down your mind. Relaxing will help ease the pain a little.

If you can find joy or laughter in anything, try to include that more in your life. But if you are a compulsive overeater and find joy in that, then you're going to need to find joy in low calorie food; that's what I do.

Exercise, if you can do any of that safely and without causing harm to yourself or your baby, would be very helpful. I'd ask the doctor about that.

My thoughts and prayers are with you and your baby.

Hi Flashback/anyone else

Hi Flashback/anyone else suffering,I also suffer from debilitating chronic neck/arm/back pain that started from a car crash and was made much worse from a severe reaction to dry needling. I take 20mg Oxycontin every 8 hours to keep me from losing my mind and just sobbing in the shower till the hot water runs out.

I have a lump in the middle of my neck on the right side caused by the muscle snapping and bunching up from the hyperextension injury as I was twisted and not wearing a seatbelt because I was parked and about to get out as I was hit.

I don't want to go on just enough to let you know Flashback I can empathize. There is something you can try that has recently helped me a fair bit, BOTOX, a pain specialist stuck a needle in the lump in my neck and I found relief, the only problem now is the other muscles in my neck spasm, but as they condition it will improve. Botox is a neurotoxin and will last for 3 months for $700 a hit. Hope this helps been 3 years with this and only just found this a month ago, don't ever give up Smiling

q

q

"The body is pathetic when

"The body is pathetic when compared to the spirit."

http://www.oprah.com/own-super-soul-sunday/event-viewing.html

"Find your way to the Light."

"Find your way to the Light."

"You can choose courage, or you can choose comfort." Brene Brown.

Ask God to pull you through the eye of the needle. Sister ?

http://www.youtube.com/watch?

I completely understand what

I completely understand what you are experiencing. I was in several car accidents years ago, but my primary source of pain is fibromyalgia. It's an all-over throbbing nerve pain that's in my flesh. Prepare yourself for what I am going to suggest. My only source of relief has been through using methadone. It is a consistant, long-acting pain killer. The problem I had with oxicodine was the short amount of actual relief. Methadone doesn't make me groggy because I'm so used to it. Methadone stays in my system, therefore it takes care of me all the time. Unfortunately, it's horribly addictive, and most people who take it never stop. It's a matter of choice. Either one is totally terrible. You are either going to tough it out the way you've been doing, or make a serious decision about your meds. Life is hard for everyone, but I think it's harder for us. Our health care system is also a huge problem. No one understands people who live with chronic pain, except the ones who are living with it. There is no simple answer or solution. You will have to make hard choices and decide what you can and cannot live with. I'm sorry for you and all of us who are living with and in pain. I wish you well, keemo7

Katherine is a very smart

Katherine is a very smart woman! People living in chronic pain need representatives. It's getting very hard for us to get the meds we need. US government intervention in our medical system is hurting patients who NEED HELP! They are trying to control how much and what types of meds we get. Our doctors are scared to give us potent medications. They investigate our doctors. And, while the doctor is under investigation, they go to the drug stores and suggest that the stores stop filling the doctor's scripts. They don't put anything in writing, so they can't get sued by the doctor. I heard this directly from a drug store employee. Somehow we have to get organized, and that won't be an easy thing to do for people living in unbearable pain. It's getting really bad out there!

I don't understand WHY we

I don't understand WHY we have to live like this anymore? I often wish I just had cancer- How much easier life would be! First off, there would be no problem getting meds for the pain. As a matter of fact they would throwing pain meds at you to "make you more comfortable", "so you have a better quality of life" etc. etc. I apoligize to those of you who have lost a loved one to cancer, I have. Or to those of you who has suffered with someone through cancer, I have. But why does someone with cancer deserve a better quality than me or you? I've heard that cancer patients won't get addicted to their pain meds because they will be cured or die? Well, that's not for sure either and in the mean time they've had X amount of days, weeks, months, years of a better quality of life than I'm having with little or no relief, barely getting out of bed. I know someone in pallative care who was told that they had two months left and that was over two years ago!

I'd rather have cancer than this life sentence. At least with cancer you'll get better or die and in between they give you as much pain meds as you need. Why is there no buddy advocating for chronic pain suffers. It appears to be a two tier system. So what if we're depended on pain meds for the rest of my life? At least I would have a life? Is that what people with malignant cancer do? I'm just tired of struggling each and every day. This isn't even living anymore.

aeroport wrote: ... But why

aeroport wrote:

... But why does someone with cancer deserve a better quality than me or you? I've heard that cancer patients won't get addicted to their pain meds because they will be cured or die?

I'd rather have cancer than this life sentence. At least with cancer you'll get better or die and in between they give you as much pain meds as you need. Why is there no buddy advocating for chronic pain suffers.

Unfortunately, many doctors and patients still hold a mistaken view that cancer represents the most painful set of conditions. While the pain from malignant disease can be excruciating, it is usually short lived relative to the pain from conditions such as trigeminal neuralgia or occipital neuralgia. Many cancers are without painful symptoms. The twelve or so most painful chronic pain conditions commonly seen are not even malignant disease. Cancer, often being life-threatening, is treated under a different set of paradigms, and rightfully so. Practitioners aren't liable to fear iatrogenic addiction in their patients; the consequences are virtually low to nil.

The incidence of psychological dependence (addiction) to opioid medications is actually quite low. During the years 1996 to 1999, twenty-three thousand opioid prescribed patients at thirteen pain clinics in the northeastern US were studied. Three years of charts previous to 1996 were incorporated into the data. The study found that less that 0.8% of patients who were properly titrated and who followed their medication regimen became addicted.

During the 1990s, chronic pain patients did organize. Through organizations such as the American Society for Action on Pain, the North American Pain Society, and others, the treatment of intractable nonmalignant chronic pain with opioid analgesics was greatly furthered. Prior to that time, pain management physicians in the US were being arrested and incarcerated at alarming rates, for prescribing at levels which today are accepted as part of clinical practice. Some are still serving prison terms.

Things have changed, greatly. No longer are physicians being arrested at the rate of two or three per week for prescribing high dose regimens for serious, unrelenting pain. Of course, they also now have a strong defence from a wealth of clinical data accumulated over the years, quite useful in demonstrating the legitmacy of off label prescribing.

I can totally relate to you

I can totally relate to you and how painhas dominated your life...Im sorry to hear there are many more like me, but I have found a partial cure.
Medicinal marijuana is the answer. No you dont have to smoke it. You eat it. It doesnt make you giggly or stupid, and it has no toxic level that can kill you like oxycodone.
In 1978 I was 16, and small town life was slow, a friends Mom worked at the employment center, and she called me first as I was a motivated and good worker. I was a big kid, 6 foot and about 220 lbs, and could outwork anyone. Sent out to unload a semi trailer for a moving company. It was great, was going to get 100 bux no matter how long it took, and 3 hours later the truck was finished except for the baby grand piano at the end. We used straps but I didnt lift with my legs and put my back into it, mashing my L5 disc instantly...I felt a warm rush then a very uncomfortable stabbing feeling in my back, and this was halfway up the steep driveway. I was encouraged to not set it down but to finish it would be over soon...what a idiot I was.
Everything in my low back was locked up so tight I couldnt sleep, sit lay down...nothing helped...doctors were stupid and said I sprained my back, gave me pills that didnt work an off home i went. 1 week later, still no relief, no sleep, i was going insane, tried drinking it off, nothing worked. Went down the block to a friends place, and we had some black hash, smoked a fair bit, and 30 mins later we were done, and i was moving around and realized my back had relaxed and i could move better, the clamping down was relieved. I smoked that evening to get to sleep...it was great. I never looked back, I realized weed and extracts were medicinal, I didnt need a doctor to tell me that, as the doctors remedy did nothing for me...it was the equalavant to 222's...strong asprin...goof...
16 yrs later at age 32 I had already suffered a dozen work related injuries when my L5 disc totally failed, compressed left leg nerve root, requiring surgery, where they removed the disc and loose pieces floatin around, also did a lamonectomy on left side as well. that was 20 yrs ago...Last yr I got into accident while riding bike where a driver opened his door into my path causing me to crash...I sustained 9 injuries, and still nothing is fixed and the injuries are like an onion, as you peel off one layer, you find another layer...destroyed knee left shoulder and spine have several herniated discs in a few places, and both elbows, left wrist, right ankle...and when I make medicinal cookies and eat 4-6 grams a day, it takes the pain down to a managable level...google watermellon girl and use her peanutbutter cookie recipe, its easiest to use, but to simplify dosage I suggest if you use 15 grams of shake powder, to make 15 cookies, and then you know what dosage works for you...start with a half cookie and wait a couple hours before finishing the other half...the worst possible side effect is you get sleepy and doze off. There is no toxic level of marijuana...I have 36 yrs experience and without medicinal marijuana I would have gone insane by now.

Oh how I can understand! I

Oh how I can understand! I have been dealing with chronic pain since march 23 2011 when I sustained a severe ankle fracture. I am 52 and have done everything my doctors instructed but still severe ankle pain, swelling, lack of mobility. I broke both bones in my lower leg and tore everything in my ankle. Had initial open surgery right away with screws and plate. Had to have hardware removed due to rejection about 6 mo. later. I have had 4 surgeries, physical therapy, etc and still am miserable. My toes wont bend under, cannot bend ankle like I used to, swelling, acheing, muscle spasms, burning, tingeling, clunking, cracking, pain to touch, a cannot squat, cannot bend ankle to walk down stairs, unable to stand or walk very long without severe pain, unable to run, sitting with feet on floor causes severe pain and swelling, pain in cold weather and severe swelling in hot. My left knee hurts now as I put my weight on t on that leg to eleviate pain of right ankle. Is my right ankle so driving is painful. I have given up most everything like gardening, shopping, drive very little, etc. I am not on any medication as Dr wont give out meds, just take Tylenol like crazy worried about my liver. Cant take ansaids, aslirin or ibuprophen due to ulcerative colitis. The only relief I get is to put my leg up several times a day. Have ankle brace but it gets so tight. I have not been able to work. I get depressed and have insomnia now. I have brought all this to my gp and orthopedist only to get nothing...I tried to get social security disability but was turned down because I still have vision! Am fighting it. Its just so frustrating because I see ads for all these medications for pain and joints yet here I sit! I have felt like they think I am hypochondriac yet with research I found I am not alone...this is very common...so why dont doctors listen?

Hello, I know the level of

Hello, I know the level of pain you experience. I have had severe multiple injuries with no solutions until I found a class IV laser. Look at http://www.litecure.com and search for LiteCure laser therapy in your area. Also look up Litecure medical on youtube.. You should be able to significantly reduce or completely eliminate your pain. Please let me know how you are doing. I hope this can help you.

As a Staff RN, working in

As a Staff RN, working in Rehabilitation with Spinal Cord injured patients, and patients with amputations, I know how the pain can be overwhelming. Sometimes, I would feel the nurses inadvertently contributed to the patient's emotional pain, which I felt contributed to their physical perception of pain. I am ashamed to say I probably did it myself - definitely inadvertently.

I hope this helps:

http://www.youtube.com/watch?v=ZFhmEuieiNQ&list=PL1Y-viuhkyb7a2gxacMBWkMugSnPs_kOK

wishandaprayer wrote: As a

wishandaprayer wrote:

As a Staff RN, working in Rehabilitation with Spinal Cord injured patients, and patients with amputations, I know how the pain can be overwhelming.

Sometimes, too, no amount of medication can completely deal with the unrelenting pain. A friend of mine in the US had his lower legs amputated following a truck accident. It wasn't long before he complained of the pain returning in the remaining upper legs. Surgeons amputated further. The pain returned, and again they amputated.

The last surgery involved removal of his total hip.

(I've included his published photo as it's attached to his story on a website telling his very public story.)

I have no idea what was implanted to support his spinal column, but he's still in severe pain. You wouldn't believe the daily dose of opioids he's having to take for the minimal pain control he's getting (it's well over the LD50 for the active agent). I didn't until I spoke with his physician and saw the filled prescriptions. I think Jim is the worse case of chronic pain I've encountered.

How in the world do you work,

How in the world do you work, im going through the same pain.

I also was in chronic

I also was in chronic neurological pain for quite some time and felt a lot like you. I was finally referred to a pain specialist who has been able to help me greatly. I don't know if you have gone this route yet, but that is what pain specialist are for.

As far as your request for

As far as your request for disability TELL your doctor you want a wheelchair. Under disability guildelines if you are in a wheelchair even part of the time you qualify for disability. I hope that you requested the appeal after you were denied disability during the time allowed. Otherwise you have to reapply and I am not sure if there is a waiting period to reapply or not. It will tell you at the Medicare website.
Go to a pain specialist to be put on pain meds. They seem to be the only way to pain relieving meds now that all the regulations on opiods etc have been in effect. I tried all the other remedies before being told that is what I needed to do. Why they didn't give that info to me first is still baffling to me. Good Luck

I am legally addicted to pain

I am legally addicted to pain meds and there is nothing wrong with that as long as you are addicted by medical necessity. It's a medical addiction and if you can't fine a doctor who cannot understand the difference between addiction types you need to change docs. Try an actual pain specialist PLEASE!!!

One of the worst things that

One of the worst things that has happened to our society is the denial of pain medication. THERE IS NOTHING NOBLE ABOUT SUFFERING! My heart aches for anyone in pain. Constant pain can lead to loss of hope. Loss of hope can have tragic consequences.

I believe one day the medical

I believe one day the medical community will realise the huge disservice they've done to the all the individuals suffering with chronic pain. It may not be in my life time but I hope they realise that they spend millions (and in some cases billions) of dollars on research treating the dying instead spending time and money treating the living!! Who decided that a dying person was worth giving as much pain medication as they needed to alleviate their suffering but someone who's living with pain & suffering is not. Why do we have to fight to get any descent pain medication. And good pain specialists are few and far between. For those of you who have one, count yourself among the fortunate. There is far too many people in pain and not enough people around willing to help. Why is that? Really why is that?

MicOnTheNorthShore

MicOnTheNorthShore wrote:
wishandaprayer wrote:

As a Staff RN, working in Rehabilitation with Spinal Cord injured patients, and patients with amputations, I know how the pain can be overwhelming.

Sometimes, too, no amount of medication can completely deal with the unrelenting pain. A friend of mine in the US had his lower legs amputated following a truck accident. It wasn't long before he complained of the pain returning in the remaining upper legs. Surgeons amputated further. The pain returned, and again they amputated.

The last surgery involved removal of his total hip.

(I've included his published photo as it's attached to his story on a website telling his very public story.)

I have no idea what was implanted to support his spinal column, but he's still in severe pain. You wouldn't believe the daily dose of opioids he's having to take for the minimal pain control he's getting (it's well over the LD50 for the active agent). I didn't until I spoke with his physician and saw the filled prescriptions. I think Jim is the worse case of chronic pain I've encountered.

How were you able to speak to his doctor? Doctors are not allowed discuss their patients in any sort of detail.

aeroport wrote: I believe one

aeroport wrote:

I believe one day the medical community will realise the huge disservice they've done to the all the individuals suffering with chronic pain. It may not be in my life time but I hope they realise that they spend millions (and in some cases billions) of dollars on research treating the dying instead spending time and money treating the living!! Who decided that a dying person was worth giving as much pain medication as they needed to alleviate their suffering but someone who's living with pain & suffering is not. Why do we have to fight to get any descent pain medication. And good pain specialists are few and far between. For those of you who have one, count yourself among the fortunate. There is far too many people in pain and not enough people around willing to help. Why is that? Really why is that?

I've had a couple of brushes with intense pain. Both times I found myself completely unable to work or even function. I can't imagine having to deal with real pain all day everyday.

Katherine wrote: How were you

Katherine wrote:

How were you able to speak to his doctor? Doctors are not allowed discuss their patients in any sort of detail.

They can with the patient's consent.

He had quite early in his struggle for relief from pain become a public figure, from news of the DEA raid on his home where all his medications (including vitamins) were seized (returned two days later when he was in full withdrawal), to the 60 Minutes segment telling his story. He was also on the board of a patient advocacy organization where I served and to which his physician, who was well known in pain management, consulted.

What color is your car? What

What color is your car? What are the times of day you've been hit? Is your car light blue, or white? Hit times 1 to 3 PM?

I have been where you are. I have a book in me. Reading this thread, I realize how important that I write it. I have to learn Dragon. I have the program. My hands won't write all I need to say. I do have parts to share, already written, that may be helpful. In my other cpu which is down. Anyone know how many characters allowed on this? thx & puppy love from Inventing Joy & Furry Folk

Hi there whiplash- I am so

Hi there whiplash-
I am so sorry to hear you are in the condition you are in..I've been there but have managed to regain a little of my life for now.
Let me give you a little background:
I have Crohns dx, a severe 42 degree curve scoliosis, a colostomy bag, pelvic floor tension, pelvic adhesive dx, 14 reconstructive surgeries to reconstruct my rectum and vagina after a 4 th degree tear from childbirth, 2 ft of intestines removed, rhemetoid arthritis, appendix, gallbladder uterus-out, 9 car accidents (1 was my fault) fibromyalgia, interstitial cystitis (bleeding and inflammation of the bladder) chronic MRSA staph, head injury, prolapse pelvis, DDD, chronic pelvic pain, etc etc. I lived in hospitals for pain control among crohns and MRSA flares etc.
I tell you this because at my worst when I was feeling like you did crapping all over myself, unable to leave the house, panic attacks ...I tried to take my own life, lost my daughter then tried again and again each time in intensive care in a coma for 3-5 days. I didn't care anymore, I wanted to die...no one should live like this.
I finally went on disability, found a great pain doctor who put me on the fentenyl patch and oxycodone for break though and started seeing a shrink who put me on anti-depressants to pull me out of my rutt. I tried several before I found abilify and oh my god.. The darkness lifted. I fought back, got my daughter back, I just bought my first home and Hopefully am returning to work.
I also get injections.
I now have lost my pain doctor because Of insurance and I am terrified to go back to my old life, if I have to live like that again I may do it.,. No one can live like that, no one.
The most important thing is to continue to find the right doctors, interview them, they work for you! If your not comfortable find a new one.
Surround yourself with good people, go to meetings, form a chronic pain group, do whatever you have to to live..
Good luck and thinking of you.

Hi Share I am also suffering

Hi Share

I am also suffering from chronic pain and currently off work with it. After reading your story, there are a couple things you could try. Definitely a referral to the nearest pain clinic is a good idea. I have heard good things about them - although it may not take away all pain, I think it will help you cope with it better.

Also, like yourself, I have tried many treatment modalities. I am currently trying Somatics therapy - created by Thomas Hanna - you can google it for more information about the theory behind it. It may work to alleviate your symptoms. I am seeing a therapist and enrolled in exercises classes as well. Unlike the other treatments you have received, which are passive, this treatment involves you actively re-learning to train muscles to move in an appropriate manner - it will take time though. I have the book as well and it is very worthwhile to read.

Take care - I understand your pain since I am living it and the impact it is having on my and my spouse's life is horrible.

Monica

Excluding my primary, I have

Excluding my primary, I have given up on doctors. The pain doctor I was seeing for about 3 years is no longer practicing, and I have witnessed so many depressing and strange behaviors in this area, that I do not want to be around any more of it. I have taken the meds I had left and am now in the midst of a mess of pain and withdrawal. Good luck to you all. I wish you more success in the medical world than I had and hope you have better years in the future.

MicOnTheNorthShore

MicOnTheNorthShore wrote:
Katherine wrote:

How were you able to speak to his doctor? Doctors are not allowed discuss their patients in any sort of detail.

They can with the patient's consent.

He had quite early in his struggle for relief from pain become a public figure, from news of the DEA raid on his home where all his medications (including vitamins) were seized (returned two days later when he was in full withdrawal), to the 60 Minutes segment telling his story. He was also on the board of a patient advocacy organization where I served and to which his physician, who was well known in pain management, consulted.

I've not heard of this guy. The one with no legs, not the doctor. What was his name?

Katherine wrote: I've not

Katherine wrote:

I've not heard of this guy. The one with no legs, not the doctor. What was his name?

I'm not going to violate his privacy by publishing his name, even though he is mentioned on a number of websites. The pain patient advocacy organization he worked for has since ceased operations, and his photo is now found on only the one website.

I'll send you the information by PM, and you can decide if you feel the need to make the disclosure.

The very inconvenient truth

The very inconvenient truth about chronic pain is that while there is much study and interest on a research level, VERY, VERY litle progress has been made at all in treating it across the board, among all age groups and conditions.
These are facts.
The pendulum of opinion and wishes swings back and forth in medicine, as to what the causes for unrelenting or serially serious chronic pain, well after healing is complete are, but a retrospective look-with eyes wide open, devoid of mushy thinking, and using empiricicism, will readily, EASILY show that the plethora of drugs, mildly to severely invasive medical procedures, "woo'woo" treatments like accupuncture, and the mountains of "self-help" books by psychologists have amounted to ....almost nothing.

The current medical take on chronic pain (which seems reasonable, at least because it's hard to DISPROVE), is that chronic pain involves a cascade of changes in the peripheral and central nervous system. These changes, which are being studied in hard science, and also by the severely dishonestlabs of big pharma, are given al sorts of mechanisms as to cause. There are a handful of animal studies wherein mice are cut up after exposure to chronic pain, and, according to the published literature, there are physical changes to the nervous systems of the animal subjects who were exposed to chronic pain, which, to sum up, AMPLIFY non=painful stimuli into pain, and amplify and sustain pain far beyond the scope of injury.

Now, what has been done to HELP with this, or any preceeding ideas? uh.... not much.
Antidepressants; these, even in the field of psychiatry, have been shown time and again to have have long-term efficacy rates essentially the same as placebo; there is no proof they do any good, though are remarkably efective at making a very large percentage of users fat, bald, impotent, diabetic, plagued by movement disorders, licer/kidney failure and grossly higher rates of suicide.
Docs and pain docs LOVE antidepressants for pain, because the DEA will not hassle them for prescribing them. They may hurt or kill you, but docs would really rather see that than have you become *potentially * addicted to opiates or benzodiazapenes. True, for a percentage of the population this is a legit concern. But docs, especially pain docs, HATE to prescribe any drugs which might in any imaginable scenario, invite scrutiny from DEA audits. It's about THEM...NOT TOU. They don't want to be hassled. On top of that, generic opiates and benzos are cheap, patents are expired, and the big, big pharma money is elsewhwere. Now, SUPPOSEDLY, docs aren't under the sway of pharma reps anymore. Yet, they still ALWAYS suggest the NEWEST, most expensive, least tested drug for pain....almost always an antidepressant that either a: failed as an antidepressant, and is now being pushed as a pain med, or b: showed some short term pain relief in depression trials. (REMEMBER: virtually 100% OF DRUG TRIALS ARE ONLY A FEW MONTHS LONG.)
Quite a lot of drugs will reduce all manner of pain, or distract a pain patient for that long. Sadly, the pain relief effect fades in the majority of those for whom it even worked at all, after a few months.
Pain docs are ga-ga for every manner of INJECTION. Hey, let's give you epidurals every 3-6 months. Lets inject your piriformis, your caudal space, your facet joints, your...whatever. Longitudinal studies of injections with steroids show little to no real effect.
Pain Docs also LOVE IMPLANTS; sticking electrodes, wire leads and control devices in your body so you can distract yourself from the pain by making a buzzing sensation zip down the nerves that relay the pain. Despite any and all sophisticated talk about what such devivices do, THIS IS WHAT THEY DO.
Their overall long term efficacy is abysmally low...and failures are irreversible. Once a wire lead gets put in your body, it becomes encased in scar tissue, and will never be removable. The control device can, but the wires? They are yours now. And if they break or corrode, or just fail? You keep them, plus the NEW ones that get installed.
These procedures are worth 3k-10k or more to docs. It's BIG profit business.
Simply prescribing amytryptiline (SP) -ELAVIL was/ is the brand name, at TINY doses at bed time, say 5 to 20 mg, can indeed help one sleep. There are a plethora of other drugs (CLONAZEPAM), TIZANADINE), etc, which can do the same. They may or may not be well tolerated, but at least in the case of clonazepam, a longer-acting benzodiazapene, the side effects are usually mild to non-existent after a patient gets used to them, and they are pretty benign. Amytryptiline (sp) can be more problematic...it is a tricyclic antidepressant, and bingo, has a huge list of potential side effects, though some people will do great with this drug (considering the dose is 4-10x LOWER than as prescribed for it's original purpose.
Point about drugs; VIRTUALLY ALL DRUGS USED FOR PAIN, EXCEPT NSAIDS AND OPIATES, ETC, ARE ESSENTIALLY FAILED DRUGS DESIGNED FOR OTHER PURPOSES, AND / OR THEY SHOWED SOME( OFTEN SCANT AND EMPIRICALLY INDEFENSIBLE) HOPE OF BEING EFFECTIVE FOR PAIN WHEN PATIENTS IN TYPICAL 12 WEEK STUDIES FILLED OUT THOSE QUESTIONAIRES THEY GET.
Big pharma is a rapaciously lying and downright murderous business; they are the ultimate drug pushers, and exost for the sole purpose of making money. They do not cure anything. They might treat few things, almost always by accident. They rig studies, and are NOT...repeat NOT...required to PUBLISH any studies that they don't want to, i.e; the many thousands of studies that show their drugs did nothing to help, or made people really sick, or killed them.
Now, that said, due to recent changes in the laws, YOU, the CONSUMER, can go looking for all their studies...at least if YOU become your own researcher, you can find out what they try very hard for you to never see.
All this said; you can do these things, and they help almost EVERYBODY:
1) DO NOT BE OVERWEIGHT; not even 10 lbs.
2) MOVE, EXERCISE, AS MUCH AS YOU CAN, WITHOUT CAUSING HARM; TAKE IT VERY SLOW, BE VERY PATIENT, AND DO NOT BREAK DOWN WITH SETBACKS. STRETCH. DO WARM WATER POOL EXERCISES, SWIM, WALK, HIKE...ANYTHING AT ALL, AS MUCH AS YOU CAN, HARD AS IT MAY SEEM.
EXERCISE IS ONE OF PROBABLY TWO OF THE GREATEST PAIN RELIEVERS...MUCH RELIEF WILL ONLY BE SHORT TERM, BUT IT CAN KEEP YOU FROM BLOWING YOUR BRAINS OUT, AND CAN KEEP UOU AS MOBILE AND "HAPPY" AS IS POSSIBLE. I KNOW EXERCISE IS A VERY DIFFICULT ONE FOR MANY; IF ONE IS IN A WHEEL CHAIR, ETC. USE WARM WATER POOLS. PRIORITIZE MOVEMENT. BEING STILL MAKES THE BODY MISERABLE.
3 DON'T SMOKE, OR STOP SMOKING.
4) EAT MODERATELY, AND ***DO NOT*** FALL FOR THE HUNDREDS OF FAD DIETS AND LATEST MIRACLE FISH OIL/ HEALTH FOOD STORE SUPPLEMENTS THAT POUR OUT ONTO THE MARKETPLACE WITHOUT END. THERE'S MORE HOOEY HERE THAN COULD POSSIBLY BE BELIEVED BY ANY THINKING PERSON. Consider this; you're buying a product which is almost completely unregulated, marketed by companies who are there to SELL YOU STUFF, who do not run studies, by health food clerks who get paid 10/hr to stock shelves. Their answer to about every question, if you ask it right? YES: THIS WORKS FOR a, b, x & y...malarkey. Quackery. Dispensed by clerks.Save your money.
Once in a while an individual MAY find something that helps, but there is NO PROOF anywhere that any off the shelf supplements do anything. Although MANY are potentially harmful. CONSIDER: fish oil (omega oils) are indeed powerful anti-inflammatories. They work in almost EXACTLY the same way the largely failed CELEBREX drug did/ does, if it's even still on the market. For some, the fish/ krill oils may help, IF, and ONLY IF, inflammation is part of the problem, and for MANY chronic pain patients, there is NO PROOF that inflammation is part of the issue...( "Neutriceutical -supplement providers and even big pharma are scrambling to prove that the problems in the nervous system regulating the out-of whack sensitivity to pain are really all about TINY, almost impossible to measure levels of inflammation in the CNS...). If they could score some "studies" that "prove" such a phenomenon, they could try to peddle fish oils as chronic pain relievers on a broader basis. MYGUESS: it will fall as flat as everything thus far. BUT, back to the effects of fish oils , and their active ingredients, omega oils...they DO work like drugs. They ARE drugs. AND, they VERY, VERY frequently cause the EXACT same side f/x as drugs like CELEBREX DID...gastrointestinal upset and even bleeding, because their effect (COX-II inhibition), also has paradoxical effects on the lining of the digestive tract. MANY people are susceptible, which is why about half of all people taking fish oils, super -refined or not- complain of burping, gut pain, diarehea, etc. Then the supplement folks step in and introduce a HUGE, GIANT RED HERRING (no pun intended), by saying "THIS OIL IS SUPER-ULTRA-REFINED, AND WON'T GIVE YOU THE GUT PAIN THAT ALL THOSE CHEAP OILS GIVE YOU...WE'VE DISTILLED THIS STUFF DOWN 100 OR 1000 TIMES, SO YOU'RE GETTING AN INCREDIBLY RICH DOSE OF OMEGA OILS, WITHOUT ALL THE CONTAMINANTS...WHICH ARE WHY JOW BLOW'S OIL MAKES YOU BURP AND DOUBLE OVER IN CRAMPS... Bullcrap. IF the oils are super refined, they are delivering you a very powerful dose of the cyclo-oxegenase inhibitors that do INDEED have a role in reducing inflammation, but by their very nature, inescapably, ALSO affect the lining of your digestive tract...there's no escaping it.
Just likw with Aspirin...it is a fantastic anti-inflammatory. But for many , the side f/ are just too much...but they come with the effects.

OK. DON'T BE FAT. BE AS LEAN AS YOU CAN BE, SO LONG AS YOU DON'T STARVE YOURSELF.
EAT A REASONABLE AMOUNT AND VARIETY OF FOOD. AVOID ALL THE HORRIBLE MC DONALDS CRAP.
DON'T GO OVERBOARD. EATING IS SIMPLE. THERE ARE NO MIRACLE FOODS. THAT'S A GIGANTIC LIE PERPETRATED BY FRINGE DOCTORS AND NON MEDICAL HACKS WHO BLOG OR RUN CLINICS. EAT WHAT FEELS RIGHT, AND STAY OR GET TRIM, LIKE ALL LIVING THINGS SHOULD BE. JUST DO YOUR BEST AND BE PATIENT....GIVE IT AS LONG AS IT TAKES.
GO TO BED AT 9-10-11 PM, AND TRY TO GET THAT 7-9 HRS SLEEP EVERY NIGHT. PRIORITIZE THIS. OR JUST GIVE UP, B/C IF YOU DON'T GET THIS DONE, YOU'RE DONE FOR. GET SERIOUS. USE DRUGS THAT HELP YOU GET TO SLEEP, IF THEY DON'T CAUSE BAD SIDE F/X DO YOUR RESEARCH, LISTEN TO YOUR BODY, DON'T BE BULLIED BY DOCS, OR LIED TO BY HEALTH FOOD CLERKS.

USE THE SAFER/ MORE TRANSPARENT DRUGS THAT ACTUALLY GIVE YOU CLEAR IMPROVEMENT, AND LAST. DO NOT FALL PREY TO THE NEW 500.00 A MONTH FAILED ANTIDEPRESSANT THAT WILL KILL YOUR LIVER AND MAKE PHARMA RICH, AND SCORE YOUR DOC TICKETS TO THE BALL GAME.

THAT'S IT.

uphill wrote: The very

uphill wrote:

The very inconvenient truth about chronic pain is that while there is much study and interest on a research level, VERY, VERY litle progress has been made at all in treating it across the board, among all age groups and conditions.
These are facts.

You evidently weren't a chronic pain patient during the early 1990s. I think much progresss has been made, beginning with an understanding of both chronic pain and chronic pain syndrome.

uphill wrote:

Antidepressants; these, even in the field of psychiatry, have been shown time and again to have have long-term efficacy rates essentially the same as placebo; there is no proof they do any good ...

Docs and pain docs LOVE antidepressants for pain, because the DEA will not hassle them for prescribing them.

This is nonsense. TCAs can be efficacious in modulating chronic pain. It might be more apt to refer to them as neurotransmitter inhibitors rather than as antidepressants in this respect. I have yet to see a physician hassled by the DEA in my neck of the woods where TCAs are employed no more or no less than elsewhere.

uphill wrote:

... docs would really rather see that than have you become *potentially * addicted to opiates ...

The incidence of addiction in properly titrated patients has been demonstrated to be less than 0.83%.

Now, SUPPOSEDLY, docs aren't under the sway of pharma reps anymore. Yet, they still ALWAYS suggest the NEWEST, most expensive, least tested drug for pain....almost always an antidepressant that either a: failed as an antidepressant, and is now being pushed as a pain med, or b: showed some short term pain relief in depression trials. (REMEMBER: virtually 100% OF DRUG TRIALS ARE ONLY A FEW MONTHS LONG.)
Quite a lot of drugs will reduce all manner of pain, or distract a pain patient for that long. Sadly, the pain relief effect fades in the majority of those for whom it even worked at all, after a few months.

uphill wrote:

There are a plethora of other drugs (CLONAZEPAM), TIZANADINE), etc, which can do the same. They may or may not be well tolerated, but at least in the case of clonazepam, a longer-acting benzodiazapene, the side effects are usually mild to non-existent after a patient gets used to them, and they are pretty benign.

Benign? Benzodiazepines have a well-established addiction profile, and clozazepam can be addictive at therapeutic levels. I developed myoclonus after being tapered down from 2 mg tid over six years to 0.5 mg bid, requiring a rise to deal with the myoclonus.

uphill wrote:

VIRTUALLY ALL DRUGS USED FOR PAIN, EXCEPT NSAIDS AND OPIATES, ETC, ARE ESSENTIALLY FAILED DRUGS DESIGNED FOR OTHER PURPOSES

There are many analgesic agents available for the treatment of chronic pain which are not NSAIDs or opioids. SNX-111 is much stronger than morphine and is efficacious when delivered intrathecally. As for opiates, they have been around for millenia and have uses other than pain management.

NSAIDs have their own special problems. They can lead to serious gastrointestinal problems and are responsible for some twenty thousand deaths annually in the US alone.

MiconThe NorthShore: You've

MiconThe NorthShore:
You've not read, or misinterpreted some of these key points:
#1 I wrote: "The very inconvenient truth about chronic pain is that while there is much study and interest on a research level, VERY, VERY litle progress has been made at all in treating it across the board, among all age groups and conditions.
These are facts."

Your reply:

You evidently weren't a chronic pain patient during the early 1990s. I think much progresss has been made, beginning with an understanding of both chronic pain and chronic pain syndrome.

MY REPLY TO THAT: Boy, you could not be more wrong. We have gabapentin, pregabalin and Topomax...we have the rehashing of all manner of electrical modulator implants, we have the continuing use and marketing of pharmeceuticals in the way they were always used, though with EXTREMELY aggressive marketing, and more ridiculous claims. The aforementioned three are all essentially failed neuropeptics that DO IN FACT help soe people...about 20%, if the y can tolerate them...the rest? No effect, bucket of side effects, or total agony and sickness. Fact.Success rates for all these modalities, longitudinally are poor to modest, and complication rates are very high, though advertising this is VERY bad for business, ergo people find out how non-efficacious these things can be, when they become failures. Docs don't usually say" "Look, this is a shot in the dark, try it."
---------------------------------------------------------------------------------------------------------------------------------\
"#2 I wrote:
Antidepressants; these, even in the field of psychiatry, have been shown time and again to have have long-term efficacy rates essentially the same as placebo; there is no proof they do any good ..."

Docs and pain docs LOVE antidepressants for pain, because the DEA will not hassle them for prescribing them.
-------------------
You replied:

This is nonsense. TCAs can be efficacious in modulating chronic pain. It might be more apt to refer to them as neurotransmitter inhibitors rather than as antidepressants in this respect. I have yet to see a physician hassled by the DEA in my neck of the woods where TCAs are employed no more or no less than elsewhere.

I did not say that TCAs offered no help. You should have read further. Read it now. My claim, as you quoted it, is well supported by vast patient experience, and longitudinal research (which is NOT funded by PHARMA, but groups like the NIH). I know well that TCAs, especially in low doses (as I very clearly indicated, should you have read it), can help people with pain. Note the doses are often 5-10X less than used for major depression. The problem is, even at low doses, the list of side effects is large, and NO ONE can guess who will be affected... arthralgias (if rare), constipation, digestive disorders, and cardiac complications are merely the beginning. All well and good, IF none of these problems present for a patient!

#2a: This is silly. You didn't read : I stated quite the opposite of what you accused me of getting wrong. I said docs are all to happy to prescribe antidepressants, precisely because the DEA couldn't care less when they are written, because the perceived propensity for abuse is very low, and rightly so. Therefore, docs will write for old TCAs, and SSRIs, SNRIs, SSNRIs, and atypical antidepressants all day long, usually based on their personal experience and/ or recent pitches by the pharma reps that get in the office before you do at a rate of about three to one... read me, read it closer.
My assertion was that docs, by and large, even physiatrists (pain docs) , prefer NOT to prescribe Benzos, because the DEA IS interested, and hysteria based or not, a ot of docs just don't want the chance of hassle...and they don't want to deal with tose who are physically or psychologically presisposed to addiction, whom will "spill their meds down the drain," "loose them," etc, yada yada, and always ask for more. I really know all this from first hand, long, long time experience. Big time. And I get it that such docs get sick of these situations. But benzos are spectacularly transparent and safe for some, and do a great job of down-regulating the CNS, raising pain thresholds. PLus, for those with pelvic problems, NOTHING under the sun works like good old valium. Is it perfect? No. Is it the best, yes...again. Vast first hand experience here. I only wish valium was affordable, b/c generic diazepam is quite sensitive to crappy control standards employed in generic manufacture, what a crock all that is!
A doc will say nonsense like: "you shouldn't be taking diazepam; it's bad for your memory." This is rooted in truth. BUT, They'll then say "Take gabapentin or Pregabalin (esp Pregabalin)...you'll be clearer." The truth is, though one might forget a phone number on diazepam, one is likely to pick up a hair brush on pregabalin, and think it's a phone. Or not be able to remember the beginning of a sentence by the time it ends. But the percieved abuse factor is considered low, the docs fear DEA audits less, and, hey Pregabalin cost about 500.00 to titrate up to a good dose in month one or two, b/c the same amount is charged regardless of dose, so the patient must buy MANY capsules. Then, if sick and tired of being weirded out, clumsy, suffering diarehea, with stomach aches, falling over, and having considerable ataxia, tapering DOWN again, cost a huge amount. BIG BUCKS FOR BIG PHARMA.
Or one could take gabapentin, cheaper, but the bioavailability decreases with increasing doses, and at high doses, ataxia and other symptoms are common, so after three months, the painful adjustments end, and the patient is at square one...though for some, these work great. Of course , weight gain and blood sugar problems are PROMINENT in the long run. THESE ARE FACTS. They are well-supported by years of longitudinal, non pharma research. for Topiramate (Topamax), relative anorexia is a greater concern, and so is hair loss. Big fun. BIG BUCKS. These are facts. But again, for about 20% , there is some noticeable benefit, with fair to good tolerance of side effects, or at least acceptance of them. But the liver and kidneys may give out later...
-------------------------------------------------------------------------------------------------------------------------------
You cited and called me out on THIS: I WROTE:
"VIRTUALLY ALL DRUGS USED FOR PAIN, EXCEPT NSAIDS AND OPIATES, ETC, ARE ESSENTIALLY FAILED DRUGS DESIGNED FOR OTHER PURPOSES."

There are many analgesic agents available for the treatment of chronic pain which are not NSAIDs or opioids. SNX-111 is much stronger than morphine and is efficacious when delivered intrathecally. As for opiates, they have been around for millenia and have uses other than pain management.

NSAIDs have their own special problems. They can lead to serious gastrointestinal problems and are responsible for some twenty thousand deaths annually in the US alone.
----------------------------------------------------------------------------------------------------------------------------------
I MADE NO DEFENSE OF NSAIDS. NONE. ZERO, ZIP, NADA. THIS IS EXACTLY MY POINT ABOUT LITTLE TO NO PROGRESS. Thank you for further illustrating my point! NSAIDS are easily abused, and will hurt many people. As bad as that, they do little to nothing for many of us, except hurt our gut. You inferred things I simply did not write. But again, thanks for helping prove my point for me.

As to the ancient use of opiates, what of it? nonsequitir.
---------------------------------------------------------------------------------------------------------------------------------
You took issue with me over opiate addiction, but you did not read :
I wrote:. "...docs would really rather see that than have you become *potentially * addicted to opiates ..."
------------------
You replied:

The incidence of addiction in properly titrated patients has been demonstrated to be less than 0.83%.
---------
I made NO CLAIM that the addiction threat of opiates, equaled the fear of such, or the stigma, or the apprehension docs have about prescribing them long-term, though they would be of little use to me, or anybody with my particular problems.

Now, it stands to reason for any observant healthcare professional, or well-educated consumer, that any drug can be intolerable and/ or ineffective for any individual. To each their own. For some, Benzos are addiction city...these people are usually apt to be addicted to EVERYTHING, and to freak out, literally, when they can't get more & more. We're not all posessessed of those genes or psychological propensities. Same with opiates...some people are going to abuse, even if they don't really want to. It is understandable when one is just miserable...the high can be the ONLY relief from the unending weight of pain, pain, pain. Luckily, I wouldn't get addicted to anything. It just isn't in me, and I wouldn't tolerate it, anyway. And I know from real world experience. I've had huge access to everything. I know where I stand. What I wrote is based on medical education , experience, and unfortunate experience as a chronic pain sufferer since the age of 22...now for 27 years. FWIW, I ws a marathoner, power lifter, wrestler, football player, rock climber, competitive swimmer, etc, etc...I know acute pain and endurance. Chronic pain, as it presents in my body is a totally different animal. I understand the difference. I have been everywhere, had the closest association with neurosurgeons, pain docs, etc...
Your mileage apparently varies.
Cheers.

Incidentally, I DO believe

Incidentally, I DO believe that essentially DAILY physical therapy, body work and exercise would benefit almost everybody, far more than drugs.
Obviously it takes LOTS of money for all that body work and assisted PT.
You had no comment on my suggestions of physical activity and weight control, (strict weight control at that), with a merely reasonable diet based on eating what one NEEDS, and little more...this DOES help, if only modestly. Sometimes it helps a huge amount. I mentioned that even for the terribly disabled, exercise up to the safe limit, with great patience, is paramount. It is also almost ALWAYS NOT DONE...thus, failure is almost guaranteed.

These things take patient responsibility, and not simply laying there. They are hard. They can be VERY hard. But (NEW, EXPENSIVE) drugs and almost meaningless injections are just business. ( I DO believe that every patient has the right to take and use drugs that help them, so long as they ACCEPT the drawbacks...for some, side f/x are virtually non-existent). Then there's serial, mild to moderate depressive symptoms from benzos for some people, opiates for others, or, hell, antihistamines, for that matter. Some people have deep dark deprssive episodes from acyclovyr, for god's sake, no lie. It happens. Some people Blow their head off while taking Wellbutrin or SSRIs...it happens. Others experience moderate to excellent relief, and take the trade-off of side f/x, even up to impotence (Remember how Prozac was a WONDER DUG in the early 90s?) Now, decades later, we see how Fluoxetene, Duloxetene, and all the other newer antidepressants turn out, longitudinally, to have a very, very disturbing rate of sexual dysfunction, sometimes long-lasting and occasionally permanent, and weight gain and blood sugar problems, movement disorders, etc., are coming up more and more. Not to mention the propensity some have for VERY difficult discontinuation syndromes. These things were NOWHERE to be found in the early years of the roll out of these potentially diastrous drugs, and in the begining of the tidal wave of direct marketing to patients (potential patients) all over prime time TV, as in"DO YOU NEED THIS DRUG? ASK YOUR DOCTOR..." And the millions of full page magazine ads...now, after MILLIONS of people have taken billions of these pills, we have a much clearer picture of the range of effects and sometimes awful side effects, with sexual dysfunction leaping from a ridiculously low reported rate of 1-5% in clinical short term trials (which launched the new super drugs) to 50% and upwards, longitudinally. Look, its a crock. This is NOT pain management or good treatment for depressiion. True, TCAs, esp. desipramine, don't carry nearly the same boatload of side f/x, but that pesky cardiac thing... again, It's a person-to person basis. Marijuana helps some, though typical modern pot can open the floodgates of pain, with it's sky high THC, and REALLY mess up a chronic pain patient for weeks, until they ramp down again. But some with intractable pain do great on pot that would make others ON FIRE...there's decent literature/ studies on this now well-recognized phenomenon, thus the interest in developing low-to 0% THC marijuana, (or just plain hemp). I made no claims that it was hopeless. I stated, as is CLEAR by the massive discontent with pain management, and the lifetime chronicity of many patients going from clinic to clinic, that the state of pain management is in ....limbo, going almost nowhere, more based in theory than action. Go looking for well-cited articles on this very opinion. It's out there. And it's discouraging. I WISH I was one of the 10-20% who got about 25% relif consistently. I'm not, despite my education, research background and strident work looking for novel treatments. Truth is, the industry really is into billing for procedures, not curing pain.

Yet people buy into it, overweight, obese, medicated into disease... We're not getting far at all, despite BILLIONS of patient investment. Let's face it. There is help for some, but for roughly 80%, pain medicine, for many reasons, is a miserable failure.
You have not commented on that...

This is just a horrible, even

This is just a horrible, even sick situation. Good God. Why would a doctor chop someone to pieces...why would a man wish to be cut in half? It is ghastly.
I know of people who had what I had/ have: unrelenting pelvic pain. It was due to pelvic nerve entrapment, which, through my intensive, unrelenting research for two years, was properly diagnosed by an expert ( I understood the nature of the problem from day one, as it was OBVIOUS, due to the pattern of pain and numbness, but had to search the world, literally, to find three neurosurgeons who had already done extensive work on my rare disorder). Once I found the right doc, I had the surgeries, which were surprisingly easy and straightforward... and though I never recovered completely, I went from a *moment-to moment* near need to *commit suicide* to escape the pain, to a manageable, if often very difficult life.
Every day I face the question: "is it worth it to live any more? Can I take it?" But before my surgeries, I was living from* second to second.* One of my only ways of getting through a day, was knowing I could commit suicide any time I had to. I could not sit at all. I could not be still, either. The sensation was of having my genitals/ entire perineum, ano-rectal area strangled by the nerves that fed them. These are precisely the most feared and horrific means of torture employed upon prisoners/ hostages, for good reason, The threat of grievous injury/ loss of the genitals, goes to the deepest , most primitive centers of the brain, and causes the most profound agitation. The threat is URGENT...One can NOT ignore these sensations. This is why sticking a cattle prod up the rectum of a torture victim is perhaps the worst thing a victim can suffer. This is, BTW, what I felt like, quite frequently. It is indescribably painful and psychologically disturbing. Pretending to be normal, not screaming, and trying to work and communicate with people under these circumstances, took huge and unrelenting effort. It was beyond exhausting: I felt like I was being ripped apart. So I know what the worst pain in the world is like. I had to marshall my own medical care under such duress. And although the nerves were unentrapped, and healed considerably, years of dysfunctional muscles in my pelvic floor continue to give me constant pain that goes between bad and almost unbearable...and standing in year fourteen has caused problems from my hips downward...my tendons are so tired. I ache all over my body from using totally unnatural postures to keep the pressure off my perineum...gravity is my enemy 100% of the time. Everything else bears weight...shoulders, arms, feet, legs, hips, ribcage, spine... and every one of these parts, hurts...they were not designed to support a body. There is only being up and moving, or being asleep. There is no waking rest. Pain is my constant companion. So I know. Perhaps that's why I am aghast at what was done to this poor man.
Along the way in my quest for the treatment, I met people who had themselves terribly mutilated by having things hacked off and out...it's like some medieval nightmare. Somewhere, they got to docs who did things like chop off their tailbones, and even castrate them. This is overwhelmingly sick, and nearly psychotic...BTW, these people *still* have the same pain. They're far worse off, and are now totally mutilated.
What is this, a horror show? Now they are dying in pain, sans testicles...madness. As if the testicles were the problem! Who would imagine they could be? (!) These people have neurological damage, peripherally and/ or centrally, and doctors are cutting them up and in half? This is beyond comprehension. You find the compromised nerve or nerves and get at it or them, un-entrap or perhaps ablate them as a last resort, if you can. if it's in the CNS, you treat that. You make the most titanic efforts of thought, science and imagination. You don't cut someone in half. You don't cut their testicles and /or penis off...

Were these doctors insane, or Sadists? It's beyond belief...something hurts...chop it off. More pain? chop off more. Did they even have a medical education? Where are their minds? Have they NO reasoning skills? I'm done here.
Such a tragedy...I cannot fathom how a patient would want to live, and consent to such hideous mutilation.
I have sympathy for the patient, but won't apologize for my horror of such decisions....but perhaps the prospect of living as a torso and a head/ arms is adequate to some? I cannot fathom this, not in my worst nightmares. My heart goes out to this man and all like him.

CC: the fact is, with the

CC: the fact is, with the medical system so screwed up, and in constant flux, docs, especially pain docs, are not very happy with the money they put into their careers, vs the riches they hoped to reap... They deal with the hardest populations...their jobs are frustrating...their staff piss tests everybody all day long, and treats paying, respectable patients like PRISONERS...it's a demeaning, twisted situation, VERY far removed from what humane, sane, advanced medical care should be. And this is the world doctors work in. They loathe the patients, even though they don't mean to. They loathe themselves, even though it's not entirely their fault. They loathe insurance companies, for GOOD reason. They loathe the government, for GOOD reason. They loathe attorneys for great reason. Everything and everybody stands in the way of them simply doing their best. They owe a lot. They deal with people in horrible pain, which causes people to harden and recoil, and become quite bitter, because they can't express normal emotions. If they did, they'd come apart. Then again, there are plenty of pain docs who are successful sociopaths and liars, or whom are very narcissistic. They couldn't care less. They're people, like the rest of us, and their job is hard. They really DON'T have a whole lot to offer us, under realistic circumstances. The good ones hate this...those of average moral character just check out and watch the bottom line, retreat to their million dollar homes and stew that they're not filthy stinking rich.
The Government is full of bureaucrats who make their pay and promotions by digging for docs to hassle and even prosecute. They create a situation wherein docs say "NOT ME, NO WAY." "IF THESE BUREAUCRAT HACKS EVEN THINK OF COMING AFTER ME, I WILL NOT GIVE THEM ANYTHING TO LAY ON ME." So they deprive patients of aggressive pharmaceutical care. Then there's the catch-22 that so many meds cause so many problems, anyway!
Now that The new healthcare act is shaking the medical industry from top to bottom...oh God. We'll see.
We'll see if we even have any American doctors in business anymore. We'll get even more less qualified docs from overseas, who come from systems more rife with gross incompetence and poor education, along with massive populations of very poor, sick people. They will be your new doctors. They are used to servile patients. They are used to lording it over their lesser people...they are more used to tyranny. Americans aren't going to invest 250k or more to become docs in a system that hammers them down. Get used to even more Somalian, Filipino and Latin American docs with degrees that amount to BAs in this country. They will consider their "high" pay and relative respect in the land of plenty as a big step up. Those who would have been your American docs will go elsewhere. Let's hope what's already in dire staits, doesn't get worse. Take a stint in a big city hospital, and youll see wht I mean...the staff often doesn't even speak adequate English.
None of this is written in stone...it does NOT have to continue this way. But if patients remain ignorant, checked out, and don't take control of their care, speak up to docs with authority, throw out politicians who sell out to pharma, and import low quality physicians from overseas who drive wages down, then it will continue to get worse. YOU have to change this. Business and government will only screw it up. It's their profit, not your well being they have in mind.

QUOTE "I am about to lose my

QUOTE "I am about to lose my mind from the pain. I have been diagnosed with fibromyalgia, rheumatoid arthritis, depression, PTSD, 3 bulged disks in neck, 8 in lumbar and I think three more in middle, sleep apnea/narcolepsy, ADHD and was hit by a truck while walking my bicycle October 16, 2010. I hate going to doctors so after I was hit, I just withdrew, I saw my psychiatrist and he prescribed Prozac 40 mg, Adderall 30 mgx2, and Ativan .5. I finally went to a primary care doctor (a jerk) and was referred to neurologist/pain management. I had to sign the GAG Contract and then tested positive for pot. He had given me 60 lortab 10 but has now taken them away because of the pot and says I have to be tested and be clean for 6 months before I can have any more. I take ibupropen as I can but it makes my stomach burn if I take very much. (I say he, actually I have seen the doctor once and then have been stuck with a young snotty PA) She prescribed Skelaxin with makes me tire and doesn't help, it counteracts the adderall, and now prescribed Meloxicam. I took one pill wirh food and my stomach burned for a week. I will do whatever they want if someone will just help me with this pain. I am 67 years old and it sure feels like I am being abused because I can't get some pain medication. Sometimes it feels like no one cares how much I hurt or if it destroys what life I have left. What can I do. I want to live life and enjoy what I have left but I am worn out from the stress of dealing with this."

================================================================
Rena,
I'm sorry about your pain. But I can understand the Doctor's point of view. There are so many red flags just in your description of your situation, I can't imagine how many are in your files. To have that many bulged discs, you would not have "withdrew" with adderall (what does that even have to do with your injuries?) & a tiny bit of ativan. You would not have been able to walk! 11-14 bulging discs!!! Unless they are all so incredibly minor that they healed (as bulging discs usually do) over time. And maybe it was a typo, but you said you have 8 bulging discs in your Lumbar which is impossible, considering there are only 5 discs in your Lumbar Spine. You must have addiction in your past or written all over your face because to make you sign an "Opiate Agreement" I think it's called, they must have had good reason. It didn't seem like you were that concerned about your pain/injuries when you first had them. It seems like you've run out of "good deeds" from you Psychologist (who IS a Dr, BTW.) If you were able to go through the worst of the pain without pain killers then why would you need them now? YOU feel "abused" because you can't get pain meds? I am SURE you can get the pain meds you need, it just seems like you want more than you need. Obviously, your tests & MRI's & anything else show that you should be in mild to moderate pain. More likely closer to mild, to be prescribed Lortab 10's (not very strong) & then have them taken away. They NEVER would have taken them away if you truly NEEDED them for pain. What I think you should do, is ask your Dr. about trying something like Toredol. It is a wonderful anti-inflammatory, non-narcotic pain med. It works GREAT for me & I have a severe, permanent disc injury (L5-S1), severe nerve damage, muscle spasms, sciatica, I cannot walk for more than a block without debilitating pain & I need to use a cane to walk that block. I also have PTSD, Fibromyalgia & severe depression. Obviously I am also on narcotic pain meds, but my situation is much more serious than yours. I am only 35 and the 2nd surgery ruined me for life. It will only get worse, You're lucky you had bulging discs, they go away the majority of the time. They should be gone by now! And I am sorry, but I am offended because, in my humble opinion, people like you ruin it for all of us people who are TRULY in severe pain and TRULY NEED the medications to LIVE. IMHO, you sound like a drug seeker. That is why most people with chronic pain get those looks. If we have an emergency situation, we have to choose between dealing with the severe pain or going to the ER & getting treated like a drug addict. To hear the whispers behind our backs, always trying to "catch" you in a lie, even though there are none, and the careless, very poor bedside manner. Now I bring every MRI report & surgery report & everything else I have with me so they can see for themselves that I am not like those pathetic drug seekers. But I still have to wait in the waiting room for hours while they keep bumping me back, assuming that I am only there for drugs, & that is a horrible feeling, an uncomfortable situation & doesn't help my pain in any way. I am glad Drs have come up with these contracts. All you have to do is abide by it & you can get the help you "need". 67 years old, may I ask why you are smoking pot? If it helps with your pain then you don't need pain meds do you? Unless, of course, you need them to trade for the pot. Hence, another reason for the contract. With the amount of red flags I see just from your post, I am surprised you got a Dr to give you anything narcotic. And pain specialists hand out WAY too much medications in my opinion. So, please, don't feel like you are being abused. You say nobody cares about your pain, but YOU yourself didn't care about your pain when it happened! If you want to live out & enjoy what you have left, then STEER CLEAR of ANY kind of NARCOTIC pain med. See if they will give you Toridol & explain to them that you do not want ANY narcotics for anything. Adderal at 67? You may be right, you may not have much time left. Of course, this is my opinion & I really don't know much about adderall & age. But I know how addicting it can be. I know it can ruin lives if abused. I live in Hawaii (Maui) & medical marijuana is legal here as in MANY other states. Pot is a great pain reliever & it obviously works for you so why don't you get a Medical Marijuana license? That way, you can enjoy gardening your own plants & have the pain reliever you need! Sound good?

Quote: Adderal at 67? You may

Quote:

Adderal at 67? You may be right, you may not have much time left. Of course, this is my opinion & I really don't know much about adderall & age. But I know how addicting it can be. I know it can ruin lives if abused.

Why not Adderall at 67? ADHD doesn't go away so why should the treatment?

Rena... ...A Gag contract and

Rena...

...A Gag contract and a Pain Med / Narcotic Contract are not the same thing.
...Your post does red flag as a drug seeker though. The drama is over the top , over exaggerations are total tip offs to doctors and ERs everywhere.
...IF you'd been busted up as bad as you claim, you'd have never been able to retreat with "a little ativan" or however it was that you said it. Granted, the pain could have gotten worse over time but I doubt the docs buy into it.
...Listing your diagnoses over and over and adding to an already huge list doesn't influence anyone into giving you more drugs. It actually makes you appear more desperate and drug seeking.
...If you did indeed sign a pain contract and then tested positive for pot....THAT IS YOUR OWN FAULT. It is part of most every pain contract that if you test positive for any illicit or otherwise not prescribed drug they can immediately discharge you from their services. You HAD to have known that...yet you risked it and now want to claim they're abusing you. No M'am...they arent abusing you...YOU are abusing YOU AND THEM.
...You say you'll do whatever they want if they'll just give you pain meds? ARE YOU KIDDING ME? Do you have any clue how needy that sounds?(Considering they were giving you the meds until YOU SMOKED POT and violated the contract you signed) IF that remark was true...that you'd do anything...then why did you smoke pot?..you knew it was in violation.

Look...Ive suffered for 20 years or more with Chronic pain, Ive had a broken back twice, a fractured neck and surgeries counting to more than 20 over the years. Yeah. I KNOW pain...unrelenting severe pain. I work every day. I shop, I cook, I clean, I entertain, I have a social life. I take pain meds most every day and I stay busy. What I dont do is I dont violate the pain contract I signed, I dont use more meds than prescribed, I dont smoke pot, I dont drama-fy my pain. Chronic pain et al is not the be all end all. You can have a life even with chronic pain, back or neck problems etc. You just gotta see beyond your own desperation.

This sounds harsh, I know. But it is people that act as you have that cast doubt and suspicion on people that are in true unrelenting pain and MUST work even though they hurt severely every damn day.

***SALLY.... You say the doctors wouldnt have taken her pain meds if she needed them? That is not accurate. That is exactly what these doctors and PM docs are doing all over the country now.......especially WHEN PEOPLE VIOLATE THE PAIN CONTRACTS THEY SIGNED.

...Also You do NOT necessarily have to have drug seeking or drug addiction in your past or in your files or "written on your face" for the doctor that prescribes Narcotics to require a "Pain (Opiate) Contract". They are all doing it now to cover their collective a$$.

You also state that she could get the meds she needs but she must want too much. That also is not true. Where have you been? Doctors and PMs docs are limiting everyone anymore and more so in certain areas of the country.

Trying to tell a doc or ER that You dont want any narcotics or pain meds but want them to stop the pain is a MAJOR red flag because then the doc / ER staff are left to convince you of the need for narcotics / pain meds to help your pain. So now they do their job and give you the narcotics et al, and that absolves you of the drug seeking side. (because remember, you said you didnt want them so now it's not your fault, they MADE you take them) (Most ERs are well aware of this tactic now)

Toradol is nothing but a junk med and does nothing for moderate to severe pain. It's only preferred because it doesnt give you a buzz and its considered non addictive.

Also...look up the term Hyperalgesia...

~~eta: Ive worked in this area for 15 years, it does cause you to become jaded and cynical and for that I apologize, kind of

Hi Flashback, and everyone on

Hi Flashback, and everyone on here.

Flashback, I understand how you are feeling, you are not alone. I am from the UK and have chronic pain. It is tiring, it is all i can think about. I miss being able to concentrate, learn, enjoy interactions with people, plan ahead, relax, e.t.c...

Honestly, i'd be surprised if there were many more conditions out there that are more difficult to cope with on a day by day basis. Not only do we have to suffer with pain all the time, but unless we have family money to fall back on, a really understanding employer, or an unusual amount of will power, we lose everything else as well.

Without this condition, I would have a good job, be living with friends, e.t.c.

It really seems to be all or nothing. If you are healthy you get it all, if you are ill it's a fight to keep scraps.

The chronic injuries causing my pain were both sport related and affected my back and shoulder/ribs. Sometimes I'll be sitting at a desk and if I hunch for too long, i'll feel my shoulder/rib area move out of position, and then they pain will start to build until it is all i think about. Annoyingly, it never spontaneously goes back into position. I see an osteopath who puts it back into place, and instantly i'm a new person. BUT i havent worked out a way that I can strengthen my body to keep it in place. So I am always scared of it slipping.

Does anyone have this injury, and has found a way to keep it stabilised?

Society needs to adapts itself around those with chronic pain. Just like houses and workplaces has wheelchair access, we should have adaptions.

I know this was a long time

I know this was a long time ago you posted but I did the same thing. I have taken a small dose of methadone for the past 6 years everyday and probably will for the rest of my life. It has virtually no effect on me except for the fact that my daily pain is gone. it really saved my life. I can now live almost completely normally. Of course it still has a stigma attached to it but that's okay with me! I don't go to a methadone clinic, I go to a Pain clinic associated with one of the biggest hospitals in my City. Everyone there gets drug tested so if there are any drug "seekers" they are weeded out pretty fast.

Helloooooooo Ratemds.....

Helloooooooo Ratemds..... I've been gone a while. But today I logged in 2 check a dr for a friend. This chronic pain forum was going, so I read THINKING I would read and move on. I made it to Rena's post before I felt I HAVE to speak up FOR HER.

First of all, OK some of what others have said in response to her post IS reasonable. BUT, I find it a WEEE bit offensive that everyone ASSUMES she is drug seeking, an addict or she is INTENTIONALLY effing things up! She stated she has ADHD maybe that is why she sounds a bit mixed up or uninformed. (no offense Rena, I am trying to defend you though) Not to mention the PTSD and depression. Maybe she forget her Adderall today and she is not thinking clearly enough to be LONG WINDED and describe things in SUCH detail that all of US complaining about OUR aches and pains believe her. MAYBE she THOUGHT that since WE are all talking as equals suffering together that she could go straight to the point and be believed. Or could she have been SOOOOO depressed and in SOOOO much pain that she couldn't find the wherewithal to say much more in this post!

First of all...the woman SAID she has ADHD... THAT could explain her not being correct of specific with the amount of bulging discs she has. But to be honest the discs SHOULD have boo to do with whether or not she has pain.... AM I the only person who read that she ALSO has Rheumatoid arthritis?????? Maybe you guys are getting it confused with degenerative Arthritis. Rheumatoid is MUCH MUCH more painful, and causes from what I know, inflammation all kinds of places in the body! It is the Arthritis that makes people start deforming with age you know crooked fingers, toes etc.... it can be VERY debilitating and affect you ALL OVER THE BODY! Google it.... NOT a pleasant disease.

Second of all, she has also been diagnosed with Fibromyalgia.... YES we all know that it is also known as a condition doctors label you with if they A: don't know WHY you have pain or B: don't REALLY believe you but feel they must give you a diagnosis of some kind. And society as a whole doesn't put much faith in Fibromyalgia. But she said she has the diagnosis, so shoot couldn't you give the woman a break?

She was hit by a car in 2010, SHOULD her discs actually be "healed" by now? (Actually THEN as she posted this in 2012!) I had and still HAVE bulging discs in my neck and spine at least since 1999... STILL THERE not healed! So obviously they don't ALL heal. Maybe for most. But in my case they are bulging probably due to my posture and stance because of the deformity in my leg which causes my hip to turn out 60 degrees. Obviously causing mine to NOT heal due to fact they are CONSTANTLY being pushed/pulled against due to my leg. So in one paragraph it is WRONG to ASSUME anything about her! Maybe her RA makes her stand wonky and her discs aren't healing.

As for the Pot.... she said she was given Lortab AFTER signing a Narcotic Agreement, THEN tested positive for pot. She ALSO said she only saw the doctor ONCE. So if you think about it I would say that means she was blood tested the SAME day that she was given the Lortab. So MAYBE she had been SELF MEDICATING the pain not knowing about the way pain is treated these days with narcotics agreements and monitoring. MAYBE she had NO CLUE they would test her for drugs THAT DAY and maybe that they did! So then I would assume when she went for her 2nd visit the PA came in and said.... no more you failed drug test. For all we know when she singed the pain contract she thought they would drug test her LATER, maybe she believed that whatever blood or urine she gave that visit was routine, after all its her 1st visit. Doctors routinely do blood/urine tests. So, once they gave her the rx, AFTER she signed the agreement she thought that now with pain meds, she wouldn't self medicate with pot anymore, and WOULD follow the pain contract! WE DON'T know she NEVER said she smoked AFTER the pain contract was signed. I Know that I just spouted out a BOATLOAD of MAYBES. But people consider yourself and what YOU went through before even half decent pain control was given to you.... I don't even want to THINK of what I did and HOW I felt before I got PROPER pain treatment..... Especially the first few years when my BRAIN was overwhelmed by the constant mind blowing pain!

Also, for a few of you to attack the woman who appears to be here posting her suffering for the FIRST TIME and FELLOW pain sufferers to label her as drug seeking is SOOOOO WRONG!!! And SOOOO hypocritical! You complain that YOU have to take MRIS to ER when you go because YOU are considered to be possibly drug seeking, yet you turn around and jump after this lady treating her as YOU don't like to be treated. THAT IS WRONG! I am not saying that all of her PARAGRAPH made sense or she came across 100% innocent, but for the love of Pete, WE ALL NEED SUPPORT and I didn't see anyone say ANYTHING kind or comforting to her at all. THAT IS NOT THE WAY WE WORK HERE NOW IS IT????? Maybe I was better off not being here for a while because if this is what Ratemds has become.... I am TRULY sad. This was a place that saved my mental bacon on more than one PAINFUL occasion, and I hate to think a 67 yr old lady can't come here and have people SUPPORT her!

Someone should have responded saying something like this:
\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\
Rena, your statement doesn't make complete sense, do you mind explaining in a little more detail? Right now it seems a wee bit sketchy, so I think MORE DETAIL might help us understand and be able to support you and help you get the help support and or information you need.

Did you test positive AFTER you signed the contract? Or had you smoked pot BEFORE the first RX was written? Did you KNOW you could NOT smoke pit AFTER you signed contract? Did you tell the doctor you smoked pot BEFORE you signed contract? Do you NOW understand the ramifications of smoking pot while under contract?

Have you seen a Rheumatologist? They are the BEST people to help with the chronic pain from Fibromyalgia and RA.

Why did you wait so long to see a regular doctor for the pain? Is that related to your PTSD etc? Or could it be financial?( MOST states provide free or sliding scale MENTAL HEALTH care but NOT many do the same for BODY health, maybe she simply couldn't pay for ANY doctor) Have you tried a support group?

Rena PLEASE do not be distressed you have come to the right place, while you MAY not get the physical pain relief you need on this site, you can get mental support. Most of us have been in your shoes and understand HOW saddening maddening and distressing pain can be... how can we support YOU?

\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\

We don't KNOW her education level, her socioeconomic situation and just decide because she MAY not understand the medical issues she has that she MUST be a drug seeker? To top it off how many of us KNOW seniors who don't ACTUALLY understand their own medical conditions and simply TRUST what the doctor tells them? I am truly sad to see that you guys just jumped on this woman after ONE FREAKING PARAGRAPH! I see she has not responded.... it seems you have run her off! Way to go people! How would you like it if the first time you posted here, at 67 years old people labeled you as drug seeking and blew you off DENYING you support! The woman said she had PTSD and DEPRESSION and you guys jump her.... WHO THE HECK KNOWS WHAT BECAME OF HER AFTER THAT POST! WRONG!!!!

Again I am NOT saying her post made COMPLETE sense... but if you look at some of my posts.... they don't make sense either! LOL I KNOW I have come here and babbled crap that later even I read and said WTH did I write? All I am saying is we can do better! Almost ALL of us have been mislabeled misdiagnosed and mistreated.... let us PLEASE not do the same to other people UNTIL you KNOW they actually ARE drug seekers! (honestly before most of us got got medicinal pain control weren't we ALL drug seekers?) She deserved a LITTLE more patience and care and concern.... I HOPE and PRAY that was a fluke and Ratemds has NOT become an attack each other website... I am going to tell myself that is WAS and it is still a Supportive community where people DO have healthy debate but ALWAYS with respect. And HOLY SMOKE' I just looked at the clock.... I THOUGHT it was like 10:30.... it's 12:45.... I gotta get to bed...... OMG! This place can be a freaking time warp!!

Hope my old friends here are doing okay and to hear from you.....

Thanks for listening,
Milo

P.S. I am 42 years old and I take a drug like Adderal EVERY SINGLE DAY for my Add..... So YES you DO take ADD meds at 67... it IS at least partially a chemical imbalance, and doesn't go away because you turn 18. AND she never said she took Adderal to cope with WITHDRAWAL from anything OR that she was addicted to ANYTHING! She said she WITHDREW FROM LIFE DUE TO PAIN AND ILLNESS! And from what I read she got Mental healthcare and THEY convinced her to TRY seeing a doctor!

Hi I dont have your condition

Hi I dont have your condition but have had severe lower back pain including terrible sciatica issues since a bad car accident 8 years ago.
I took my painless life for granted until the incident occured which led me to a life full of limmitations. I dont know which is more disabling,
the pain, or the sleep I lose in dealing with it. For many years this pain has hugely effected me socially, mentally and physically.
I have ellergies to most pain prescriptions and the side effects warnings scare me to death. Outside that, physio and massage theropies only gave
short term partial relief.....and is very expensive.
Somebody gave me a few sticker pain patch things the other day that claims to be 100% natural and organic to try. I applied it to my back. After 3 hrs
it didnt do a thing but decided to leave it on till the the next day. Watched a 2hr movie before going to bed. Got up to go to bed and NO MORE PAIN!!!
I couldnt believe that after sitting 2hrs that I could just get up at ease with non of the usual stiffness and great pain. That night I slept like a
baby for the first time since forever. The next day....non or very minimal pain....and yet another good sleep. Day 3 the patch was still on but pain was
coming in slowly but after replacing this patch with a new one the pain once again disappeared hopefully for a few more days or at least till I can get more patches.

I found this blog while

I found this blog while googling chronic pain desperation and I'm in the same boat. I've had back problems and been taking medication for almost 10 years. I had chemo in 2010 and the neuropathy afterwords was horrible and has gotten worse now traveling from my feet up to my hips. So while I go through another work up to find out if it could be cancer anywhere else, the problem remains I am either in too much pain to do anything or I'm on enough pain medication to be able to walk that I'm in such a daze I can't go anywhere do anything have any friends work or have any sort of a life. I'm sick of it. This is not living. This is ridiculous. I just don't get what I'm supposed to be doing sitting around by myself a day after day year after year. I have fine-tuned my pain management with great doctors and many techniques. Pain just doesn't magically go away. I'm 60 and live by myself and I just am at the end of patience and hope for a better day.

Have you tried

Have you tried Neurontin/Gabaentin for the Neuropathy? Another drug I take which I find helps with it is Zytram which is time released Ultram. Also, are you in USA or Canada? In Toronto, I did 2 different Pain Management classes based on the Boston University medical center's program for Mindfulness Based Stress Reduction. The program has been reworked to help deal with long term chronic pain. I know it is not used too much in the States for pain treatment.... but it does help. Mind you I still take a boatload of medications to ease the pain. But, the classes helped me learn how to distract my mind from focusing on the pain... AND how to use my mind to help relieve the pain. They had a group therapy type setting in one class, and the 2nd was more of a yoga setting. But BOTH taught using mind over matter.... AND meds.
And LostInpain.... we ALL have been suffering for years. I don't have anything to say to help you cope with that. Because personally I am STILL coming to grips with the fact that I have suffered myself SOOOOOOO many years. Actually just last night I had another bout that was so bad all I could do was cry.... LITERALLY! I'm just out of my 2nd failed marriage partially due to my health/pain and my husband's inability to understand. No one except someone IN YOUR SHOES can understand. That is also where the classes came in handy for me. I met several people and became friends with them outside of the class. I am STILL VERY close with one, now almost 4 years later, and we speak at least weekly. I suggest you look into a pain class like that. It really is a good place to learn, grow and also to simply be around others who are like yourself.

If you are in Canada, I can give you the information on the classes I took. But if you are not, I suggest you mention the Mindfulness Based Stress Reduction to your Pain doctor, and ask if they have heard of it being used for pain. If you get no results there, try starting with something like a yoga class for beginners, or ask your doctor for referral to something like it. Also, ASK if there is a group therapy in your area for chronic pain.... it can really help.

If all else fails.... PLAN C: return to ratemds, pour out your heart and soul to us and we will listen, support and help wipe your tears! I have said this before but HONESTLY this place truly did help me survive through part of my most painful distressing times. I found this place while trying to look up a doctor's history...you just never know where you may find support. And support is very important when you suffer. Let me know if I can help you in any way. I also live on my own now, I totally understand how you feel. Smiling

Milo

HELP!! will I ever find a

HELP!! will I ever find a good family doctor?? I have had 2 back surgeries over 15 years ago and just 3 years ago was in a car accident and was hit by 3 cars. I live in pain everyday and have tried just about every pain medication there is. NEVER GO ON METHADONE! It is a short term medication for people trying to get off medications. IT DOES NOT HELP WITH PAIN. I gained well over 60 pounds and lost just about all my teeth. I would rather live 10 years less and have a medication that helps then to be a slave to methadone. I wish I knew then what I know now. Most days I want to put my head through a wall or worse. There is no help for me. I have tried holistic pain meds (dosent work) been to pain management (which does help) however you can only stay on the program so long. Patches helped but got tired from using lighter fluid to take off the glue residue. That was over ten years ago which I am sure they have something now to take off the glue. I was offered a doctor but turned him down as he did not believe people live in pain everyday and suggested Tylenol 3. It makes me so mad that some people abuse meds and yet people like me can t even find a family doctor. I don't get it. Will I ever get pain relief...LORD HELP ME!

I live in Ontario and I use

I live in Ontario and I use Medical Marihuana there are different strengths for your pain I have centre and foraminal Spinal Stenosis if I did not use Marihuana I would be totally disabled.also ask your Doctor about APO-GABAPENTIN 300MG 4 times daily this also had a big change for my chronic pain your oxycodone hcl &hcl acetaminophen5&325MG 2 every 4 hrs you can function on these two without being groggy. It will change your life I also have a large dog that I can take for a walk now I am not angry anymore because of family not realizing how much pain I was in, life became normal. please log onto www.peacenaturals.com regarding med.maihuana and you will understand.Trust me this information will change your way of life I lived with this pain for years before I found out the right medicine to take please take my information very seriously it WILL work for you.

Milo - thank you for the

Milo - thank you for the recommendation to join a support group. I think that's a very good idea because I'm too isolated and the pain gets in your head. Since I looked healthy on the outside, my friends don't understand when I cancel plans 90% of the time and I'm not included much anymore. It's exhausting to be out anyway so what the heck. I'm in the US but surely I can find something. I, like many many of you am absolutely worn out from dealing with the pain. Any other hints on how to create a life within these new constraints would be appreciated. And please keep in mind I'm by myself so anything that takes extra effort like having a pet or doing a house project is off the list at this time.
I joined a couple of Meet Up groups and haven't been to one event yet. Maybe I should try to create a chronic pain Meet Up group and maybe one or two people will show up half the time LOL
I use a gabapentin/lidocain/? Ingredient cream from a compound pharmacy since orally isn't doable. Helps some.

Hi everyone, Its great to

Hi everyone, Its great to meet you. I have something to say about what is being said today. IMO We do have to get organized. It is in writing. The pharmacy automatically via computer for every controlled substance sends our records to the BIG BROTHER IS WATCHING YOU (my terms), called the CURES database(actual name). Ask your pharmasist if they are reporting to the CURES database (USA only). We cannot access our own CURES records. But it is issued to the dr. who is not allowed to give it to you. If you go to too many doctors, the dr will reject U on the basis of too many dope fiends & we get labelled. We have no option to deny it or defend ourselves. I've called them. ""This is a recording. We don't have the funding to take calls" (paraphrased) We are labelled, & denied pain meds for life. This is not the fault of the dr They are scared out of their miinds. The DOJ, without notice, goes into the dr's office & audits our , yours & mine private medical records . If the dr. isn't treating you according to the requirements of the DOJ, they are threatened with losing their licence. Look at this picture: The Dr's & pharmisists have become law enforcement & law enforcement via the DOJ is prescribing medication for us. What's wrong with this picture? Call me crazy but don't we want to be treated by trained medical personel instead of law enforcement?
How many laws are being broken here? Off the top of my head: HIPPA, 4th amendment, Patients right to records, secret data bases by gov't on citizens, Can anyone add?
I would not want to be a dr. in this situation. If I was in school, starting on that path, I would quit now. Who can work under that kind of constant threat. This is not paranoia. I have been researching it. This is fact. Sad
Then, some dumb movie star (no offense intended) overdoses & the media makes & ruckus äll presciption drugs are bad! they are gateways, suicide etc"& who suffers? People who are not celebrities & are on the verge of suicide bcs they cant'get the medication they need to relieve our pain. People who want to be contributing , working members of society. I didn't have time to write her , but I hear oprah is going to do an anti drug show. We are really screwed. Has anyone heard about it? Anyone willing to write her? I think a deluge of letters to her & all media would be helpful. The media, when they talk about it never show the other side. I would be willing o appear if a spokes person is needed. I've doné a lot of that, have developed a thick skin & am willing to take the backlash you get when you go public. I ust have to get through the next few months with what's on my plate right now.
So think about it. We are being treated by law enforcement & the media, while Drs. are afraid to open their mouths. They are torn between trying to help their patients & saving their own skin .
I have a lot more to say on this subject but I don't know how many characters you can post here & I'm running some deadlines anyway.
I'm having trouble getting back to the post where someone said she got some kind of a patch from someone & it relieved her pain. Could you pls be more specific? It sounds like a Fentanyl patch. I''m on it. It (with other treatments some of which I devised) gave me my life back. BUT PLS READ & HEED.........
It is addictive . If you haven't set yourself up with a dr & an ongoing supply, you will go through withdrawal & that is not fun. Simply reducing the dose had me in withdrawal for over a year. Kind of like what you see in the movies that we used to call the DT's. If you really have a patch that is natural I'd love to have the name. I'll switch tomorrow, Pls post it. I have spent years struggling to get the right dose so I could think clearly: Pain vs brain.
Back to gov't interference. BTW this has nothing to do with Obamacare which I think is a good thing. It is not gov't interference in treatment. Only payment & cutting down on the greedy insurance companies.I worked on the Obamacare comittee for 4 years. They didn't do what I wanted them to do (Canadian single payor system) but its still a good thing imo. Big Brother was there before Obamacare. Feb 2012, I think. One of the few dates I remember. Isnt'that strange? Yes, we definitely need to organize. If anyone is up for organiziing,& has suggestions, pls count me in .

One more comment. I spent years getting just the right meds to get me out of a wheelchair . Last week I go to pain dr who is a
good guy.He reduces my meds. me: Is that a medical decision or a political decision? He: We have to adjust to this environment.
So I too have a gun ready to point at my head bcs I don't want to go back to the wheelchair & the pain.
I am remodelling my house to accommodate CaringTown. CaringTown is a center for training service dogs & training trainers. If anyone wants to look at what I'm doing when I was in the planniing stage go to http://www.tinyurl.com/JoyChariot You will see my dogs pulling me in my dog chariot. That was part of my process of getting out of the wheelchair. I had to look at how my illness was serving me. I realized that the only thing I liked about the wheelchair was my dog pulling it. I substituted the dog chariot & made it fun. It may also have been fillmed before I was on fentanyl, so I wasn't much able to walk at that time. Anyway, tell me what you think. I love feedback.
Its been great meeting you all & reading your excellent, descriptive, articulate posts. You are an intelligent, knowledgeable, ambitious group, just to be alive. I know how difficult it is & how hard you all are working to find answers. Puppy Love from InventingJoy & Furry Folk

tippytoes wrote: Hi everyone,

tippytoes wrote:

Hi everyone, Its great to meet you. I have something to say about what is being said today. IMO We do have to get organized. It is in writing. The pharmacy automatically via computer for every controlled substance sends our records to the BIG BROTHER IS WATCHING YOU (my terms), called the CURES database(actual name). Ask your pharmasist if they are reporting to the CURES database (USA only). We cannot access our own CURES records. But it is issued to the dr. who is not allowed to give it to you. If you go to too many doctors, the dr will reject U on the basis of too many dope fiends & we get labelled. We have no option to deny it or defend ourselves. I've called them.

California’s Prescription Drug Monitoring Program (PDMP) is called the Controlled Substance Utilization Review and Evaluation System (CURES). It is not (yet) nationwide, though calls for such a system are being made.

It's a database of prescribing by doctors for doctors, and designed to thwart double doctoring.

Most provinces in Canada have a similar system, owned and operated by the Colleges of Pharmacists. Access to it is provided to doctors and hospitals. It's nice to know that if you end up in an ER with MAO inhibitors in your system, contraindicated agents won't be administered. It could be life saving.

Thx 4 explaining it. That may

Thx 4 explaining it. That may be the purpose. But the purpose is being abused on a whole lot of levels. IMHO (not that I've ever had a HUMBLE opinion)PUppy love from Inventing Joy & Furry Folk

Dana, could you please find

Dana, could you please find the name of the organic pain patches? I have tried almost everything on the market, but I've never tried anything organic....I would love to try it....thank you.

I am a 46 year old male and I

I am a 46 year old male and I cant cry either from the same medication. I have to watch a movie that makes me tear up. I am depressed right now and can't get over it. It is depressing in itself. I lost my girlfriend, she promised me things, lied, liked spending my money then im supposed to buy her husband presents I couldnt even cry, its all my fault anyway.

To Mrx99 Thank you that's

To Mrx99
Thank you that's exactly what I was looking for. I have been on OC and for break thru Perc for a long time. I can't take this pain any longer. My meds simply don't work any more. I had talked to my husband about talking with my doc
about changing to the Slow Release Morphine? I was in a very serious car accident at age 18. Got a broken neck that
the hospital did not catch. I have a triple dose of OA and
RA the OA has set up in my neck and the bone behind my ears. I live with the earache and headache everyday and night of my life. I don't get much sleep, which makes me
cranky. It's a constant severe pain. Not just a nagging pain a severe pain! I don't know what I'm going to do. It's like my life has come to a screeching halt. I don't feel like doing anything. It's draining the life right out of me!

vickylanew wrote: To Mrx99 I

vickylanew wrote:

To Mrx99
I had talked to my husband about talking with my doc about changing to the Slow Release Morphine?

... the OA has set up in my neck and the bone behind my ears. I live with the earache and headache everyday and night of my life. I don't get much sleep, which makes me cranky. It's a constant severe pain.

Mrx99, your pain sounds close in nature to mine, which was the result of a surgical screw-up. I often have to sleep sitting up in a chair, something to which you may relate.

I've found SR morphine (with a IR morphine for breakthrough pain) to be very beneficial for the neuralgia in the neck as well as bone pain. Slow release hydromorphone, a morphine analogue, may provide even greater benefit for bone pain. I also find that Baclofen, a muscle relaxant, works well for the neuropathic pain in the soft tissue.

Sorry to hear your story. I

Sorry to hear your story. I understand your situation. Tolerance for pain varies from person to person. But, no one should be compelled to suffer with “chronic pain,” in view of available medical ways and means, which are in disposal of every competent and caring physician. I think, your physician has an ethical obligation to administer remedy to relieve your “excruciating pain.” I tell this, based on personal experience. In 2012 I was rear ended on a motorcycle by a drunk driver, on a major highway in New Jersey, with differential speeds of about 40 mph, which left me with horrendous herniated lower spine and excruciating pain manifestations. I was lucky in two ways: (1) I did not dye in the middle of the highway and (2) I was treated by an extraordinary Orthopedic Surgeon, who is also an extraordinary human being. I say this, not because of the professionalism which she extended to me, but because of her compassion and courtesies, which manifested every aspect of the treatments which I received from her. Her name is Dr. Iris Drey.

Keemo0 and Katherine are so

Keemo0 and Katherine are so very right. the same is happening in Kentucky and Indiana. people in pain suffer from not getting the pain meds they need because of people who do abuse them then for people who need them the dr get in trouble and the pharmacy wont fill the scripts then you cannot find another dr. you cant get into a pain clinic without a primary dr referral then if your primary has got in trouble the pharmacy wont fill your scripts. I need to find a primary DR. in southern Indiana and get a referral into pain management. it much easier said than done once that you try to fin a new Dr you get accused of Dr shopping just because you need pain meds for chronic pain. Puzzled

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.