Bronchitis Without Cough???

Looking for a little reassurance if possible? Sad

I have had shortness of breath, sinus congestion, plugged ears, chest and upper back pain for about 10 days and after seeing a number of MDs who said I was fine (I insisted I was not because I can't breath!). I was finally sent for a chest x-ray, the results came back suggesting inflammation and bronchitis. I also had a blood workup and my WBC is below normal. I saw my MD who was on vacation and she said the WBC means it's viral.

Anyway my main question and concern is I have had bronchitis before and this doesn't feel the same. I have absolutely NO cough at all. Does this mean anything significant or is this common? Also from what I have read viral bronchitis should subside within 7-10 days but I have already had these symptoms which have only worsened for 10 days already.

The only thing I can think of is the fact that I didn't know what was wrong with me so I didn't rest and was in a panic state for about the last week (very stressful on my system I'm know) and do suffer from a severe anxiety disorder.

I am currently on a puffer and am trying my best to rest and not stress too much. Thanks for reading and any insight would be appreciated.

Hi Clover77,welcome to the

Hi Clover77,welcome to the forum. I have had bronchitis without the cough also,and it is painful. I do wish you the very best with your answers here,hang in there. Smiling

Thank you so much for the

Thank you so much for the reply Msdoodle! Smiling Paranoid I definitely am and I could not find a link anywhere with bronchitis and no cough. It makes me feel better just knowing that someone else has experienced the same.

Have a great day Clover77.

Have a great day Clover77. Smiling

Have you had a breathing

Have you had a breathing test to test your lung function? Dave

davemd wrote: Have you had

davemd wrote:

Have you had a breathing test to test your lung function?

Hi Dave, maybe Clover will respond later. I did see where she said her WBC is below normal. Is that what you mean?? I have had several of those test too,but I couldn't tell you the numbers. I asked my doc could I see my records before and he said NO,there is nothing in them for me to see. I wouldn't know what I was looking at or for anyway. Have a great night. Smiling

Clover, you may have

Clover, you may have inflammation of your bronchial tubes. In that case you'll need inhaled steroids as well as an inhaled bronchodilator. This is the same treatment you would get if you had asthma. Have you ever been told you have asthma?

Everyone is assuming that your shortness of breath is secondary to your cold symptoms. I don't know how old you are. It may be a heart problem that's being unmasked by your respiratory illness.

It's allergy season. Do you have allergies? That may be making things worse. Perhaps you need an anti-histamine in addition to the above medications. Or, remove a cat/dog from your environment.

As you can see, it's impossible to make the diagnosis and offer treatment over the internet. Raise these concerns with your family doctor.

Twain are you saying the

Twain are you saying the chest pain could be masked as a heart problem?? I have been having chest pains for quite some time now,they did a ekg (I think the name was) test like 8 years ago and was told nothing was seen. I just thought it was probably chest pain from the copd. The doc said something about chest wall pain,or something another. It's kinda worrisome because it just recently just started getting worse. It's only on the left side of my chest,like almost in the middle. Sometimes I get very sharp pains that stop me in my tracks. My right arm feels heavy alot of times. I thought that may be from exercising,but it's only my right arm. I tell my doc,but he never says anything. Sad Puzzled

Twain wrote: Clover, you

Twain wrote:

Clover, you may have inflammation of your bronchial tubes. In that case you'll need inhaled steroids as well as an inhaled bronchodilator. This is the same treatment you would get if you had asthma. Have you ever been told you have asthma?

Everyone is assuming that your shortness of breath is secondary to your cold symptoms. I don't know how old you are. It may be a heart problem that's being unmasked by your respiratory illness.

It's allergy season. Do you have allergies? That may be making things worse. Perhaps you need an anti-histamine in addition to the above medications. Or, remove a cat/dog from your environment.

As you can see, it's impossible to make the diagnosis and offer treatment over the internet. Raise these concerns with your family doctor.

I agree, very hard to tell what's going on over the internet, or over the phone. Nothing beats a good old fashioned Exam by the Doctor. Preferably with one that LISTENS.

Doodle, if you are really

Doodle, if you are really worried about this problem, I'd suggest that the next time you see your doctor tell him that you want to discuss only that problem - that you would like him to try to find out what's causing it, and what you can do about it. I'm saying this because sometimes (and I'm not saying that this happens in your case), a patient would mention chest pain at the end of an appointment, there wouldn't be time to assess it properly, and the doctor would just say in a reassuring tone "Oh, don't worry about it; it's nothing", when in reality, it was not dealt with properly. Hope this helps.

Have a great night.

Have a great night. Smiling

Clover,I'm truly sorry for

Clover,I'm truly sorry for hijacking your thread. I was looking around and found this too. Look at the response on the bottom. I know when I see my doc,he always listens to my lungs. http://answers.yahoo.com/question/index?qid=20071227153734AAgKvIR Also,I get upper respiratory infections. So I've been told. Maybe that is part of the bronchitis. Maybe something totally different. If you don't feel better soon, maybe see if your doc will send you to do the test where they put you inside this machine and have you blow a bunch of times in the tube. I don't know what it's called. The docs are right with their suggestions I believe. All the best. Smiling

No apologies necessary...you

No apologies necessary...you didn't hijack the thread all relevant to me too! And wow seriously thank you all for your replies and time! Smiling

I know it's nearly impossible to diagnose over the net but I'm one of those health researchers...who isn't these days? Eye-wink

Anyways, to answer a few questions that may offer more insight. I am 31 years old, a former smoker (almost 3 years smoke free), I have chronic Depersonalization and chronic Derealization. I have severe anxiety and panic issues stemming from not knowing what was wrong with me for a number of years. (The DP and DR caused me a great deal of stress!) At which time I had a fantastic doctor who has since retired. She had me tested for everything she could think of so most of the tests I had are at least 5-6 years ago. I had a number of heart tests, CT scans, etc.

Last year I was diagnosed with Celiac Disease and immediately went onto a very strict Paleolithic diet. My absorption improved almost overnight but I am fully aware that I now have a compromised immune system. Other than that I am very healthy, I had a full CBC, Cholesterol Test, Electrolyte Panel, Glucose, Thyroid and Celiac Panel 3 months ago and everything was perfectly within normal ranges other than that both my good and bad cholesterol were quite low. My Free T3 seems to fluctuate but was within normal ranges also. This most recent test showed my WBC count at 3 which my physician said was most likely due to the bronchitis being viral. However I have all of my tests copied to my psychiatrist and he found it suspicious that with sinus troubles at the moment as well as the bronchitis that this number was low instead of elevated.

I had bacterial pneumonia 9 years ago, bacterial bronchitis 1 year ago (which completely subsided after 1 week of antibiotics) and have a history of sinus infections but have only had 1 since quitting smoking.

I have never had a lung function test and maybe this would be my next step? I don't have allergies and have never had asthma. Currently all I am taking for the breathlessness is a corticosteroid inhaler. For safe measure as well I am on a 10 day course of antibiotics because I do believe that I have another sinus infection. (Generally I try to avoid antibiotics after years of overuse but feel this is an exception.) Unfortunately I gave my copy of the results to my physician but I wish I could remember the wording of the x-ray...something along the lines of "thickening of the lung walls indicative of bronchitis".

Still what is bothersome to me is that I am not coughing and no sputum whatsoever so if this is a viral infection how is it that it will supposedly go away without me being able to expectorate or even loosen some phlegm? And the only thing other than my described symptoms is the x-ray. I saw 2 MD's and 1 ND who all listened to my lungs and heard nothing. The ND said it simply sounded like I was breathing too shallow...no wheezing or crackling sounds?

Wow that was longer than anticipated...thanks for reading.

P.S. Thanks for the link Msdoodle!

Sorry just wanted to

Sorry just wanted to add:

DocMartin wrote:

I agree, very hard to tell what's going on over the internet, or over the phone. Nothing beats a good old fashioned Exam by the Doctor. Preferably with one that LISTENS.

I'm all for the good old fashioned exam but finding the right doc and one who actually listens seems to be a commodity these days.

Twain wrote:

Doodle, if you are really worried about this problem, I'd suggest that the next time you see your doctor tell him that you want to discuss only that problem - that you would like him to try to find out what's causing it, and what you can do about it. I'm saying this because sometimes (and I'm not saying that this happens in your case), a patient would mention chest pain at the end of an appointment, there wouldn't be time to assess it properly, and the doctor would just say in a reassuring tone "Oh, don't worry about it; it's nothing", when in reality, it was not dealt with properly. Hope this helps.

I agree with this whole-heartedly! I have to admit I am rather pro-active about my healthcare. When I have a concern I prepare for my visit because I don't want to waste my time or the physician's time and I never leave thinking oops I forgot to ask about (insert concern). I go in with a typed out list (so that the doc can clearly read it) of my main concern(s) followed by all of my symptoms, length of time and questions. So no I never add something at the end that could and should be assessed properly.

Clover77 wrote: Sorry just

Clover77 wrote:

Sorry just wanted to add:

DocMartin wrote:

I agree, very hard to tell what's going on over the internet, or over the phone. Nothing beats a good old fashioned Exam by the Doctor. Preferably with one that LISTENS.

I'm all for the good old fashioned exam but finding the right doc and one who actually listens seems to be a commodity these days.

Twain wrote:

Doodle, if you are really worried about this problem, I'd suggest that the next time you see your doctor tell him that you want to discuss only that problem - that you would like him to try to find out what's causing it, and what you can do about it. I'm saying this because sometimes (and I'm not saying that this happens in your case), a patient would mention chest pain at the end of an appointment, there wouldn't be time to assess it properly, and the doctor would just say in a reassuring tone "Oh, don't worry about it; it's nothing", when in reality, it was not dealt with properly. Hope this helps.

I agree with this whole-heartedly! I have to admit I am rather pro-active about my healthcare. When I have a concern I prepare for my visit because I don't want to waste my time or the physician's time and I never leave thinking oops I forgot to ask about (insert concern). I go in with a typed out list (so that the doc can clearly read it) of my main concern(s) followed by all of my symptoms, length of time and questions. So no I never add something at the end that could and should be assessed properly.

Hi Clover
I read your post and I know you are suffering but I just wanted to add my 2 cents here. This is internet and please do not be taken by any advice given by doctors here. You do not know who they are or what their qualifications may be or if in fact they are really doctors. I am not saying they are not but you never met them. Please go and see a doctor you know or perhaps you can search for one at your local hospital. This medical advice on the net is all wrong and can lead you into serious trouble. I am speaking from personal experience. I pray you will find the help you need and you will feel well again but this is not the place. Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites..I know of people who were seriously harmed from this kind of advice...please go to a real doctor and get the right help you need. Shandy

shandy wrote: Hi Clover

shandy wrote:

Hi Clover
I read your post and I know you are suffering but I just wanted to add my 2 cents here. This is internet and please do not be taken by any advice given by doctors here. You do not know who they are or what their qualifications may be or if in fact they are really doctors. I am not saying they are not but you never met them. Please go and see a doctor you know or perhaps you can search for one at your local hospital. This medical advice on the net is all wrong and can lead you into serious trouble. I am speaking from personal experience. I pray you will find the help you need and you will feel well again but this is not the place. Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites..I know of people who were seriously harmed from this kind of advice...please go to a real doctor and get the right help you need. Shandy

Hi Shandy,

I'm sorry that you know people who have been hurt by not only listening to advive sought from the net but apparently following it as well.

Although I appreciate your post and your concern and am assuming you are simply trying to warn and inform me and please do not take this in a rude way because that's not my intention but...I'm not an idiot.

I'm the main moderator of the largest medical site pertaining specifically to a condition in which I suffer and have been for the last 5 years. I know first hand (and all Internet users should be aware by now) that people may not be who they say they are, people create and post under numerous user names, etc, etc.

You say you have read my post so then you should know that I have seen "real" doctors and am continuing to do so and do not need to look one up at my local hospital? (I am very aware in how to research physicians and specialists and how to locate the ones who are accepting new patients, etc.) I am not and would not substitute something I read on any health forum from actual medical care...again the not being an idiot thing.

However I think you are making a very blanket statement by saying, "This medical advice on the net is all wrong." I'm sorry but I find this to be a very close-minded opinion. There is a lot of very useful AND accurate information out there if you know where to look. I have improved my health on certain conditions much to the amazement of my physicians and specialists and have even offered them new information due to research from the net.

Lastly, and again we must be aware that there are posers out there, but I would have to disagree with you that "really good doctors wouldn't be hanging around internet sites". That is a rather judgmental opinion and quite unfair to the actual MD's who just maybe are true to their profession and their oath and have taken time out of their busy schedules to offer advice (not medical care) to members on this site. You don't know their schedule, motives or reasons for being here nor do I so I would not make such a negative stereotype.

I am simply having a discussion with both MD's and other people interested or concerned in health issues...so I thank you for your prayers and wish you luck on whatever compelled you to come to this site yourself.

Take care.

Anyway...not to hijack my own thread, back to the topic at hand.

Hi again Clover, I had a

Hi again Clover, Smiling I had a lung specialist yell at me 8 years ago,and said I had 3 good years left. I'm still waiting for my die date. Shocked Laughing out loud I saw him a few times,then I switched over to his partner. I saw him for a little while,then he said my gp doc could treat me,and I didn't need to be seen at the specialist anymore. Have a great day Clover. Smiling

Hi Shandy welcome,I happen

Hi Shandy welcome,I happen to like the docs here and their advices here. Smiling Have a great day. Eye-wink

That is absolutely

That is absolutely horrible!!! Oh and stop waiting for your die date please. Eye-wink Incompetence is an awful thing to encounter and NOBODY (oops that was yelling, lol) should be yelling at you, ever!

I was using a steroidal

I was using a steroidal nasal spray for approximately 6 years but haven't used it in over 2 years and have never had WBC issues even when using it.

Starting around 21 I was having a lot of stress and anxiety issues and my resting HR was 140 BPM and I also had high BP 140/95. So for many years I had repeated tests, EKG's, Holter Monitors and Transthoracic echocardiograms. Obviously I had tachycardia and encountered skipped beats randomly. So no I have never had a cardiac stress test probably because all of these issues completely subsided once I removed the main stressors in my life. The last Holter was about 3 years ago but since quitting smoking and now with this strict diet my BP is actually on the lower side and my resting HR is in the 65 BPM range.

If this does persist though I think that would probably be a good idea because my heart no doubt took a beating for quite a few years there.

Thanks for the input. Cool

Thank you for creating this

Thank you for creating this thread Clover. Smiling And thank you Special,I don't think I have had one of those test,I am going to ask my doc my next appointment. I know I do have an expiration date,I just don't know when. I've heard that people can tell when they are getting ready to expire,do you think that's true?? I'm sorry if I make anyone uncomfortable. Sad

Clover77 wrote: shandy

Clover77 wrote:
shandy wrote:

Hi Clover
I read your post and I know you are suffering but I just wanted to add my 2 cents here. This is internet and please do not be taken by any advice given by doctors here. You do not know who they are or what their qualifications may be or if in fact they are really doctors. I am not saying they are not but you never met them. Please go and see a doctor you know or perhaps you can search for one at your local hospital. This medical advice on the net is all wrong and can lead you into serious trouble. I am speaking from personal experience. I pray you will find the help you need and you will feel well again but this is not the place. Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites..I know of people who were seriously harmed from this kind of advice...please go to a real doctor and get the right help you need. Shandy

Hi Shandy,

I'm sorry that you know people who have been hurt by not only listening to advive sought from the net but apparently following it as well.

Although I appreciate your post and your concern and am assuming you are simply trying to warn and inform me and please do not take this in a rude way because that's not my intention but...I'm not an idiot.

I'm the main moderator of the largest medical site pertaining specifically to a condition in which I suffer and have been for the last 5 years. I know first hand (and all Internet users should be aware by now) that people may not be who they say they are, people create and post under numerous user names, etc, etc.

You say you have read my post so then you should know that I have seen "real" doctors and am continuing to do so and do not need to look one up at my local hospital? (I am very aware in how to research physicians and specialists and how to locate the ones who are accepting new patients, etc.) I am not and would not substitute something I read on any health forum from actual medical care...again the not being an idiot thing.

However I think you are making a very blanket statement by saying, "This medical advice on the net is all wrong." I'm sorry but I find this to be a very close-minded opinion. There is a lot of very useful AND accurate information out there if you know where to look. I have improved my health on certain conditions much to the amazement of my physicians and specialists and have even offered them new information due to research from the net.

Lastly, and again we must be aware that there are posers out there, but I would have to disagree with you that "really good doctors wouldn't be hanging around internet sites". That is a rather judgmental opinion and quite unfair to the actual MD's who just maybe are true to their profession and their oath and have taken time out of their busy schedules to offer advice (not medical care) to members on this site. You don't know their schedule, motives or reasons for being here nor do I so I would not make such a negative stereotype.

I am simply having a discussion with both MD's and other people interested or concerned in health issues...so I thank you for your prayers and wish you luck on whatever compelled you to come to this site yourself.

Take care.

Anyway...not to hijack my own thread, back to the topic at hand.

Clover I had no bad intentions. I am glad you are taking care of yourself. I just thought your situation sounded more serious than internet help and I have my reasons for thinking this but I wish you only well. Shandy

shandy

shandy wrote:

.......Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites.....

Dear Shandy,

I am so delighted to see that you have joined the forum.

For quite a while I had doubts whether I was truly one of those "really good doctors" who are writing about, but now, because or your thoughtful definitive assertions, I no longer have to wonder any longer. You have clarified the matter for me, and I no longer have any doubts.

I only wish that you will be able to, over the Internet, help many more people through your profound wisdom.

Twain wrote: shandy

Twain wrote:
shandy wrote:

.......Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites.....

Dear Shandy,

I am so delighted to see that you have joined the forum.

For quite a while I had doubts whether I was truly one of those "really good doctors" who are writing about, but now, because or your thoughtful definitive assertions, I no longer have to wonder any longer. You have clarified the matter for me, and I no longer have any doubts.

I only wish that you will be able to, over the Internet, help many more people through your profound wisdom.

LOL

Clover77 wrote: shandy

Clover77 wrote:
shandy wrote:

Hi Clover
I read your post and I know you are suffering but I just wanted to add my 2 cents here. This is internet and please do not be taken by any advice given by doctors here. You do not know who they are or what their qualifications may be or if in fact they are really doctors. I am not saying they are not but you never met them. Please go and see a doctor you know or perhaps you can search for one at your local hospital. This medical advice on the net is all wrong and can lead you into serious trouble. I am speaking from personal experience. I pray you will find the help you need and you will feel well again but this is not the place. Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites..I know of people who were seriously harmed from this kind of advice...please go to a real doctor and get the right help you need. Shandy

Hi Shandy,

I'm sorry that you know people who have been hurt by not only listening to advive sought from the net but apparently following it as well.

Although I appreciate your post and your concern and am assuming you are simply trying to warn and inform me and please do not take this in a rude way because that's not my intention but...I'm not an idiot.

I'm the main moderator of the largest medical site pertaining specifically to a condition in which I suffer and have been for the last 5 years. I know first hand (and all Internet users should be aware by now) that people may not be who they say they are, people create and post under numerous user names, etc, etc.

You say you have read my post so then you should know that I have seen "real" doctors and am continuing to do so and do not need to look one up at my local hospital? (I am very aware in how to research physicians and specialists and how to locate the ones who are accepting new patients, etc.) I am not and would not substitute something I read on any health forum from actual medical care...again the not being an idiot thing.

However I think you are making a very blanket statement by saying, "This medical advice on the net is all wrong." I'm sorry but I find this to be a very close-minded opinion. There is a lot of very useful AND accurate information out there if you know where to look. I have improved my health on certain conditions much to the amazement of my physicians and specialists and have even offered them new information due to research from the net.

Lastly, and again we must be aware that there are posers out there, but I would have to disagree with you that "really good doctors wouldn't be hanging around internet sites". That is a rather judgmental opinion and quite unfair to the actual MD's who just maybe are true to their profession and their oath and have taken time out of their busy schedules to offer advice (not medical care) to members on this site. You don't know their schedule, motives or reasons for being here nor do I so I would not make such a negative stereotype.

I am simply having a discussion with both MD's and other people interested or concerned in health issues...so I thank you for your prayers and wish you luck on whatever compelled you to come to this site yourself.

Take care.

Anyway...not to hijack my own thread, back to the topic at hand.

Hi Clover,

Welcome! I've been reading your thread because I have a history of URIs, but fortunately nothing like what you and Doodle have been through.

Your reply is extraordinarily well-stated.

Rockygirl

Twain wrote: shandy

Twain wrote:
shandy wrote:

.......Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites.....

Dear Shandy,

I am so delighted to see that you have joined the forum.

For quite a while I had doubts whether I was truly one of those "really good doctors" who are writing about, but now, because or your thoughtful definitive assertions, I no longer have to wonder any longer. You have clarified the matter for me, and I no longer have any doubts.

I only wish that you will be able to, over the Internet, help many more people through your profound wisdom.


Go Twain!

JaneQPatient wrote: Twain

JaneQPatient wrote:
Twain wrote:
shandy wrote:

.......Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites.....

Dear Shandy,

I am so delighted to see that you have joined the forum.

For quite a while I had doubts whether I was truly one of those "really good doctors" who are writing about, but now, because or your thoughtful definitive assertions, I no longer have to wonder any longer. You have clarified the matter for me, and I no longer have any doubts.

I only wish that you will be able to, over the Internet, help many more people through your profound wisdom.


Go Twain!

Go Shandy:

When one has tasted

When one has tasted watermelon he knows what the angels eat. Laughing out loud

-Mark Twain

shandy wrote: Clover I had

shandy wrote:

Clover I had no bad intentions. I am glad you are taking care of yourself. I just thought your situation sounded more serious than internet help and I have my reasons for thinking this but I wish you only well. Shandy

Shandy I sincerely do not believe you had bad intentions in replying. My response was as a result of your assumption I was seeking ONLY internet help when I clearly said I had been to numerous doctors and have been following up with tests. There's nothing wrong with seeking others' input on a medical situation though.

Also I personally feel it unfair to pass judgment as you did in regards to the physicians on this site. As you cautioned me that I do not know them...well it's hypocritical that you do not know them either so to make a statement that, "really good doctors do not have the time to hang around internet sites" is an unwarranted attack on their character. Just my opinion...

rockygirl wrote: Welcome!

rockygirl wrote:

Welcome! I've been reading your thread because I have a history of URIs, but fortunately nothing like what you and Doodle have been through.

Your reply is extraordinarily well-stated.

Rockygirl

Thank you RockyGirl for your welcome and compliment. Smiling

Sorry to hear that you also have a history of URI's...they just suck, best word I can think of to describe it at the moment. I in no way feel that I have been through anything close to what Doodle is experiencing though. Sad I have to admit today I am not struggling for breath at the same severity as yesterday. Maybe about a 5% improvement which is a pretty big number when it comes to breathing. Still no coughing but I have a follow up in 5 days and in 2 weeks time will be repeating the x-ray and CBC regardless of how I feel...I've already established this with my physician. And some really good suggestions on how to proceed if I am not feeling major improvement by then! Eye-wink

There are ALWAYS some worse

There are ALWAYS some worse off than oneself. That I truly believe too. There is a sweet little lady that post here that was born with lung problems,that can't seem to get the proper care that she so deserves. My heart and prayers goes to her and others here too. Smiling P.S. When I use capital letters,it doesn't mean I'm yelling. I don't like that idea,whoever made it up. Shocked

I totally agree with you,

I totally agree with you, things can always get worse and there will always be someone who is suffering more...we're all unique and sadly suffer in our own ways. It's terrible when we can't get the care we deserve but must remain determined to find it! Puzzled I don't like the capital rule either, it only seems to apply when an entire post is in capitals. Otherwise it's how I simply emphasize. Cool

Clover77 wrote: Otherwise

Clover77 wrote:

Otherwise it's how I simply emphasize. Cool

Me too Clover. Smiling I hope you have a great day today.

I was trying very hard to

I was trying very hard to avoid this thread since I caught a flu the beginning of the week and didn't want the inevitable to happen which is the bronchitis that sets off the asthma that sets off the bronchitis... ect... You know, don't acknowledge the subject and it just won't happen to me. Well it has. There's a flu going around and the end result for anyone who has COPD is the bronchitis or pnuemonia. My pulminologist was on vacation but I'm in with an entire group of them and havn't found a bad apple yet. But then St. Thomas Hospital in Nashville, TN is the best and I havn't found a single bad doctor at all there outside of the ER doc who accused me of negleting my dementia mother who said things not knowing what she was saying. So even though docs on here keep telling me the prednisone is bad stuff for me it's the only alternative according to the pulminologists outside of just sitting back until I stop breathing. I'm already on the Advair, Singulair, doing the Combivent and taking the Rino-cort and the doing the Allerga 180. Alternative suggestions are welcome but I have to trust these guys know what they are doing and not just jumping on something I really didn't need that could cause further bone density problems. Any suggestions as alternatives will be passed by my pulminologist. They also put me on anti-biotics even though it is a flu since I have the bronchitis with the coughing up of brown and green chunks and have such a high insidence of pnuemonia problems. I was told by this doctor that I'm boardering on a emphazema diagnosis and my records show that has been a diagnosis from ER and other docs in the past. With that I would like to add that I have never smoked and the reason given is that I'm pre-disposed to COPD and the environmental pollutants in my case are enough to push me over, along with the allergy problems. Last night my chest hurt so bad I had trouble sleeping since I went to make micro-wave popcorn and left it in the micro-wave while I went to do my inhalers and it burnt a tad. It was enough to really upset my bronchia. Clover, it would be to your advantage to see a pulminologist to get a breathing and lung function assessment done. You really need to get the tests done again when you're breathing is good so they have bench mark numbers to go by. if you have higher lung function yet have asthma or a COPD then when you have a problem it will read within "normal" range and you will be dismissed as being above the 80% even though in reality you are not. I swim a good deal and walk and this keeps my lung function well above 100% when I'm breathing good and am having no problems. So when I drop to the typical 50% mark for lung function I'm actually worse off then that. This has caused doctors to dismiss my breathing concerns and not check my O2sat which with persistance turned out to be too low. But then I also have heart issues and maybe you need a complete heart evaluation also.
Another suggestion when your bronchitis is acting up would be to stay clear of any smoke, perfumes, cold air, warm air (Such as a car airconditioner heater pointed at you) or any strong oders. These will further irritate your bronchia and I know when mine are irritated these things make them hurt.

Twain wrote: shandy

Twain wrote:
shandy wrote:

.......Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites.....

Dear Shandy,

I am so delighted to see that you have joined the forum.

For quite a while I had doubts whether I was truly one of those "really good doctors" who are writing about, but now, because or your thoughtful definitive assertions, I no longer have to wonder any longer. You have clarified the matter for me, and I no longer have any doubts.

I only wish that you will be able to, over the Internet, help many more people through your profound wisdom.

Twain thank you for your very sarcastic reply. I have no idea who you are. Yes, some people here may believe in you and maybe that is good. It is not for me. I happen to know of someone who gives great medical advice on a forum. He is terrific and many people heed his advice. PS......he happens to be a 14 year old genuius who has 17 identities on the net and one happens to be a cardiologist. He laughs how they always believe him but he is very careful to check out the symptoms before he replies. I am not saying you are 14 years old but I am also not saying I would believe in you on this forum or any other for that matter. I am happy you created a fan club which enables your sarcasm towards me. I meant well when I suggested that Clover see a real life doctor but now I realize she was not seeking such advice and of course this is not my business. Shandy

Clover77 wrote: shandy

Clover77 wrote:
shandy wrote:

Clover I had no bad intentions. I am glad you are taking care of yourself. I just thought your situation sounded more serious than internet help and I have my reasons for thinking this but I wish you only well. Shandy

Shandy I sincerely do not believe you had bad intentions in replying. My response was as a result of your assumption I was seeking ONLY internet help when I clearly said I had been to numerous doctors and have been following up with tests. There's nothing wrong with seeking others' input on a medical situation though.

Also I personally feel it unfair to pass judgment as you did in regards to the physicians on this site. As you cautioned me that I do not know them...well it's hypocritical that you do not know them either so to make a statement that, "really good doctors do not have the time to hang around internet sites" is an unwarranted attack on their character. Just my opinion...

I am not seeking to argue with you Clover. Please think as you want to. Shandy

shandy wrote: . . . I

shandy wrote:

. . . I happen to know of someone who gives great medical advice on a forum. He is terrific and many people heed his advice. PS......he happens to be a 14 year old genuius who has 17 identities on the net and one happens to be a cardiologist. He laughs how they always believe him but he is very careful to check out the symptoms before he replies. I am not saying you are 14 years old but I am also not saying I would believe in you on this forum or any other for that matter. . . .

Hi, Shandy . . . welcome to the forum.

Thank you for your comments; they are valid and something that any poster has to keep in mind when on this or any forum. To date, I can honestly say that I have never seen any of the doctors (if that is indeed who they are Eye-wink ) that have posted here give "specific" advice, expecting someone to act on it. They may generalize on a condition and/or offer an opinion. When they offer an opinion, they state that is all that it is and end their comment with a statement that the poster should discuss it in person with their own doctor.

There are quite of few posters here that are savy and quick enough to jump in if they feel that someone is an imposter or is being given bad advice.

Having said this, I realize it is not up to me to change your view; but, maybe in time, you'll get to know and trust those who we "believe" to be honest and true doctors.

Have a good day.

shandy wrote: Twain

shandy wrote:
Twain wrote:
shandy wrote:

.......Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites.....

Dear Shandy,

I am so delighted to see that you have joined the forum.

For quite a while I had doubts whether I was truly one of those "really good doctors" who are writing about, but now, because or your thoughtful definitive assertions, I no longer have to wonder any longer. You have clarified the matter for me, and I no longer have any doubts.

I only wish that you will be able to, over the Internet, help many more people through your profound wisdom.

Twain thank you for your very sarcastic reply. I have no idea who you are. Yes, some people here may believe in you and maybe that is good. It is not for me. I happen to know of someone who gives great medical advice on a forum. He is terrific and many people heed his advice. PS......he happens to be a 14 year old genuius who has 17 identities on the net and one happens to be a cardiologist. He laughs how they always believe him but he is very careful to check out the symptoms before he replies. I am not saying you are 14 years old but I am also not saying I would believe in you on this forum or any other for that matter. I am happy you created a fan club which enables your sarcasm towards me. I meant well when I suggested that Clover see a real life doctor but now I realize she was not seeking such advice and of course this is not my business. Shandy

Welcome back cherie/Shandy,

"How do you know when someone says they are a doctor or nurse on the net and that it is really true? The reason I ask this question is that I had a 14 year old boy once who was my student and extremely brilliant...actually a genius.He had 17 identities on all kinds of forums and chats on the net. He had a 65 year old woman in love with him when he pretended to be a surgeon and whenever someone on the forum would consult with him he would check out other sites and then reply. He pretended to be a young girl, an old man, an old woman, a soldier, a sports reporter and many other people. The children in our class always laughed from his stories including myself and I wondered why anyone would believe him. His reply.."they all read typed words. What I did not know I researched before I replied" so my question is how do we really know? Thanks for any replies...again this is only my curiousity and nothing more. cherie"

Your unique personality will always shine through, no matter what identity you use.

A member of Twain's "fan club,"
Rockygirl

rockygirl wrote: shandy

rockygirl wrote:
shandy wrote:
Twain wrote:
shandy wrote:

.......Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites.....

Dear Shandy,

I am so delighted to see that you have joined the forum.

For quite a while I had doubts whether I was truly one of those "really good doctors" who are writing about, but now, because or your thoughtful definitive assertions, I no longer have to wonder any longer. You have clarified the matter for me, and I no longer have any doubts.

I only wish that you will be able to, over the Internet, help many more people through your profound wisdom.

Twain thank you for your very sarcastic reply. I have no idea who you are. Yes, some people here may believe in you and maybe that is good. It is not for me. I happen to know of someone who gives great medical advice on a forum. He is terrific and many people heed his advice. PS......he happens to be a 14 year old genuius who has 17 identities on the net and one happens to be a cardiologist. He laughs how they always believe him but he is very careful to check out the symptoms before he replies. I am not saying you are 14 years old but I am also not saying I would believe in you on this forum or any other for that matter. I am happy you created a fan club which enables your sarcasm towards me. I meant well when I suggested that Clover see a real life doctor but now I realize she was not seeking such advice and of course this is not my business. Shandy

Welcome back cherie/Shandy,

"How do you know when someone says they are a doctor or nurse on the net and that it is really true? The reason I ask this question is that I had a 14 year old boy once who was my student and extremely brilliant...actually a genius.He had 17 identities on all kinds of forums and chats on the net. He had a 65 year old woman in love with him when he pretended to be a surgeon and whenever someone on the forum would consult with him he would check out other sites and then reply. He pretended to be a young girl, an old man, an old woman, a soldier, a sports reporter and many other people. The children in our class always laughed from his stories including myself and I wondered why anyone would believe him. His reply.."they all read typed words. What I did not know I researched before I replied" so my question is how do we really know? Thanks for any replies...again this is only my curiousity and nothing more. cherie"

Your unique personality will always shine through, no matter what identity you use.

A member of Twain's "fan club,"
Rockygirl

Now I know why you call yourself Rockygirl . . . cause you ROCK, girl!!! Eye-wink Smiling

Another member of Twain's "fan club" AND a proud member of the Kit Kat Klub,
AE

abusedemotionally

abusedemotionally wrote:
rockygirl wrote:
shandy wrote:
Twain wrote:
shandy wrote:

.......Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites.....

Dear Shandy,

I am so delighted to see that you have joined the forum.

For quite a while I had doubts whether I was truly one of those "really good doctors" who are writing about, but now, because or your thoughtful definitive assertions, I no longer have to wonder any longer. You have clarified the matter for me, and I no longer have any doubts.

I only wish that you will be able to, over the Internet, help many more people through your profound wisdom.

Twain thank you for your very sarcastic reply. I have no idea who you are. Yes, some people here may believe in you and maybe that is good. It is not for me. I happen to know of someone who gives great medical advice on a forum. He is terrific and many people heed his advice. PS......he happens to be a 14 year old genuius who has 17 identities on the net and one happens to be a cardiologist. He laughs how they always believe him but he is very careful to check out the symptoms before he replies. I am not saying you are 14 years old but I am also not saying I would believe in you on this forum or any other for that matter. I am happy you created a fan club which enables your sarcasm towards me. I meant well when I suggested that Clover see a real life doctor but now I realize she was not seeking such advice and of course this is not my business. Shandy

Welcome back cherie/Shandy,

"How do you know when someone says they are a doctor or nurse on the net and that it is really true? The reason I ask this question is that I had a 14 year old boy once who was my student and extremely brilliant...actually a genius.He had 17 identities on all kinds of forums and chats on the net. He had a 65 year old woman in love with him when he pretended to be a surgeon and whenever someone on the forum would consult with him he would check out other sites and then reply. He pretended to be a young girl, an old man, an old woman, a soldier, a sports reporter and many other people. The children in our class always laughed from his stories including myself and I wondered why anyone would believe him. His reply.."they all read typed words. What I did not know I researched before I replied" so my question is how do we really know? Thanks for any replies...again this is only my curiousity and nothing more. cherie"

Your unique personality will always shine through, no matter what identity you use.

A member of Twain's "fan club,"
Rockygirl

Now I know why you call yourself Rockygirl . . . cause you ROCK, girl!!! Eye-wink Smiling

Another member of Twain's "fan club" AND a proud member of the Kit Kat Klub,
AE

A leopard doesn't change its spots, as they say.

BTW, I refer you to my post on the 2 cents thread when I revealed the secret of my handle and my angst over it.

rockygirl wrote: BTW, I

rockygirl wrote:

BTW, I refer you to my post on the 2 cents thread when I revealed the secret of my handle and my angst over it.

I may be slow witted tonight Shocked , but I haven't been totally forgetful Cool . . . you still ROCK, girl. Eye-wink Laughing out loud

I have no intention of

I have no intention of arguing with any of you or proving my own identity. You can think as you wish. I was mistaken in trying to adivse Clover, a lesson well learnt. I have no idea who any of you are and it does not matter. I see you enjoy your fun of which I want no part of. Shandy

abusedemotionally

abusedemotionally wrote:
rockygirl wrote:

BTW, I refer you to my post on the 2 cents thread when I revealed the secret of my handle and my angst over it.

I may be slow witted tonight Shocked , but I haven't been totally forgetful Cool . . . you still ROCK, girl. Eye-wink Laughing out loud

Yes you do, RG, and I was just joking with you about Talia Shire.

shandy wrote: I have no

shandy wrote:

I have no intention of arguing with any of you or proving my own identity. You can think as you wish. I was mistaken in trying to adivse Clover, a lesson well learnt. I have no idea who any of you are and it does not matter. I see you enjoy your fun of which I want no part of. Shandy

Yep . . . you're Cherie alright . . . you don't have to prove your identiy, Shady . . . ooops, sorry, a Freudian slip . . . Shandy . . . it's written all over who you are.

heartthrob

heartthrob wrote:
abusedemotionally wrote:
rockygirl wrote:

BTW, I refer you to my post on the 2 cents thread when I revealed the secret of my handle and my angst over it.

I may be slow witted tonight Shocked , but I haven't been totally forgetful Cool . . . you still ROCK, girl. Eye-wink Laughing out loud

Yes you do, RG, and I was just joking with you about Talia Shire.

I thought that was a great suggestion!

wisheronstars

wisheronstars wrote:
heartthrob wrote:
abusedemotionally wrote:
rockygirl wrote:

BTW, I refer you to my post on the 2 cents thread when I revealed the secret of my handle and my angst over it.

I may be slow witted tonight Shocked , but I haven't been totally forgetful Cool . . . you still ROCK, girl. Eye-wink Laughing out loud

Yes you do, RG, and I was just joking with you about Talia Shire.

I thought that was a great suggestion!

You have to face it, Rockygirl, you rock!

shandy wrote: Twain

shandy wrote:
Twain wrote:
shandy wrote:

.......Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites.....

Dear Shandy,

I am so delighted to see that you have joined the forum.

For quite a while I had doubts whether I was truly one of those "really good doctors" who are writing about, but now, because or your thoughtful definitive assertions, I no longer have to wonder any longer. You have clarified the matter for me, and I no longer have any doubts.

I only wish that you will be able to, over the Internet, help many more people through your profound wisdom.

Twain thank you for your very sarcastic reply. I have no idea who you are. Yes, some people here may believe in you and maybe that is good. It is not for me. I happen to know of someone who gives great medical advice on a forum. He is terrific and many people heed his advice. PS......he happens to be a 14 year old genuius who has 17 identities on the net and one happens to be a cardiologist. He laughs how they always believe him but he is very careful to check out the symptoms before he replies. I am not saying you are 14 years old but I am also not saying I would believe in you on this forum or any other for that matter. I am happy you created a fan club which enables your sarcasm towards me. I meant well when I suggested that Clover see a real life doctor but now I realize she was not seeking such advice and of course this is not my business. Shandy

Dear Shandy,

You may not realize it, but you have confused two issues.
The first is your advice that people should be wary of the information they receive over the Internet. I think everyone, including I, would agree with you on that one.
The second is your assertion:

shandy wrote:

.......Please do not listen to any medical advice given anywhere on the net for it can cause you serious trouble. Really good doctors do not have the time to hang around internet sites.....

That is what I responded to. Please do not muddy the waters by mixing the two.

-------------------------------------

As for having a "fan club" on this forum: if you stick around, you will see that people agree and disagree with others, including me. People have minds of their own and, for the most part, do not follow others.

Twain wrote: As for

Twain wrote:

As for having a "fan club" on this forum: if you stick around, you will see that people agree and disagree with others, including me. People have minds of their own and, for the most part, do not follow others.

Ahhhhh . . . You mean that it's being disbanned . . . and I just joined. Sad

Eye-wink Laughing out loud Eye-wink Laughing out loud Smiling Smiling

heartthrob

heartthrob wrote:
abusedemotionally wrote:
rockygirl wrote:

BTW, I refer you to my post on the 2 cents thread when I revealed the secret of my handle and my angst over it.

I may be slow witted tonight Shocked , but I haven't been totally forgetful Cool . . . you still ROCK, girl. Eye-wink Laughing out loud

Yes you do, RG, and I was just joking with you about Talia Shire.

Thanks. Once I figured it out, I LMAO. Laughing out loud

Twain's a sweet heart. If

Twain's a sweet heart. If all doctors had the compassion and drive that he does we wouldn't have a health care crisis. Smiling

Msdoodle wrote: Me too

Msdoodle wrote:

Me too Clover. Smiling I hope you have a great day today.

Thanks Doodle! Man you sure have an upbeat and welcoming attitude for what you are going through...refreshing. Eye-wink

Product of USA wrote:

Clover, it would be to your advantage to see a pulminologist to get a breathing and lung function assessment done. You really need to get the tests done again when you're breathing is good so they have bench mark numbers to go by. if you have higher lung function yet have asthma or a COPD then when you have a problem it will read within "normal" range and you will be dismissed as being above the 80% even though in reality you are not. I swim a good deal and walk and this keeps my lung function well above 100% when I'm breathing good and am having no problems. So when I drop to the typical 50% mark for lung function I'm actually worse off then that. This has caused doctors to dismiss my breathing concerns and not check my O2sat which with persistance turned out to be too low. But then I also have heart issues and maybe you need a complete heart evaluation also.
Another suggestion when your bronchitis is acting up would be to stay clear of any smoke, perfumes, cold air, warm air (Such as a car airconditioner heater pointed at you) or any strong oders. These will further irritate your bronchia and I know when mine are irritated these things make them hurt.

Thank you for your suggestions! Smiling I am so sorry to hear of your health issues, sounds very difficult and I hope you recover from this latest bout as soon as possible! I do like a marker of normal ranges for everything so when something happens you know if it's not your personal normal. I wouldn't say that I have COPD but do realize that I will be more susceptible to these types of illnesses now with having Celiac. Since being diagnosed I have noticed an increase in my sensitivity to smoke, perfume, general irritants, etc. and do avoid them. Since this is my second time in a year with bronchitis it wouldn't hurt to get a lung function test once better just to be safe.

shandy wrote:

I am not seeking to argue with you Clover. Please think as you want to. Shandy

Well Shandy I believe we all have the right to think as we want to...so ummm thanks I guess...

As for arguing with you, I wasn't aware that's what you perceived to be happening with me personally. A difference in opinion does not equal an argument in my mind it simply means differing views...nothing more.

ling @ Clover. Thank you,I

Smiling ling @ Clover. Thank you,I hope everything is going well for you. Have a great day. Eye-wink

Clover77 wrote: Msdoodle

Clover77][quote=Msdoodle wrote:

Me too Clover. Smiling I hope you have a great day today.

Product of USA wrote:

I wouldn't say that I have COPD but do realize that I will be more susceptible to these types of illnesses now with having Celiac. Since being diagnosed I have noticed an increase in my sensitivity to smoke, perfume, general irritants, etc. and do avoid them. Since this is my second time in a year with bronchitis it wouldn't hurt to get a lung function test once better just to be safe.

shandy wrote:

Clover, I find this interesting because I also have Celiac disease and was diagnosed 7 years ago after going at least 13 years undiagnosed and misdiagnosed. I believe I had it all my life and went undiagnosed and misdiagnosed but am sure it was at least 13 years. When were you diagnosed? Good to hear the numbers are down since that means you are following the diet well and not messing up.
The repertory problems are common with people diagnosed with Celiac as are multiple crazy, abnormal amounts of allergies and I've yet to find aany scientific medical information aor valid connections even persuded by the meical field on this. But then we are still in a learning phase on this disease since it was just in the past few years that it was confirnmed to not actually be a rare disease as was thought, but very common. Facts are that 1 in 133 ppeople have Celiac yet only 1 in 5000 are diagnosed, thus 97% of people with Celiac are not yet diagnosed. More diagnoses are coming around on this as word gets out. Physicians just were not taught about it in medical school or went over it so briefly they learned nothing to very little since it was considered rare. Right now the research is mainly on just what happens in the intestinal lining that causes the actual Celiac response. In this research we are hoping for some sort of cure or preventive measures. We are the ones who have already been harmed by it and it going so long before being diagnosed. the average celiac goes 11 years with symptoms prior to being diagnosed. Since it affects the intestinal wall that is there to keep toxins out of our bodies it can do some substantial damage in 11 years or more. So I'm personally aware. I'm on the board of direstors for our local suport group and the national CSA organization. I'm very active in my community on giving help and guidance to newly diagnosed Celiacs and even ones diagnosed for some time who are still having problems. I also have a package of extensive information that I give to local doctors and dieticians. It's a labor of love, something very personal and my employer has offered matching monetary contrabutions for both my time and my contrabutions of money and supplies. They have donated contrabutions to our local group. I was actually suprised when I recieved this.

If you have any questions please feel free to ask either on here where others can see and learn or through private message. I would like to add my Celiac was diagnosed when I was breaking out in very large Dermatitis Hepetaformis blisters that the worry became they would get infected to a point that I would end up with blood poisoning. The doctors at the time had diagnosed them as poison ivy for many years and sent me to a specialist since I wouldn't cooperate with them and stay out of the poison ivy! Shocked I was on Dapsone for three years starting out at 100mg twice a day and weening down to 50 and then 25 and then off. I still will get slight break outs if I screw up or ingest iodine. During those 3 years on dapsone I had little to no problems with my asthma and was very healthy over all in that the allergies and everything subsided. I didn't even get the colds or flu's going around. So I have to wonder if part of this all is from the gluten protien or other toxins still being in my system , including respertory, and still causing aggravation even though the blisters are no longer there. Dapsone is hard on the liver but I'm often tempted to just request a new prescription for 25mg tablets to take once a day for the next year and see what happens. Eye-wink

Product/Betty, Thank you for

Product/Betty,

Thank you for sharing all this info. My friend's grandson was recently diagnosed after being labelled a "failure to thrive" baby. I didn't know all these stats about how many people have Celiac and how long the average person goes without knowing they have this problem.

I am sure you are a powerful advocate and absolutely deserved your award! Smiling Smiling Smiling

Congratulations Betty!

Congratulations Betty! That's definitely a "nice" award, and you definitely deserve it!

rockygirl

rockygirl wrote:

Product/Betty,

Thank you for sharing all this info. My friend's grandson was recently diagnosed after being labelled a "failure to thrive" baby. I didn't know all these stats about how many people have Celiac and how long the average person goes without knowing they have this problem.

I am sure you are a powerful advocate and absolutely deserved your award! Smiling Smiling Smiling

I second that! (or third that, since Wisher already seconded it. Eye-wink Smiling )

rockygirl wrote: ... Your

rockygirl wrote:

...

Your unique personality will always shine through, no matter what identity you use.

A member of Twain's "fan club,"
Rockygirl

woot woot! LOL This is funny. I'm so tired/busy these days and I hardly find time to read anything here anymore. This happened to be one post I started to skim over and when I saw the pic for 'sarcasm', I had to go back and follow a bit more closely, because usually, Twain stays extremely neutral in things. haha And then I read Shandy's recount of the 14 yr old and I was like, "Hey, she sounds EXACTLY like cherie" ...and then RG posts it!!! HAHAHA
RG...You Rock!! Laughing out loud

Clover77 wrote: I totally

Clover77 wrote:

I totally agree with you, things can always get worse and there will always be someone who is suffering more...we're all unique and sadly suffer in our own ways. It's terrible when we can't get the care we deserve but must remain determined to find it! Puzzled I don't like the capital rule either, it only seems to apply when an entire post is in capitals. Otherwise it's how I simply emphasize. Cool

Welcome to the forum Clover. Smiling I like your avatar.

Ya right D. It's pretty

Ya right D. It's pretty tiring sitting out in the pool drinking Marguaritas! Laughing out loud

wisheronstars wrote: Ya

wisheronstars wrote:

Ya right D. It's pretty tiring sitting out in the pool drinking Marguaritas! Laughing out loud

SCRATCH!!!!
hiissssss!!!!
That's not ALL I do. Evil I have to clean and cook and...stuff.

And make ice!

And make ice! Eye-wink Laughing out loud

wisheronstars wrote: And

wisheronstars wrote:

And make ice! Eye-wink Laughing out loud

You're so funny, Wisher!!

Daenerys wrote: Welcome to

Daenerys wrote:

Welcome to the forum Clover. Smiling I like your avatar.

Thank you for the welcome...I've been a lurker for a long time a finally decided to join and glad I did! Smiling

Product of USA][quote=Clover77 wrote:

Clover, I find this interesting because I also have Celiac disease and was diagnosed 7 years ago after going at least 13 years undiagnosed and misdiagnosed. I believe I had it all my life and went undiagnosed and misdiagnosed but am sure it was at least 13 years. When were you diagnosed? Good to hear the numbers are down since that means you are following the diet well and not messing up.
The repertory problems are common with people diagnosed with Celiac as are multiple crazy, abnormal amounts of allergies and I've yet to find aany scientific medical information aor valid connections even persuded by the meical field on this. But then we are still in a learning phase on this disease since it was just in the past few years that it was confirnmed to not actually be a rare disease as was thought, but very common. Facts are that 1 in 133 ppeople have Celiac yet only 1 in 5000 are diagnosed, thus 97% of people with Celiac are not yet diagnosed. More diagnoses are coming around on this as word gets out. Physicians just were not taught about it in medical school or went over it so briefly they learned nothing to very little since it was considered rare. Right now the research is mainly on just what happens in the intestinal lining that causes the actual Celiac response. In this research we are hoping for some sort of cure or preventive measures. We are the ones who have already been harmed by it and it going so long before being diagnosed. the average celiac goes 11 years with symptoms prior to being diagnosed. Since it affects the intestinal wall that is there to keep toxins out of our bodies it can do some substantial damage in 11 years or more. So I'm personally aware. I'm on the board of direstors for our local suport group and the national CSA organization. I'm very active in my community on giving help and guidance to newly diagnosed Celiacs and even ones diagnosed for some time who are still having problems. I also have a package of extensive information that I give to local doctors and dieticians. It's a labor of love, something very personal and my employer has offered matching monetary contrabutions for both my time and my contrabutions of money and supplies. They have donated contrabutions to our local group. I was actually suprised when I recieved this.

If you have any questions please feel free to ask either on here where others can see and learn or through private message. I would like to add my Celiac was diagnosed when I was breaking out in very large Dermatitis Hepetaformis blisters that the worry became they would get infected to a point that I would end up with blood poisoning. The doctors at the time had diagnosed them as poison ivy for many years and sent me to a specialist since I wouldn't cooperate with them and stay out of the poison ivy! Shocked I was on Dapsone for three years starting out at 100mg twice a day and weening down to 50 and then 25 and then off. I still will get slight break outs if I screw up or ingest iodine. During those 3 years on dapsone I had little to no problems with my asthma and was very healthy over all in that the allergies and everything subsided. I didn't even get the colds or flu's going around. So I have to wonder if part of this all is from the gluten protien or other toxins still being in my system , including respertory, and still causing aggravation even though the blisters are no longer there. Dapsone is hard on the liver but I'm often tempted to just request a new prescription for 25mg tablets to take once a day for the next year and see what happens. Eye-wink

VERY impressive and definitely well deserved!!! We need more people like you who are willing to do the research and pass it along to MD's and Dieticians who are not well educated on this disease. I can't blame any MD who missed this in me as you said the symptoms are so vast...it's really quite amazing. When you type in the "typical" symptoms I do not have ANY of them. Obviously the most significant that would prompt testing would be an IBS problem of some sort and this was never the case for me. Upon further research I have been able to connect both my physical and psychological issues to Celiac. I think I wrote it somewhere on here that I suffer from chronic Depersonalization/Derealization and have a severe anxiety disorder.

Myself, I was diagnosed in February of 2007 but believe it has been active since November of 2001. I'm able to pinpoint it because that's literally when my life changed almost overnight. I was young, happy, healthy, just married but way too high strung and overly focused on my career. As I'm sure you know one of the triggers is stress and I definitely stressed myself out, lived on coffee and cigarettes, got no sleep and worked my butt off. After waking up and the world looked and felt differently to me my physician started sending me for tests but to no avail. I ended up finding a wonderful psychiatrist who diagnosed my psychiatric disorders very quickly and quite literally saved me because I thought I was going insane.

I am still working with this psychiatrist and last year he felt that I had put all the work into getting well that I could and he started to think something else was preventing me from getting well. He started looking back into my physical history and said he wanted to send me for some tests. The first one he picked was Celiac and bang right there is was obvious. My tTg was 132 and we went from there to get it all confirmed. I saw a Dietician who was useless, she told me to just stay away from wheat (is your jaw dropping, lol?) and even admitted to me she didn't know much about Celiac.

I also began my own research and could not believe how incredibly hidden gluten is...it's in EVRYTHING! After visiting Celiac forums I noticed a pattern of people who after a year or two of diagnosis discovered Lactose, soy, etc, etc, sensitivities. So since I have been living with what to me have been very debilitating disorders (I am on disability) I wanted to get well at ANY cost. I discovered the Paleo Diet. There's virtually nothing to be allergic to, it's terribly boring and extremely limiting but I decided until I recover from my other ailments I was going to stick with it. (It helps that I'm a perfectionist, so no there is simply NO chance I have been glutened.) Within 3 months to the amazement of my psychiatrist and MD my tTg was at 30...they had to retest because they thought it was impossible. And at 6 months it was at 5 which is normal. I get retested every 6 months and it has remained at 5 but unfortunately my other disorders have not yet responded but I have some hope now that in time once my intestinal tract heals so will the rest of me.

Like you I am interested (but quite debilitated at the moment to put it to good use) in researching this and finding all of the different correlations people may suffer as a result. I do now plan once well to go into the medical field and use all of the information I have learned over the years...why waste the knowledge I figure plus I do now also have a passion for it.

So anyways, thanks for reading my story AND thank you so much for sharing yours! Smiling I hope you find some relief soon because I know that you are still suffering too and it is so difficult but at least we know the cause of probably most of our health issues now. (I really do believe the things you continue to have problems with and myself are from the damage caused and yes possibly gluten protein remaining in our cells.) Once people start to realize the many different ways this may manifest hopefully it will be diagnosed MUCH earlier causing so much less damage and a much easier recovery.

Nice award Product!! Thank

Nice award Product!! Thank you for sharing!! Smiling I hope you and Clover are having a good day.

Thanks everyone, I really

Thanks everyone, I really didn't expect the award since there are people who do far more then I do because they are not working like I am and are on disablity. I was fortunate to work a proffession and for an employer that it would be hard to be disabled from. Even when I'm in bed I can work from my lap top! LOL! Clover, I started a Celiac thread awhile back, but it may have been before you started to lurk. I'll start another an add some web sites again that have some great info and research that's being done on this. Also there is a list service I'm on that is very informative and like this forum it's Canadian and U.S.. You get many emails, I just sort through them and pick out what looks good or that I can relate to. yes, there are so many variations of sysmptoms. What I tell doctors is if you have a patient that just isn't responding to treatments and has really weird things going on, especuially the classic symptoms, constant itchy blisters or mouth sores or allergies that are just over the wall, check them for Celiac. We have quite a few members in our group and the horror stories are worse then many on here in relationship to delaings with doctors prior to finally getting a diagnosis. It isn't uncommon to be told it's all in your head and be sent to a psychiatrist. One teenage girl was really loosing weight to the point she had to be put in the hospital on several occassion. She was diagnosed with anorexia and it turned out to be Celiac disease.
When I has diagnosed 7 years I was told that celiac disease is from gluten. In fact one the first visit to the dermatologist she looked at me and my medical history and told me it was gluten. Of course I had no idea what gluten even was. She told me it was a protien in wheat, rye, barley and oats and it's in everything. After biopsys confirmed it was in deed Celiac I was told gluten is in everything and there is no way I could avoid it. That they would keep me on this high dose Dapsone that could cause liver damage so I would need to come in for blood work every few weeks, along with all my other meds including massive amounts of cortisteriods. Eventually I would have problems with all these medications but they would keep me comfortable. LOL! I went home in shock! Had no idea what to eat, so I just ate bannanas and rice for weeks until I found enough info on line and one of our Suport Group members found me asking questions on there and got my email and phone number to call me and help me out. Since I continue to have problems with foods but it isn't alwasy the foods as I'm highly allergic to yeasts and molds. So produce has to be fresh and I can't have cheeses or any alchohol. I'm also highly allergic to ethynol. I can't even drink fruit juice unless I make it myself from fresh fruits that are not rotting at all. It's very strict, but over time I've learned how to work with the limitations. Social gatherings are still very hard for me. The people are work with are great and know what I can have so I get much fruit brought to me. Church is very difficult since there is always food and people tend to not be as understanding. They like to insist I can have a little or do communion. Then you have the purfume wearers who take a bath in the purfume that sets my asthma off. It's not easy, but we actually eat very healthy.

Again, I would like to

Again, I would like to comment on how interesting I am finding all of this information, Product.

The "perfume wearers" are a problem for a lot of us--triggers both my rhinitis and my migraines. I would like perfume to come with warning labels like cigarettes!!

Hi Clover,if your reading. I

Hi Clover,if your reading. I hope all is well.

I thought of this thread

I thought of this thread just yesterday. I was at the store shopping, and this lady was wearing what must have been the entire bottle of one of the most horrid perfumes I have ever smelled! Ugh! I don't have asthma or allergies or anything that would be triggered by this, only my gag reflex. And there is just one perfume that the scent will immediately make me gag and have to leave where ever I may be....Fire and Ice. The smell of that stuff.... Barf!

I wonder, why is it important that doctors know if you have had pneumonia before? If you have had it, is it likely you will get it again?

noonespecial wrote: rocky,

noonespecial wrote:

rocky, i agree with you. Perfumes and cologne sents trigger migraines, asthma, allergic reaction etc. I do not wear any scent to work, and restrict my staff as well. NO perfume or scented body lotions. Some think its no big deal, but when you are in an enclosed area with a patient wearing that stuff, and they react,, its your fault and now they need to be treated for something they were not having an issue with before.

some people just so overdue the perfume, it lingers.
anyway, i agree with you

A hospital near me set off all sorts of protests when it banned employees from smoking during working hours for the same reasons.

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